irs program accomplishments · form 990 part iii · fy2022
what they reported doing
Program narrative the organization filed with the IRS. Ordered by program spending.
- #1 primary $4KOUTREACH AND ADVOCACY: EACH YEAR WE BRING SPEAKERS WHO HAVE DOWN SYNDROME AND THEIR PARENTS TO SELF-ADVOCATE TO THE MAYO CLINIC. WE ALSO DO THE SAME AT ARIZONA STATE UNIVERSITY IN AN EFFORT TO GIVE A TRUE FEELING OF WHO CHILDREN WITH DOWN SYNDROME ARE AND WHAT THEY CAN ACCOMPLISH.
- #2 $4KSOCIAL EVENTS: OUR OGANIZATION HOLDS A NUMBER OF INCLUSIVE EVENTS DEDICATED TO SPREADING AWARENESS. THESE EVENTS INCLUDE THE ANNUAL SHARING DOWN SYNDROME WALK, CHRISTMAS PARTY, NEW PARENT DESSERT NIGHTS, GILBERT WATER TOWER LIGHTING FOR WORLD DOWN SYNDROME DAY, AND PIZZA WITH THE POLICE.
named programs · 4 · from sources
what they call their work
Angels Among Us
Provides new parent tote bags with resources and support for families with newborns diagnosed with Down syndrome.
Educational Advocacy
Offers advocacy services to ensure children with Down syndrome receive inclusive education.
Innovative Employment
Facilitates job opportunities for individuals with Down syndrome and their caregivers through various programs.
Social Outreach
Hosts community events and educational discussions to promote awareness and inclusion of individuals with Down syndrome.
activities · 6 clusters
what they do
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Parent-to-Parent Support for Special Needs 4 activities
- Family Support and ResourcesProvides comprehensive support services, resources, and education to individuals with Down syndrome and their families from birth through adulthood, including in-home visits, new parent tote bags, and a monthly newsletter.
- In-home family support visitsConducts in-home visits for new families, including hospital visits following the birth or adoption of a child with Down syndrome, to provide emotional and practical support; includes follow-up home visits after NICU discharge.
- Lifecycle support programs and resourcesOffers free support services, resources, education, and events for individuals with Down syndrome and their families, spanning from birth through adulthood; has served thousands of families since founding 34 years ago.
- New parent resource kitsDistributes new parent tote bags containing books, resources, and gifts valued at $100–125 to families of newborns with Down syndrome.
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Down Syndrome Community Awareness Events 3 activities
- Annual Sharing Down Syndrome WalkOrganizes the annual Sharing Down Syndrome Walk as a primary fundraising event to support free programs and services; the event has been ongoing for over 20 years and celebrates community members, families, and organizations supporting people with Down syndrome.
- Annual family events and celebrationsHosts annual events including Christmas parties for families and participates in public awareness activities such as the World Down Syndrome Day water tower lighting in downtown Gilbert.
- Community Events and CelebrationsOrganizes annual community events such as the Sharing Down Syndrome Walk, Christmas parties, and participates in World Down Syndrome Day celebrations to foster community and promote inclusion.
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Supported Employment for People with Disabilities 2 activities
- Employment Opportunities for Individuals with Down SyndromeHires individuals with Down syndrome and their caregivers for project-based paid work, including speaking engagements, event support, and administrative tasks.
- Paid work opportunities for individuals with Down syndrome and caregiversHires individuals with Down syndrome and their caregivers for project-based paid work, including speaking engagements, event support, and administrative tasks.
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Financial Assistance for Medical Devices 1 activity
- Financial support for educational advocacyProvides financial assistance to families to access educational advocacy services through Susan Marks & Advocates, helping ensure appropriate educational support for individuals with Down syndrome.
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Member-Focused Newsletter Publishing 1 activity
- Monthly bilingual newsletterProduces and distributes a monthly newsletter in English and Spanish that includes information, activities, and resources for families of individuals with Down syndrome.
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Uncategorized 2 activities
- Guardianship and Educational Advocacy SupportOffers guidance to families on filing for guardianship for adults with Down syndrome and provides financial support for educational advocacy services.
- Guidance for guardianship filingProvides support and guidance to families navigating the legal process of filing for guardianship for individuals with Down syndrome who are transitioning into adulthood.
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financials · form 990 · fy2022
the money
revenue
Total revenue$200K
Contributions & grants$202K101%
Program service revenue$00%
Investment income$170%
Other revenue$-2K
expenses
Total expenses$140K
Program expenses63%
Admin / overhead32%
Fundraising5%
Salaries & benefits$63K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$129K
Cash$129K
Investments$0
Liabilities$0
Net assets$129K
Liquid reserves11.1 mo
2 years on record · 2021–2022 · YoY revenue +82.4%
leadership · form 990 part vii · fy2022
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| GINA JOHNSON | EXECUTIVE DIRECTOR | 40 | $32K |
board members · 7
- CHRIS CLARIDGE — TREASURER
- CURTIS JOHNSON — PRESIDENT
- GINA BARRERAS — MEDICAL ADVISOR
- KEVIN HUFF — BUSINESS ADVISOR
- LEON RICKS — VICE PRESIDENT
- SETH JOHNSON — SECRETARY
- SHANNON RINGENBACH — EDUCATIONAL ADVISOR
relationships · 45
who they work with
- AZ Dept of Economic Security – Department of Developmental Disabilities Government — Listed as a "Friend of Sharing".
- AZ Premier Flag Football Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- AZDOR Government — References AZDOR.gov for information on the AZ Charitable Giving Tax Credit.
- Administrative Office of the Courts Partner — Collaborates by directing families to its probate training modules for guardianship.
- Ak-Chin Indian Community Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Albertsons Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Albertsons, Safeway and Vons – Southwest Division Funder — Platinum Sponsor.
- Arizona Court Help Partner — Provides referral to legal aid resources through azcourthelp.org for families needing attorney support.
- Arizona State University Partner — Hosts visits by self-advocates with Down syndrome supported by SHARING DOWN SYNDROME ARIZONA INC for educational discussions.
- Arizona State University Sensorimotor Research Lab Partner — Listed as a "Friend of Sharing".
- Arizona State University Sensorimotor Research Lab Partner — Supporting organization providing partnership to Sharing Down Syndrome Arizona.
- Bell Bank Funder — Silver Sponsor.
- Best Trophies and Awards Funder — Bronze Sponsor.
- Blacker Orthodontics Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Colten Cowell Foundation Partner — Selects SHARING DOWN SYNDROME ARIZONA INC to nominate individuals with Down syndrome for superhero experiences.
- Costco Wholesale Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Dignity Health Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Farnsworth Ricks Management Realty Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Foresight Chiropractic Wellness Center Funder — Bronze Sponsor.
- Kerr Endodontics Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- MC Companies Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Mayo Clinic Partner — Hosts visits by self-advocates with Down syndrome supported by SHARING DOWN SYNDROME ARIZONA INC for educational discussions.
- Mountain View Funeral Home & Cemetery Funder — Platinum Sponsor.
- National First Response Roofing Funder — Platinum Sponsor.
- No Missing Links Foundation Funder — Diamond Sponsor.
- Phelps LaClair PLC Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- Phelps LeClair Estate Law Funder — Gold Sponsor.
- Raising Special Kids Partner — Supporter organization collaborating with Sharing Down Syndrome Arizona.
- Roosevelt Water Conservation District Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
- SAECO Funder — Sponsor of the 2026 Sharing Walk Fundraiser.
+ 15 more