irs program accomplishments · form 990 part iii · fy2021
what they reported doing
Program narrative the organization filed with the IRS. Ordered by program spending.
- #1 primary $389KEXERCISE AND WELLNESS SERVICES - A GROWING BODY OF RESEARCH DEMONSTRATES THAT EXERCISE IS ONE OF THE MOST IMPORTANT INTERVENTIONS FOR PEOPLE WITH PARKINSON DISEASE (PD), AND PWR! WAS ONE OF THE FIRST ORGANIZATIONS OF ITS KIND TO OFFER PD-SPECIFIC EXERCISE PROGRAMMING IN THE US. THROUGHOUT THIS YEAR, PWR! OFFERED ABOUT FORTY (40) IN-PERSON, MULTI-LEVEL PD-SPECIFIC GROUP EXERCISE CLASSES WEEKLY. PARTICIPANTS WERE CHALLENGED BY ACTIVITIES COMBINING AEROBIC, BALANCE, AGILITY, STRENGTH, FLEXIBILITY, AND COGNITIVE TRAINING, WHICH ALIGN WITH THE NEWLY-ADOPTED EXERCISE GUIDELINES FOR PEOPLE WITH PD. ADDITIONALLY, PWR! CONTINUED TO GROW ITS VIRTUAL GYM PROGRAM (PWR! VIRTUAL EXPERIENCE), WHICH FEATURES LIVESTREAMED VIRTUAL EXERCISE CLASSES, A LIBRARY OF OVER 500 PRERECORDED PD-SPECIFIC EXERCISE VIDEOS, AND VIRTUAL ONE-ON-ONE WELLNESS CONSULTATIONS. THE PWR! VIRTUAL EXPERIENCE - AT WWW.EXERCISEFORBRAINCHANGE.ORG - IS ACCESSIBLE BY ANYONE WITH AN INTERNET CONNECTION AND A DEVICE, INCREASING THE ABILITY FOR PEOPLE WITH TRANSPORTATION CHALLENGES OR IN AREAS THAT LACK SPECIALIZED HEALTHCARE RESOURCES TO OBTAIN THE VITAL SERVICES THEY NEED TO MAINTAIN FUNCTION AND QUALITY OF LIFE.
- #2 $416KCONTINUING EDUCATION FOR THERAPY AND EXERCISE PROFESSIONALS - EACH YEAR, PWR! CONDUCTS IN PERSON AND VIRTUAL WORKSHOPS TO TRAIN AND CERTIFY PHYSICAL AND OCCUPATIONAL THERAPISTS AND EXERCISE PROFESSIONALS IN THE PWR!MOVES METHODOLOGY. PWR! WORKSHOPS ARE UNIQUE IN THE CONTINUING EDUCATION ARENA BECAUSE OF LIVE DEMONSTRATIONS AND PRACTICA FEATURING VOLUNTEERS WITH PD, WHICH GIVES PARTICIPANTS THE OPPORTUNITY TO OBSERVE, LEARN, AND THEN PRACTICE THE SKILLS BEING TAUGHT. THERAPIST WORKSHOPS TEACH HOW TO DESIGN COMPREHENSIVE, INDIVIDUALIZED THERAPY PROGRAMS FOR PEOPLE WITH PD THAT ADDRESS MULTIPLE SYMPTOMS ACROSS VARYING LEVELS OF FUNCTIONALITY. INSTRUCTOR WORKSHOPS TEACH PARTICIPANTS HOW TO DESIGN AND TEACH COMMUNITY GROUP EXERCISE PROGRAMS UTILIZING LARGE AND FAST FUNCTIONAL MOVEMENTS (BASED ON THE PWR!MOVES) TO DECREASE THE SYMPTOMS OF PD IN PARTICIPANTS. TOGETHER, THESE WORKSHOPS TRAIN PROFESSIONALS TO CREATE A CLINICAL-TO-COMMUNITY MODEL OF CARE FOR PEOPLE WITH PD TO MAINTAIN FUNCTION AND QUALITY OF LIFE USING APPROPRIATELY TIMED BOUTS OF THERAPEUTIC INTERVENTION WITH CONTINUED COMMUNITY-BASED EXERCISE PROGRAMS IN BETWEEN BOUTS. TO DATE, PWR! HAS TRAINED OVER 7,000 THERAPISTS AND INSTRUCTORS WHO ARE PROVIDING PD-SPECIALIZED PROGRAMS AROUND THE GLOBE.
named programs · 8 · from sources
what they call their work
Dance for PD
Weekly dance classes offered at the PWR!Gym for members and their care partners.
Fitness Fridays with PWR! & the Parkinson’s Foundation
A series of online exercise sessions in partnership with the Parkinson's Foundation, focusing on PWR!Moves, aerobic exercise, strength, and balance.
Lunch & Learn
Weekly educational sessions at the PWR!Gym covering topics like speech therapy and adaptive DBS for people with Parkinson's disease.
PWR! Retreat
An annual week-long event providing intensive exercise, education, and empowerment for people living with Parkinson's disease.
PWR! Virtual Experience Educational Modules
Online educational modules designed for PWR! Professionals to grow their expertise in Parkinson's disease.
PWR!Gym
A specialized gym in Tucson, AZ, offering in-person and virtual group exercise classes and therapy for people with Parkinson's disease.
PWR!Moves
A methodology for Parkinson's disease-specific exercise and therapy, used in classes and professional training.
Therapist Workshops
In-person and virtual workshops for physical and occupational therapists to become PWR!Moves certified and recertify.
activities · 2 clusters
what they do
-
Parkinson's-Specific Exercise & Therapist Training Programs 13 activities
- Advocacy for Parkinson's Exercise and Research FundingAdvocates for exercise as a disease-modifying therapy for Parkinson's disease and urges Congress to prioritize funding for Parkinson’s research programs within the Department of Defense and Department of Veterans Affairs.
- Advocacy for Parkinson's Research and ExerciseAdvocates for exercise as a disease-modifying therapy for Parkinson's disease and urges Congress to prioritize funding for Parkinson’s research programs at the Department of Defense and Department of Veterans Affairs.
- Advocate for exercise as a disease-modifying therapy for Parkinson'sAdvocates for exercise as a crucial therapy for Parkinson's disease, emphasizing its ability to improve motor function and quality of life, and urges Congress to prioritize funding for Parkinson's research programs.
- Conduct research on Parkinson's disease therapiesPerforms research projects, including randomized clinical trials, to establish the benefits of exercise approaches like LSVT BIG® for individuals with Parkinson's Disease, and collaborates with other institutions on studies related to Parkinson's and cancer.
- Direct Rehabilitation and Wellness ServicesProvides physical therapy, exercise support, and wellness services to people with Parkinson's disease and their care partners through the PWR!Gym in Tucson, Arizona, and virtually. Services include personalized plans, group exercise classes, "Ask the Expert" sessions, and an online library of information and exercise videos.
- Direct Rehabilitation and Wellness ServicesProvides physical therapy, exercise support, and wellness services for people with Parkinson's disease and their care partners through the PWR!Gym in Tucson, Arizona, and virtually. Services include personalized plans, group exercise classes, "Ask the Expert" sessions, and an online library of information and exercise videos.
- Offer recertification and advanced training for PWR!Moves professionalsProvides recertification workshops for PWR!Moves certified therapists and instructors, including options for Freezing of Gait (FOG) interventions, refresher courses, and advanced knowledge in exercising with clients experiencing gait challenges and increased fall risk. Also offers virtual education modules for ongoing professional development.
- Parkinson's Disease ResearchConducts research projects focused on Parkinson's disease, including a randomized clinical trial on LSVT BIG® therapy and collaborations with universities on studies involving Parkinson's and cancer patients.
- Parkinson's Disease ResearchConducts research projects focused on Parkinson's disease, including a randomized clinical trial on the benefits of LSVT BIG® therapy and collaborations with universities on patient studies.
- Professional Training and Certification in PWR!MovesOffers workshops and virtual modules to train physical, occupational, and exercise therapists and fitness professionals in the PWR!Moves curriculum, a Parkinson's-specific exercise program. This includes initial certification, recertification, and continuing education units, enabling professionals to design and implement personalized therapy and exercise plans for individuals with Parkinson's disease.
- Professional Training and Certification in PWR!MovesOffers workshops and virtual modules to train physical, occupational, and exercise therapists and fitness professionals in the PWR!Moves curriculum, a Parkinson's-specific exercise program. This includes initial certification, recertification, and continuing education units (CEUs) to help professionals develop personalized therapy and exercise plans for individuals with Parkinson's disease.
- Provide direct rehabilitation and wellness services for Parkinson's diseaseOperates the PWR!Gym in Tucson, AZ, and offers virtual services, providing physical therapy, exercise therapy, personalized plans, group exercise classes, and wellness support for individuals with Parkinson's disease and their care partners. This includes an online guided exercise membership and a monthly public Wellness Series.
- Train professionals in PWR!Moves Parkinson's-specific exercise curriculumConducts workshops and provides certification for physical, occupational, and exercise therapists and fitness professionals in the PWR!Moves curriculum. This training focuses on targeting Parkinson's disease symptoms, implementing functional skills, and integrating PD-specific skill training across medical and community settings, offering 15-17.5 contact hours for Continuing Education Units (CEUs).
-
-
Parkinson’s Community Support & Education Programs 2 activities
- Community Education and SupportHosts a free, public, monthly Wellness Series via Zoom covering topics relevant to the Parkinson's community, offers "Lunch & Learn" sessions, and organizes an annual retreat for individuals with Parkinson's disease, providing education, exercise, and community support.
- Community Engagement and SupportHosts a free, public, monthly Wellness Series via Zoom covering topics relevant to the Parkinson's community, organizes "Lunch & Learn" sessions, and provides an annual retreat for individuals with Parkinson's disease, offering exercise, education, and empowerment.
-
financials · form 990 · fy2021
the money
revenue
Total revenue$1.95M
Contributions & grants$502K26%
Program service revenue$1.44M74%
Investment income$1K0%
Other revenue$6K
expenses
Total expenses$1.98M
Program expenses78%
Admin / overhead21%
Fundraising1%
Salaries & benefits$1.08M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$868K
Cash$596K
Investments$0
Liabilities$501K
Net assets$367K
Liquid reserves3.6 mo
3 years on record · 2019–2021 · YoY revenue +34.2%
leadership · form 990 part vii · fy2021
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| KIMBERLY PEUTE | CHIEF EXECUTIVE OFFICER | 40 | $102K |
board members · 8
- AIMEE GUERRERO — SECRETARY/ TREASURER
- DON SNIDER — DIRECTOR
- JOHN RITCHIE — DIRECTOR
- MARTHA BRUMFIELD — CHAIR
- MARY CARRYER — VICE CHAIR
- MAURA ROBINSON — DIRECTOR
- SARAH ASCHER — DIRECTOR
- THOM COPE — DIRECTOR
relationships · 41
who they work with
- Allied Services Heinz Rehab outpatient center Partner — Kristina Dorkoski serves as lead therapist and mentor on the neurologic team at this center.
- American Physical Therapy Association (APTA) Partner — Jennifer Bazan-Wigle earned advanced credentialing from the Geriatric section of this association.
- Banner Alzheimer’s Institute Partner — Emily Borchers currently works as a physical therapist at this institute.
- Burroughs Wellcome Fund Partner — Martha Brumfield, Chair of PWR!, was appointed to the Advisory Committee of the Burroughs Wellcome Fund’s Innovation in Regulatory Science program.
- Central Coast Parkinson Association Partner — Maria Allen serves as a Board Advisor for this association.
- Community Foundation for Southern Arizona Partner — Betty Stauffer, Director, was awarded the Buddy Amos Founders Award by the Community Foundation for Southern Arizona in 2021.
- Contexture Health Information Exchange Partner — Carla Sutter, Director, holds a position with Contexture Health Information Exchange and the Healthcare Directives Registry, focusing on healthcare decision documents and conversations.
- Critical Path Institute (C-Path) Partner — Martha Brumfield, Chair of PWR!, is a Senior Advisor to C-Path, an Arizona-based non-profit that catalyzes the development of new tools to advance medical product innovation and regulatory science.
- Davis Phinney Foundation Partner — Angee Ludwa has been an Ambassador for this foundation since 2019.
- Facebook Partner — Maintains an official presence on Facebook for outreach and engagement.
- Instagram Partner — Maintains an official presence on Instagram for outreach and engagement.
- Institute for Advanced Clinical Trials for Children Partner — Martha Brumfield, Chair of PWR!, is a Founding Director and Secretary/Treasurer of the Board of the Institute for Advanced Clinical Trials for Children.
- Literacy Connects in Tucson, Arizona Partner — Betty Stauffer, Director, built and led Literacy Connects, a literacy program for people of all ages that resulted from a merger of five small literacy organizations.
- Medtronic Partner — Discusses Medtronic's Adaptive DBS therapy in Lunch & Learn sessions.
- Michael J. Fox Foundation Partner — Ethan Henderson, Director, is the Senior Director of Philanthropy for the Michael J. Fox Foundation.
- Michigan Parkinson Foundation Partner — Angee Ludwa assumed the role of Director of Exercise and serves on their Professional Advisory Board.
- Misericordia University Partner — Kristina Dorkoski earned her BS and MS from this university and serves as an adjunct faculty member.
- National Academies of Science, Engineering and Medicine Partner — Martha Brumfield, Chair of PWR!, served on the Committee on Mutual Recognition Agreements and Reliance in the Regulation of Medicines for the National Academies of Science, Engineering and Medicine.
- New Life Community in Cleveland, Ohio Partner — Betty Stauffer, Director, built and led New Life Community, the first transitional housing program for the homeless in Northeast Ohio that worked with whole families.
- Ohio State University Partner — Emily Borchers graduated with her DPT from this university.
- OhioHealth Partner — Terry Slayman, Director, joined OhioHealth as a physician administrator and rose to the level of Senior Medical Director for Ambulatory Care until his retirement.
- Oregon Health Sciences University Partner — Nancy Nelson taught evidence-based programs and conducted research projects with this university.
- Oregon Research Institute Partner — Nancy Nelson taught evidence-based programs and conducted research projects with this institute.
- Parkinson's Foundation Partner — Aligns workshops with the Parkinson's Foundation exercise recommendations and offers Parkinson's Foundation accredited workshops.
- Parkinson's Foundation Partner — Its PWR!Moves Instructor Certification Workshop is recognized as a Parkinson's Foundation Accredited Exercise Education Program and aligns with their exercise recommendations.
- Parkinson’s Disease Foundation Partner — Susan Foster, Director, was selected by the Parkinson’s Disease Foundation to attend the inaugural session for Research Advocates and to serve on their national steering committee for the Women and PD Initiative.
- Parkinson’s Foundation Partner — Partnered for Fitness Fridays in April.
- Parkinson’s Foundation, California Chapter Partner — Maria Allen serves as an Advisory Board Member for this chapter and an Aware in Care Ambassador for the Parkinson's Foundation.
- Parkinson’s Institute in Sunnyvale, CA Partner — Susan Foster, Director, served on the Board of Directors for the Parkinson’s Institute in Sunnyvale, CA.
- Pennsylvania Physical Therapy Association Partner — Kristina Dorkoski has taught continuing education courses for this association.
+ 11 more