Parkinson & Movement Disorder Alliance

Offers mentorship programs for early-career healthcare providers, certification training for long-term care professionals through the CPDC program (37 certified providers in 17 states by 2023), and on-demand training for community leaders to establish and sustain support groups, including technical support for virtual transitions.

Operates the Certified Parkinson’s Disease Care (CPDC) program, which expanded by 2023 to serve all long-term care communities and professional care providers, with 37 certified providers in 17 states.

Operates the Certified Parkinson’s Disease Care (CPDC) program, which certifies professional care providers in long-term care communities, with 37 actively certified providers in 17 states by 2023.

Manages the Certified Parkinson’s Disease Care (CPDC) program, which certifies professional care providers and long-term care communities in Parkinson's care across 17 states.

Manages the Certified Parkinson’s Disease Care (CPDC) program, which certifies professional care providers in long-term care communities across 17 states.

Develops and refines digital resources, including a new brand and website, and a simplified Movement Disorders Ecosystem, with community input and usability testing to enhance inclusivity and user-friendliness.

Launched a new, simplified Movement Disorders Ecosystem and developed a new website with community input, inviting members to test for usability improvements.

Launched a new, simplified Movement Disorders Ecosystem to be more inclusive and user-friendly, and invites community members to test the website for usability improvements.

Designed and launched a user-friendly Movement Disorders Ecosystem and updated organizational branding and website in-house with community input, ensuring accessibility and relevance for people with Parkinson’s and related conditions.

Launched a new, simplified Movement Disorders Ecosystem that is more inclusive and user-friendly, enhancing access to resources for individuals affected by movement disorders.

Led "Empathy in Action," featuring experiential stations that allow learners to hear from individuals with lived experience and simulate daily challenges faced by those with movement disorders.

Provides opportunities for individuals with Parkinson's to express their experiences and receive validation, including participation in art installations like "Soaring for Hope" at the World Parkinson Congress.

Provides structured opportunities for individuals with Parkinson’s to share their experiences, receive validation, and engage in expressive activities, including specialized events and experiential learning stations that reflect daily challenges of living with movement disorders.

Leads "Empathy in Action" programs with experiential stations to help learners understand the lived experiences and daily challenges of movement disorders.

Leads "Empathy in Action" sessions with experiential stations to help healthcare professionals understand the lived experiences and daily challenges of individuals with movement disorders.

Launched the Early-Career Healthcare Provider Cohorts in 2023, matching Movement Disorder Fellows and Neurology Residents with mentors for one-on-one guidance.

Operates the Early-Career Healthcare Provider Cohorts program, matching Movement Disorder Fellows and Neurology Residents with specialist mentors for one-on-one guidance.

Operates the Early-Career Healthcare Provider Cohorts program, matching Movement Disorder Fellows and Neurology Residents with Movement Disorder Specialist mentors for one-on-one guidance.

Organizes various events, including "Live it Up!™ Drive In Events" and conferences for specific groups like adult children of people with Parkinson's, to provide support and engagement opportunities.

Hosts various community engagement events, such as "Live it Up!™ Drive In Events" and conferences for family members and care partners of people with Parkinson's.

Provides training and hands-on support to support group leaders across the country, assisting them in transitioning to virtual spaces and developing on-demand fundamentals training for creating and sustaining support groups.

Provides training and hands-on support to support group leaders, including assistance with transitioning to virtual platforms and offering on-demand fundamentals training for creating and sustaining support groups.

Surveys the community to understand experiences and barriers, using findings to inform educational courses and reflect on community insights.

Conducts surveys and usability testing with the Parkinson’s community to identify unmet needs and barriers to care, using findings to develop continuing medical education courses and improve resources, such as the 2023 survey that informed a course presented at the 2024 ATMRD conference.

Conducts surveys and reflections on community insights and barriers to access, using findings to develop continuing medical education courses and experiential learning programs like "Empathy in Action" for healthcare providers.

Offers live, interactive webinars featuring experts on Parkinson's and movement disorders, and maintains a library of recordings from past webinars for ongoing access.

Offers live, interactive webinars featuring experts in Parkinson’s and movement disorders, and maintains a library of recorded sessions for ongoing access. These programs provide reliable, expert-led education to individuals affected by movement disorders.

Completed an on-demand fundamentals training in 2025 for community leaders to create and sustain support groups for Parkinson's and movement disorders.

Offers live, interactive webinars featuring experts on Parkinson's and movement disorders, and maintains a library of recordings from past webinars for ongoing access.

Provided training and hands-on support to support group leaders across the country in 2020, facilitating the transition of in-person groups to virtual formats.

Offers live, interactive webinars featuring experts in Parkinson's and movement disorders, and maintains a library of recordings from past webinars for broader access.