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My XXY

Tempe, AZ · EIN 851050645 · Form 990 · FY2022 · NTEE G20 · Voluntary Health Associations · Small ($100K-$1M) · www.myxxy.org
revenue
$763K
expenses
$73K
net assets
$659K
employees
0
volunteers
6
program ratio
37%
mission · from form 990

Increasing global awareness of genetic differences in humans such as Extra XandY chromosomes like Klinefelter syndrome, as well as improving care by developing new tools to support medical professionals families and individuals.

profile · synthesized from sources

My XXY | Chromodiversity™ Foundation is a nonprofit organization founded in 2020 that supports families affected by genetic differences, particularly focusing on variations of the X and Y chromosomes. The foundation aims to increase awareness and understanding of these variations, providing resources and tools to help individuals and families thrive.

named programs · 2 · from sources

what they call their work

ChromoCompass™
An online platform designed to deliver scalable support for families worldwide dealing with genetic differences.
eXtraordinarY eXperiences
Programs aimed at providing supportive experiences for children with genetic variations.
activities · 2 clusters

what they do

  • Parent-to-Parent Support for Special Needs 1 activity
    • Community Support and Education for Genetic Differences
      My XXY provides a podcast and resource list to share research, advice, and stories with families, educators, and professionals affected by genetic differences. They also develop practical tools and programs for families, including eXtraordinarY eXperiences for children and ChromoCompass™, an online support platform.
  • Uncategorized 7 activities
    • Community Support and Education for Genetic Differences
      My XXY provides a podcast and resource list to share research, advice, and stories with families, educators, and professionals affected by genetic differences. They also develop practical tools and programs for families, including eXtraordinarY eXperiences for children and ChromoCompass™, an online support platform.
    • International Ambassador Program
      My XXY engages ambassadors in over 15 countries to inform organizational decisions and provide community support, fostering a global network for individuals and families affected by genetic differences.
    • International Ambassador Program
      My XXY engages ambassadors in over 15 countries to inform organizational decisions and provide community support, fostering a global network for individuals affected by genetic differences.
    • Peer Mentoring and Social Connection Programs
      The organization organizes community gatherings and peer mentoring programs to support children with genetic differences in building confidence and social connections.
    • Peer Mentoring and Social Connection Programs
      The organization organizes community gatherings and peer mentoring programs to support children with genetic differences in building confidence and social connections.
    • Research and Data Collection on X and Y Chromosome Variations
      My XXY estimates that approximately 1 in 400 people has an X or Y chromosome variation, and reports specific prevalence rates for conditions such as XXY (1 in 500 males), Trisomy X (1 in 1,000 females), XYY (1 in 1,000 males), and Turner syndrome (1 in 2,000 females).
    • Research on X and Y Chromosome Variations
      My XXY conducts research and reports statistics on the prevalence of X and Y chromosome variations, including XXY, Trisomy X, XYY, and Turner syndrome, estimating that approximately 1 in 400 people has such a variation.
financials · form 990 · fy2022

the money

revenue
Total revenue$763K
Contributions & grants$756K99%
Program service revenue$00%
Investment income$7K1%
Other revenue$0
expenses
Total expenses$73K
Program expenses37%
Admin / overhead20%
Fundraising43%
Salaries & benefits$0
Grants paid out$4K
Largest expense lineFacilities
balance sheet
Total assets$659K
Cash$170K
Investments$488K
Liabilities$0
Net assets$659K
Liquid reserves108.5 mo
1 years on record · 2022–2022
leadership · form 990 part vii · fy2022

who runs it

board members · 6
  • Clotilde Iaia — Director
  • Edmar Edison Tan — Treasurer
  • Elliot Polak — CEO
  • Rhodora Crescencia — Secretary
  • Tiphanie Nina Polak — Director
  • Ulysse Ernest Polak — Director
relationships · 6

who they work with

  • AXYS (Australia) Partner — Organization offering information and community support for individuals with XXY and their families, referenced as a resource.
  • AXYS (US) Partner — Organization offering information and community support for individuals with XXY and their families, referenced as a resource.
  • Advisory Board Coalition — Group of world-class experts providing guidance and diverse expertise to shape organizational activities and decisions.
  • Elliot Polak Partner — Founder of My XXY | Chromodiversity™ Foundation
  • KSA (UK) Partner — Organization offering information and community support for individuals with XXY and their families, referenced as a resource.
  • chromodiversity.org Network — Official website providing resources on X and Y chromosome variations