475315579 · AZ ↑ parent cluster ·
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Parkinson & Movement Disorder Alliance

AZ · EIN 475315579 · $2.3M rev · operational · www.pmdalliance.org
profile

The Parkinson & Movement Disorder Alliance is a nonprofit organization dedicated to supporting individuals affected by movement disorders, particularly Parkinson's disease. They provide resources, education, and community-building initiatives to enhance the quality of life for patients and their families across the United States.

activities · 26

what they do

direct service · 11
  • Develop and maintain an inclusive Movement Disorders Ecosystem Organizational Website Redesign and Launch
    Launched a new, simplified Movement Disorders Ecosystem to be more inclusive and user-friendly, and invites community members to test the website for usability improvements.
  • Develop and maintain an inclusive Movement Disorders Ecosystem Organizational Website Redesign and Launch
    Launched a new, simplified Movement Disorders Ecosystem and developed a new website with community input, inviting members to test for usability improvements.
  • Led "Empathy in Action," featuring experiential stations that allow learners to hear from individuals with lived experience and simulate daily challenges faced by those with movement disorders.
  • Facilitate Community Expression and Validation Parkinson’s Community Support & Education Programs
    Provides opportunities for individuals with Parkinson's to express their experiences and receive validation, including participation in art installations like "Soaring for Hope" at the World Parkinson Congress.
  • Host Live Webinars and Maintain a Resource Library Equine Health Webinar & Recording Dissemination
    Offers live, interactive webinars featuring experts on Parkinson's and movement disorders, and maintains a library of recordings from past webinars for ongoing access.
  • Host community events and conferences Parkinson’s Community Support & Education Programs
    Organizes various events, including "Live it Up!™ Drive In Events" and conferences for specific groups like adult children of people with Parkinson's, to provide support and engagement opportunities.
  • Movement Disorders Ecosystem Launch Organizational Website Redesign and Launch
    Launched a new, simplified Movement Disorders Ecosystem that is more inclusive and user-friendly, enhancing access to resources for individuals affected by movement disorders.
  • Organize Community Engagement Events Parkinson’s Community Support & Education Programs
    Hosts various community engagement events, such as "Live it Up!™ Drive In Events" and conferences for family members and care partners of people with Parkinson's.
  • Provide educational webinars and resources Equine Health Webinar & Recording Dissemination
    Offers live, interactive webinars featuring experts on Parkinson's and movement disorders, and maintains a library of recordings from past webinars for ongoing access.
  • Provide experiential learning and empathy training Parkinson’s Community Support & Education Programs
    Leads "Empathy in Action" programs with experiential stations to help learners understand the lived experiences and daily challenges of movement disorders.
  • Webinars on Parkinson's and Movement Disorders Equine Health Webinar & Recording Dissemination
    Offers live, interactive webinars featuring experts in Parkinson's and movement disorders, and maintains a library of recordings from past webinars for broader access.
research · 2
  • Conduct Community-Based Research and Education Community Needs Assessment & Research
    Conducts surveys and reflections on community insights and barriers to access, using findings to develop continuing medical education courses and experiential learning programs like "Empathy in Action" for healthcare providers.
  • Conduct community-based research and surveys Community Needs Assessment & Research
    Surveys the community to understand experiences and barriers, using findings to inform educational courses and reflect on community insights.
capacity building · 13
  • Certified Parkinson’s Disease Care Program Dementia & Movement Disorder Care Certification
    Operates the Certified Parkinson’s Disease Care (CPDC) program, which expanded by 2023 to serve all long-term care communities and professional care providers, with 37 certified providers in 17 states.
  • Certify Parkinson's Disease Care Providers Dementia & Movement Disorder Care Certification
    Operates the Certified Parkinson’s Disease Care (CPDC) program, which certifies professional care providers in long-term care communities, with 37 actively certified providers in 17 states by 2023.
  • Certify Parkinson's disease care providers Dementia & Movement Disorder Care Certification
    Manages the Certified Parkinson’s Disease Care (CPDC) program, which certifies professional care providers and long-term care communities in Parkinson's care across 17 states.
  • Certify professional care providers in Parkinson's disease care Dementia & Movement Disorder Care Certification
    Manages the Certified Parkinson’s Disease Care (CPDC) program, which certifies professional care providers in long-term care communities across 17 states.
  • Develop and Improve Digital Resources Organizational Website Redesign and Launch
    Develops and refines digital resources, including a new brand and website, and a simplified Movement Disorders Ecosystem, with community input and usability testing to enhance inclusivity and user-friendliness.
  • Early-Career Healthcare Provider Cohorts
    Launched the Early-Career Healthcare Provider Cohorts in 2023, matching Movement Disorder Fellows and Neurology Residents with mentors for one-on-one guidance.
  • Mentor early-career healthcare providers
    Operates the Early-Career Healthcare Provider Cohorts program, matching Movement Disorder Fellows and Neurology Residents with specialist mentors for one-on-one guidance.
  • On-Demand Fundamentals Training for Community Leaders Parkinson's-Specific Exercise & Therapist Training Programs
    Completed an on-demand fundamentals training in 2025 for community leaders to create and sustain support groups for Parkinson's and movement disorders.
  • Provide Mentorship for Early-Career Healthcare Providers
    Operates the Early-Career Healthcare Provider Cohorts program, matching Movement Disorder Fellows and Neurology Residents with Movement Disorder Specialist mentors for one-on-one guidance.
  • Provide experiential learning for healthcare providers Parkinson’s Community Support & Education Programs
    Leads "Empathy in Action" sessions with experiential stations to help healthcare professionals understand the lived experiences and daily challenges of individuals with movement disorders.
  • Support Group Leader Training Peer Support Certification Training
    Provided training and hands-on support to support group leaders across the country in 2020, facilitating the transition of in-person groups to virtual formats.
  • Train and Support Parkinson's Support Group Leaders Peer Support Certification Training
    Provides training and hands-on support to support group leaders across the country, assisting them in transitioning to virtual spaces and developing on-demand fundamentals training for creating and sustaining support groups.
  • Train and support Parkinson's support group leaders Peer Support Certification Training
    Provides training and hands-on support to support group leaders, including assistance with transitioning to virtual platforms and offering on-demand fundamentals training for creating and sustaining support groups.
strategies · 20

how they think

Theories of action extracted from this org's own source material. Click any to see the full field of orgs running the same approach.

named programs · 4

what they call their work

Certified Parkinson’s Disease Care Evolution
Certification program for long-term care communities and professional care providers to enhance care for individuals with Parkinson's disease.
Empathy in Action
Experiential learning initiative aimed at educating healthcare providers about the challenges faced by individuals with movement disorders.
Live it Up!™ Drive In Event
Community event series designed to provide safe social engagement during the COVID-19 pandemic.
Proactive Brain Health Alliance
Initiative focused on promoting brain health and preventive measures for neurological diseases.
relationships · 10

who they work with

  • Abbvie Partner — Provides information about Botox, used to relieve symptoms of cervical dystonia, strabismus, and overactive bladder.
  • Akorn Inc. Partner — Provides information about Cogentin, a medication used with others to treat Parkinson's disease symptoms.
  • Association of Movement Disorder Advanced Practice Providers (AMDAPP) Partner — Recognized the need for an organized network for APPs in movement disorders, leading to the origins of AMDAPP.
  • Epic Theater Drive-In Partner — Hosted a "Live it Up!™ Drive In Event" at the Epic Theater Drive-In.
  • Novartis Partner — Provides information about Exelon, a medication used to treat dementia caused by Alzheimer's or Parkinson's disease.
  • PMD Alliance Partner — Collaborated internally to develop new branding and website.
  • Proactive Brain Health Alliance Partner — Launched the Proactive Brain Health Alliance to help people at risk for neurological disease.
  • Supernus Pharmaceuticals Partner — Provides information about Apokyn, a medication for advanced Parkinson's disease, and Myobloc, a treatment for cervical dystonia.
  • UCB Partner — Provides information about Neupro skin patches, used to treat Parkinson's disease symptoms and restless legs syndrome.
  • World Parkinson Congress Partner — Community participated in the 2019 World Parkinson Congress in Kyoto, Japan.