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SOUTHERN ARIZONA NETWORK FOR DOWN SYNDROME
TUCSON, AZ · EIN 470932953 · Form 990EZ · FY2022 · NTEE G25 · Voluntary Health Associations · Small ($100K-$1M) · www.sandsaz.org
revenue
$110K
expenses
$142K
net assets
$0
employees
—
mission · from form 990

IMPROVE & ENRICH THE LIVES OF THOSE WITH DOWN SYNDROME

profile · synthesized from sources

SOUTHERN ARIZONA NETWORK FOR DOWN SYNDROME (SANDS) supports individuals with Down syndrome and their families in Southern Arizona through direct financial assistance, community events, and resource provision. The organization offers programs such as the G.O.L.D. sponsorship and reimbursement initiative, new parent support, and family gatherings. SANDS is volunteer-run and funded by donations and grants, focusing on enhancing quality of life across the lifespan.

named programs · 5 · from sources

what they call their work

Family Resource Fair
Event connecting families with service providers including state agencies, therapists, doctors, and support groups.
G.O.L.D. Program
Gifting Opportunities for Learning & Development provides financial sponsorships or reimbursements for medical, therapeutic, and educational needs of individuals with Down syndrome.
New Parent Welcome Program
Offers welcome packages, one-on-one support calls, and resource guides to families after a Down syndrome diagnosis.
SANDS Walk for Down Syndrome
Annual fundraising and awareness event featuring a resource fair, family activities, and community celebration.
Whole Family Gatherings
Large annual events such as World Down Syndrome Day at the zoo and summer museum rentals to foster community connection.
activities · 8 groups

what they do

  • Down Syndrome Community Awareness Events 8 activities
    • Community Events and Gatherings
      Organizes various community events and gatherings for families, including an annual World Down Syndrome Day celebration at the zoo, renting out the Children's Museum Tucson, and hosting the SANDS Move & Groove Challenge.
    • Community Events and Gatherings
      Organizes various community events and gatherings for families, including an annual World Down Syndrome Day celebration at the zoo, renting out the Children's Museum Tucson, and hosting the SANDS Move & Groove Challenge.
    • Community Events and Gatherings
      Organizes various community events and gatherings for families, including whole family gatherings, an annual World Down Syndrome Day celebration at the zoo, and renting the Children's Museum Tucson for summer family events.
    • Community Events and Gatherings
      Organizes various community events and gatherings for families, including an annual World Down Syndrome Day celebration at the zoo, renting the Children's Museum Tucson, and whole family gatherings to foster connection and relaxation.
    • SANDS Walk for Down Syndrome
      Organizes the annual SANDS Walk for Down Syndrome, which started in 2001 and attracts 800-1,000 people, featuring a resource fair, food, entertainment, and celebration for the community to connect families with critical services and providers.
    • SANDS Walk for Down Syndrome
      Organizes the annual SANDS Walk for Down Syndrome, which started in 2001 and attracts 800-1,000 people, featuring a resource fair, food, entertainment, and celebration for the community.
    • SANDS Walk for Down Syndrome
      Organizes the annual SANDS Walk for Down Syndrome, which started in 2001 and attracts 800-1,000 people, featuring a resource fair, food, entertainment, and celebration for the community.
    • SANDS Walk for Down Syndrome
      Organizes the annual SANDS Walk for Down Syndrome, which includes a resource fair, food, entertainment, and celebration for the community, attracting 800-1,000 people and connecting families with critical services and providers.
  • Parent-to-Parent Support for Special Needs 7 activities
    • Community Resource Management
      Organizes and maintains a calendar of events for the Down syndrome community and manages a private Meta group for families to connect, ask questions, and find community support.
    • Event Calendar Management
      Organizes and maintains a calendar of events specifically for the Down syndrome community.
    • New Parent Welcome Program
      Operates a New Parent Welcome program that provides support to parents receiving a Down syndrome diagnosis, including one-on-one support calls, visits from board members, and welcome packages with books, resource guides, and gifts.
    • New Parent Welcome Program
      Operates a New Parent Welcome program that provides support to parents receiving a Down syndrome diagnosis, including one-on-one support calls, visits from board members, and welcome packages with books, resource guides, and gifts.
    • Online Community Support
      Manages a private Meta group to facilitate connections, questions, and community support among families.
    • Online Community Support
      Manages a private Meta group to provide a platform for families to connect, ask questions, and find community support.
    • Online Community and Resource Management
      Manages a private Meta group for families to connect and find community support, and organizes a calendar of events for the Down syndrome community.
  • Virtual and Stair-Climbing Step Challenges 3 activities
    • 321fun! Movement Challenge
      Operates "321fun!", a 21-day movement challenge for families with individuals with Down syndrome to encourage physical activity, providing medals to all individuals with Down syndrome who complete the event.
    • 321fun! Movement Challenge
      Operates "321fun!", a 21-day movement challenge designed to encourage physical activity for families with individuals with Down syndrome, providing medals to all individuals with Down syndrome who complete the event.
    • 321fun! Movement Challenge
      Operates "321fun!", a 21-day movement challenge to encourage physical activity for families with individuals with Down syndrome, providing medals to all individuals with Down syndrome who complete the event.
  • Conference Attendance Scholarships 2 activities
    • Conference Attendance Support
      Provides financial and logistical support for families to attend conferences such as the NDSS Buddy Walk on Washington and the NDSC conference, facilitating advocacy training, networking, and learning experiences.
    • Conference Attendance Support
      Provides financial and logistical support for families to attend conferences such as the NDSS Buddy Walk on Washington and the NDSC conference, facilitating advocacy training, networking, and learning experiences.
  • Family Resource Fairs and Community Events 2 activities
    • Family Resource Fair and Family Day
      Organizes a Family Resource Fair and Family Day, which also serves as a fundraising event.
    • Family Resource Fair and Family Day
      Organizes a Family Resource Fair and Family Day, which also serves as a fundraiser and connects families with critical services.
  • Adaptive Equipment Provision for Special Needs 2 activities
    • Individualized Equipment Provision
      Provides specialized equipment such as bikes and strollers to individuals with Down syndrome to assist with personal goals and daily mobility.
    • Individualized Support for Equipment
      Provides specialized equipment to individuals with Down syndrome, such as bikes to achieve personal goals and specialized strollers for mobility and daily tasks.
  • Organized Running Race Events 1 activity
    • SANDS Move & Groove Challenge
      Hosts the SANDS Move & Groove Challenge, an event promoting movement and engagement.
  • Uncategorized 3 activities
    • Gifting Opportunities for Learning & Development (G.O.L.D.) Program
      Operates the G.O.L.D. Program, providing financial awards up to $1,000 per individual with Down syndrome per calendar year for educational, therapeutic, and medical purposes.
    • Gifting Opportunities for Learning & Development (G.O.L.D.) Program
      Operates the G.O.L.D. Program, providing financial awards up to $1,000 per individual with Down syndrome per calendar year for educational, therapeutic, and medical purposes, as well as for learning and development opportunities.
    • Gifting Opportunities for Learning & Development (G.O.L.D.) Program
      Operates the G.O.L.D. Program, providing financial awards up to $1,000 per individual with Down syndrome per calendar year for educational, therapeutic, and medical purposes.
financials · form 990EZ · fy2022
revenue
Total revenue$110K
Contributions & grants$35K32%
Program service revenue——
Investment income$320%
Other revenue—
expenses
Total expenses$142K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits$36K
Grants paid out$63K
balance sheet
Total assets$0
Cash—
Investments—
Liabilities—
Net assets$0
3 years on record · 2020–2022 · YoY revenue -16.3%
leadership · form 990 part vii · fy2022

who runs it

paid leadership · 1
NameTitleHours/wkCompensation
CHELSEA HANSEN EXECUTIVE DIRECTOR 30 $17K
relationships · 8

who they work with

  • ALTCS Partner — Connects families to ALTCS services through a resource fair.
  • DDD Partner — Connects families to DDD services through a resource fair.
  • DES Partner — Connects families to DES services through a resource fair.
  • Give It Back Partner — Received a stroller from Give It Back for a family in need.
  • NDSS Partner — Facilitated attendance at the NDSS Buddy Walk on Washington.
  • Social Security Partner — Connects families to Social Security services through a resource fair.
  • Special Olympics Partner — Connects families to Special Olympics through a resource fair.
  • national Down syndrome organizations Partner — Has relationships with national Down syndrome organizations that specialize in creating resources for the Down syndrome community.