named programs · 8 · from sources
what they call their work
Adult Program & Services
Programs and services tailored for adults with Down syndrome.
Buddy Up Tennis
A 90-minute tennis and fitness program designed for children and adults with Down syndrome, offering professional instruction and fitness conditioning, with athletes paired with volunteer buddies.
Children's Programs & Services
Programs and services tailored for children with Down syndrome.
ClubXtra
A group program for parents to meet and support other parents, and for children aged 0-7 years old to play and interact.
DSN Boxing Club
A boxing program for individuals with Down syndrome focusing on physical, mental, and emotional well-being, led by a Doctor of Physical Therapy.
Down Syndrome Walk Arizona
An annual walk event to raise awareness and support for the Down syndrome community.
Expectant & New Parents
Provides guidance, individualized support, parent mentors, and new parent packets with helpful information and resources for families expecting or who have just had a baby with Down syndrome.
Youth Program & Services
Programs and services tailored for youth with Down syndrome.
activities · 4 clusters
what they do
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Parent-to-Parent Support for Special Needs 4 activities
- Community and Family Support ProgramsProvides information, resources, programs, events, and networking opportunities for individuals with Down syndrome and their families, including a private Facebook chat group for Arizona families and ClubXtra, a group program for parents and children (0-7 years old).
- Information, Resources, and NetworkingProvides comprehensive support to individuals with Down syndrome and their families from initial diagnosis through adulthood, offering information, resources, programs, events, and networking opportunities, including a private Facebook chat group for Arizona families.
- New Parent Support and OutreachOffers outreach and connection services to expectant and new parents of children with Down syndrome, including a parent mentorship program, new parent packets with information and resources, and a group program (ClubXtra) for parents and children (0-7 years old) to meet and interact.
- Support for New and Expectant ParentsOffers outreach, connection services, and a parent mentorship program for expectant and new parents of children with Down syndrome, including distributing new parent packets with information and resources.
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Adaptive Sports Programs for Youth with Disabilities 2 activities
- Adaptive Fitness ProgramsOperates adaptive fitness programs for individuals with Down syndrome, including a 90-minute adaptive tennis and fitness program for ages 5 and over, and the DSN Boxing Club which features adaptive training led by a licensed physical therapist in Gilbert, AZ.
- Adaptive Sports and Fitness ProgramsProvides adaptive fitness programs for individuals with Down syndrome, including a 90-minute adaptive tennis and fitness program for ages 5 and over, and the DSN Boxing Club with adaptive training led by a licensed physical therapist in Gilbert, AZ.
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Youth Internship Placement 2 activities
- Internship ProgramOffers internship opportunities for college students and recent graduates, allowing them to contribute to services that impact individuals with Down syndrome and their families.
- Internship ProgramOffers internship opportunities for college students and recent graduates, allowing them to contribute to services impacting individuals with Down syndrome and their families.
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Uncategorized 2 activities
- Advocacy for Policy ChangeSuccessfully advocated in the Arizona legislature to change state law A.R.S. § 36-551, making Down syndrome an eligible category under the Division of Developmental Disabilities.
- Legislative AdvocacySuccessfully advocated in the Arizona legislature to change state law A.R.S. § 36-551, making Down syndrome an eligible category under the Division of Developmental Disabilities.
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financials · form 990 · fy2022
the money
revenue
Total revenue$283K
Contributions & grants$317K112%
Program service revenue$3K1%
Investment income$520%
Other revenue$-37K
expenses
Total expenses$319K
Program expenses48%
Admin / overhead28%
Fundraising23%
Salaries & benefits$195K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$259K
Cash$259K
Investments$0
Liabilities$124K
Net assets$135K
Liquid reserves9.8 mo
3 years on record · 2020–2022 · YoY revenue -8.7%
leadership · form 990 part vii · fy2022
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Jennifer OConnell | Executive Director | 40 | $75K |
board members · 8
- Andrea OBrien — Vice Chair
- Andrew Schmidtke — Director
- Cassandra Petre Laughrey — Chair
- Chandra Williamson — Treasurer
- Dannah Raz — Secretary
- Gonzalo Castaneda — Director
- Jessica Avena — Director
- John Escobar — Director
relationships · 12
who they work with
- Advisory Council Partner — Advisory body providing guidance and expertise to support organizational goals.
- Board of Directors Partner — Leadership body guiding the organization's mission and operations.
- Buddy Up for Life Partner — Partner organization co-delivering a 90-minute adaptive tennis and fitness program for individuals with Down syndrome.
- Buddy Up for Life Partner — Partnered to deliver a tennis and fitness program for individuals with Down syndrome.
- Division of Developmental Disabilities Government — Advocated for policy change to include Down syndrome as an eligible category under DDD services in Arizona.
- Jennifer O’Connell Partner — Contact person for internship applications and organizational outreach.
- Jill Nico Partner — Member of the Advisory Council
- Laura Chapnek Partner — Member of the Advisory Council
- Mary Brumand Partner — Member of the Advisory Council
- Megan Selvey, ESQ Partner — Member of the Advisory Council
- Michele Fiorenza Partner — Member of the Advisory Council
- National Down Syndrome Society Partner — Provides a comprehensive guide for new and expectant parents through a partnership with NDSS.