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MOVEMENT DISORDERS FOUNDATON OF ARIZONA

CHANDLER, AZ · EIN 812151213 · Form 990EZ · FY2022 · NTEE P99 · Human Services · Micro (<$100K) · mdfa.us
revenue
$81K
expenses
$61K
net assets
$120K
employees
—
filing since
2020
mission · from form 990

To enrich the lives of those with movement disorders.

profile · synthesized from sources

Nonprofit organization dedicated to improving the lives of people with movement disorders, particularly Parkinson's disease, through education, research, and community support. Offers free educational webinars, wellness programs like online boxing classes, and information on emerging treatments. Serves individuals and families in Arizona, across the United States, and globally through virtual platforms.

named programs · 4 · from sources

what they call their work

Hybrid Educational Events
Combines in-person and online participation to increase accessibility for Arizona residents and a global audience
Online Weekly Boxing Classes
Fitness program designed for people with movement disorders to support wellness and symptom management through exercise
Research Study Support
Facilitates access to clinical trials for conditions including Parkinson’s disease, multiple system atrophy, and essential tremor
Weekly Educational Webinars
Online seminars featuring medical experts discussing topics such as DBS, tremor management, dementia in PD, and alternative treatments like the vibrating glove
activities · 3

what they do

direct service · 1
  • Provide educational seminars and workshops on movement disorders Parkinson’s Community Support & Education Programs
    The organization hosts educational programming, seminars, and workshops for individuals with movement disorders and their families, covering topics such as Parkinson's disease management, cognitive issues, current drug therapies, alternative treatments like Deep Brain Stimulation and the Vibrating Glove, and techniques to improve micrographia. They have served over 3,000 participants through these programs.
research · 2
  • Recruit participants for clinical research trials Parkinson's-Specific Exercise & Therapist Training Programs
    The organization recruits participants for various clinical research trials related to movement disorders, including studies on treatments for neurogenic orthostatic hypotension in Multiple System Atrophy, dyskinesia in Parkinson's Disease, residual tremor in Parkinson's Disease, upper limb spasticity, and essential tremor. They also conduct an in-progress randomized controlled trial on non-invasive brainstem modulation for non-motor symptoms in Parkinson's Disease.
  • Recruit participants for clinical research trials Parkinson's-Specific Exercise & Therapist Training Programs
    The organization recruits participants for various clinical research trials related to movement disorders, including studies on Ampreloxetine for neurogenic orthostatic hypotension in Multiple System Atrophy, JM-010 for Parkinson's Disease dyskinesia, Suvecaltamide for Parkinson's Disease tremor, AbobotulinumtoxinA for upper limb spasticity, non-invasive brainstem modulation for non-motor symptoms in Parkinson's Disease, and JZP385 for essential tremor.
strategies · 14

how they think

Theories of action extracted from this org's own source material. Click any approach shared with other orgs to see the full field.

  • Collaborative Symptom Improvement unique to this org
    The organization works closely with individuals living with Parkinson's Disease to understand specific symptoms, such as micrographia, and collaboratively develop techniques to improve these symptoms, indicating a patient-centered approach to symptom management.
  • Collaborative Symptom Management collaborative_symptom_management unique to this org
    The organization works closely with individuals living with Parkinson's Disease to understand specific symptoms, such as micrographia, and collaboratively develop techniques to improve these symptoms.
  • Comprehensive patient and caregiver education on therapies and management patient_education unique to this org
    Provides structured education to patients and caregivers on current therapies, treatment options, cognitive health, and lifestyle interventions to empower informed decision-making and improve self-management of neurodegenerative conditions.
  • Disability Management Programs disability_management_programs unique to this org
    The organization offers specific programs and opportunities focused on disability management to improve the overall quality of life for individuals living with movement disorders.
  • Disability Management Programs disability_management_programs unique to this org
    The organization offers programs and opportunities specifically focused on disability management to improve the quality of life for individuals living with movement disorders.
  • Disability management programs to enhance quality of life disability_management_programs unique to this org
    Implements targeted programs focused on managing disability associated with movement disorders, aiming to improve functional capacity and overall quality of life.
  • Evidence-based, Question-driven Education evidence-based education unique to this org
    The organization uses evidence-based, question-driven education to address treatment controversies and inform patients and caregivers about cognitive health, treatment options, and lifestyle interventions in neurodegenerative disorders, thereby improving understanding and management of movement disorders.
  • Evidence-based, Question-driven Education evidence-based_education unique to this org
    The organization uses evidence-based, question-driven educational approaches to address treatment controversies and provide information on current therapies, management strategies, cognitive health, and lifestyle interventions for individuals with movement disorders, particularly Parkinson's disease.
  • Evidence-based, question-driven education model evidence-based education unique to this org
    Uses evidence-based, question-driven education to address treatment controversies in Parkinson's disease, ensuring that patient education is grounded in current research and responsive to real clinical uncertainties.
  • Holistic Support through Research, Education, and Community Engagement research_education_community unique to this org
    The organization supports individuals with movement disorders by integrating research, education, and community engagement, aiming to provide comprehensive assistance and foster a supportive environment.
  • Integrated research, education, and community engagement approach research_education_community unique to this org
    Supports individuals with movement disorders through a tripartite strategy combining research, education, and community engagement to create a holistic support ecosystem.
  • Remote and Hybrid Education Delivery remote_education_delivery unique to this org
    The organization utilizes remote and hybrid meeting formats to expand access to its educational programming, ensuring that more individuals with movement disorders can benefit from their resources regardless of geographical limitations.
  • Remote and Hybrid Educational Delivery remote_education_delivery unique to this org
    The organization utilizes remote and hybrid meeting formats to expand access to its educational programming, ensuring that more people with movement disorders can benefit from their resources regardless of geographical constraints.
  • Remote and hybrid educational delivery for accessibility remote_education_delivery unique to this org
    Expands access to educational programming for individuals with movement disorders by utilizing remote and hybrid meeting formats, reducing barriers related to mobility and geography.
financials · form 990EZ · fy2022

the money

revenue
Total revenue$81K
Contributions & grants$7K9%
Program service revenue$74K91%
Investment income——
Other revenue—
expenses
Total expenses$61K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$120K
Cash—
Investments—
Liabilities—
Net assets$120K
3 years on record · 2020–2022 · YoY revenue +21.6%
leadership · form 990 part vii · fy2022

who runs it

board members · 2
  • JESUS VILLANUEVA MD — DIRECTOR
  • VIRGILIO GARALD H EVIDENTE MD — DIRECTOR MEDICAL ADVISOR FROM 12/02/2022
relationships · 12

who they work with

  • American Academy of Neurology Brain and Life Partner — Featured in their publication.
  • Brian Grant Foundation (BGF) Partner — Listed as a resource providing tools to improve the well-being of people with Parkinson's.
  • Creative Neurology Partner — Provides "Let's Combat Micrographia" Workshops.
  • CurePSP Partner — Listed as a resource for information and support for prime of life neurodegeneration.
  • Dr. Marwan Sabbagh Partner — Featured speaker providing expert education on cognitive issues in Parkinson's disease and related disorders.
  • Huntington's Disease Society of America (HDSA) Partner — Listed as a resource for improving the lives of everyone affected by Huntington's disease.
  • International Parkinson and Movement Disorder Society (MDS) Partner — Listed as a resource for clinicians, scientists, and healthcare professionals interested in Parkinson's disease and related disorders.
  • Movement Disorders Center of Arizona Partner — Medical advisor from the center serves on the board and supports the foundation's educational and clinical initiatives.
  • Muhammad Ali Parkinson Center Partner — Listed as a resource for clinical care, research, rehabilitation, education, and support for Parkinson's disease and other movement disorders.
  • NIH's National library of Medicine Funder — Supports programming.
  • PMD Alliance Partner — Listed as a resource providing opportunities for people to learn, live more fully, and spark meaningful connections around movement disorders.
  • Tourette Association of America Partner — Listed as a resource for awareness, research, and support for Tourette Syndrome and Tic Disorders.