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NO MORE KIDS WITH CANCER
SEDONA, AZ · EIN 473573433 · Form 990 · FY2020 · Micro (<$100K) · www.nomorekidswithcancer.org
revenue
$84K
expenses
$7K
net assets
$1.1M
employees
0
volunteers
5
program ratio
0%
mission · from form 990

NO MORE KIDS WITH CANCER, FORMERLY THE NAYA FOUNDATION, FOCUSES EXCLUSIVELY ON ACCELERATING THE DISCOVERY OF SAFER, LESS TOXIC AND MORE EFFECTIVE TREATMENTS FOR CHILDREN WITH CANCER.

profile · synthesized from sources

No More Kids with Cancer is a nonprofit founded in memory of Naya Summy, an 11-year-old who died from medulloblastoma. The organization funds groundbreaking childhood cancer research, focusing on translational science, precision medicine, and clinical trials to develop safer, more effective treatments. It supports research at institutions like the Children's Hospital of Philadelphia and partners with initiatives such as Stand Up To Cancer.

named programs · 4 · from sources

what they call their work

Mustard Challenge
Awareness and fundraising campaign highlighting the use of outdated 1950s-era drugs in pediatric cancer treatment; funds are matched by Stand Up To Cancer
Parkway Run & Walk
Annual 5K run and family walk in Philadelphia supporting childhood cancer research at CHOP; Team Naya has been top fundraiser for multiple years
Purple Ball
Annual fundraising gala in Philadelphia that honors childhood cancer trailblazers and raises money for research
Research Grants Program
Funds high-potential early-stage clinical trials, biomarker development, and grants for early-career physician-scientists in pediatric oncology
activities · 3 groups

what they do

  • Themed Community Fundraising Events 8 activities
    • Lead public awareness campaigns
      Organizes national awareness and fundraising campaigns such as the #MustardChallenge, which engaged over 8 million people, generated national media coverage from more than 40 outlets, and raised approximately $100,000—matched up to $6 million by Stand Up To Cancer—for a Pediatric Brain Cancer Dream Team. Also distributes badges and social media assets to support advocacy and visibility.
    • Organize fundraising and awareness events
      Hosts annual events such as the Parkway Run & Walk and the Purple Ball to raise funds and awareness for childhood cancer research. These events include recognition of survivors and leaders in the field, auctions, and community participation, with the 2018 Purple Ball raising over $350,000 for research grants.
    • Organizing Fundraising and Awareness Events
      The organization hosts various events such as the Parkway Run & Walk and the Purple Ball to raise funds and awareness for childhood cancer research. These events also celebrate survivors and honor trailblazers in the field.
    • Organizing Fundraising and Awareness Events
      The organization hosts various events such as the Parkway Run & Walk and the Purple Ball to raise funds and awareness for childhood cancer research. These events also celebrate survivors and honor trailblazers in the field.
    • Organizing Fundraising and Awareness Events
      The organization hosts various events, such as the Parkway Run & Walk and the Purple Ball, to raise funds and awareness for childhood cancer research. These events also celebrate childhood cancer survivors and honor trailblazers in the field.
    • Running Awareness Campaigns
      The organization organizes social media campaigns like the #MustardChallenge to raise awareness about childhood cancer, highlight issues such as antiquated drugs in pediatric cancer treatment, and encourage public participation through activities like distributing badges and providing social media images.
    • Running Awareness Campaigns
      The organization conducts awareness campaigns like the #MustardChallenge, distributing badges and social media images to engage the public, raise awareness about childhood cancer, and highlight issues such as antiquated drugs in pediatric cancer treatment.
    • Running Awareness Campaigns
      The organization conducts awareness campaigns, such as the #MustardChallenge, to highlight issues like antiquated drugs in pediatric cancer treatment, engage the public, and generate media coverage. They also provide social media tools and badges to help supporters raise awareness.
  • Pediatric & Specialty Disease Research Funding 4 activities
    • Fund childhood cancer research
      Provides grants to support translational and clinical research in pediatric cancer, including genetic sequencing, precision medicine, biomarker development, imaging tools, and early-stage clinical trials. Funding includes kick-starter grants, support for early-career physician-scientists, large-scale grants, and Dream Teams aimed at accelerating cures for childhood cancers.
    • Funding Childhood Cancer Research
      The organization funds groundbreaking childhood cancer research, including translational research in genetic sequencing, precision medicine, and clinical trials, to develop safer, less toxic, and more effective treatments for children with cancer. This includes providing kick-starter grants, supporting early-stage clinical trials, and funding large-scale grants and Dream Teams.
    • Funding Childhood Cancer Research
      The organization funds groundbreaking childhood cancer research, including translational research in genetic sequencing, precision medicine, and clinical trials, to develop safer, less toxic, and more effective treatments for children with cancer. This includes providing kick-starter grants, supporting early-stage clinical trials, and funding large-scale grants and Dream Teams.
    • Support clinical trial capacity at pediatric hospitals
      Funds personnel and infrastructure to expand clinical research capacity, such as financing a clinical research associate (CRA) at The Children’s Hospital of Philadelphia to support the Neuro-oncology program and increase the hospital’s ability to conduct pediatric cancer trials.
  • Uncategorized 3 activities
    • Share patient and family stories
      Collects and disseminates personal narratives from children with cancer, survivors, and their families through video content to humanize the cause and support advocacy and awareness efforts.
    • Supporting Clinical Research Capacity
      The organization provides funding to expand clinical research programs, such as funding a clinical research associate to increase the capacity for clinical trials in neuro-oncology at The Children’s Hospital of Philadelphia.
    • Supporting Clinical Research Capacity
      The organization provides funding to expand clinical research programs, such as funding a clinical research associate to increase a hospital's capacity for clinical trials in neuro-oncology.
financials · form 990 · fy2020
revenue
Total revenue$84K
Contributions & grants$80K96%
Program service revenue$00%
Investment income$4K4%
Other revenue$0
expenses
Total expenses$7K
Program expenses0%
Admin / overhead93%
Fundraising7%
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$1.06M
Cash$156K
Investments$899K
Liabilities$5K
Net assets$1.06M
Liquid reserves1912.6 mo
1 years on record · 2020–2020
leadership · form 990 part vii · fy2020

who runs it

board members · 8
  • AMY SUMMY — PRESIDENT
  • HANK SUMMY — SECRETARY
  • KATHERINE PAPANDREA — DIRECTOR
  • MICHAEL FISHER — DIRECTOR
  • NANCY MINNICK — DIRECTOR
  • PAIGE GOODSON REBERRY — DIRECTOR
  • TUSHAR SHAH — TREASURER
  • WENDY HILL — DIRECTOR
relationships · 20

who they work with

  • AFP Greater Philadelphia chapter Government — Recognized Naya as Outstanding Youth in Philanthropy.
  • Ballard Spahr LLP Partner — Advisor to No More Kids with Cancer
  • CBTTC Partner — Member institutions of this organization use pediatric brain cancer and medulloblastoma specimens from the biorepository tissue bank supported by No More Kids with Cancer.
  • CHOP Partner — Sends additional information to participants before race day.
  • Capgemini Funder — Presenting sponsor of the 2018 Purple Ball.
  • Children's Hospital of Philadelphia Funder — Violet sponsor of the 2018 Purple Ball.
  • Children’s Hospital of Philadelphia Partner — Recipient of a $220,000 grant for a Phase I clinical trial on CAR T cells for AML and recipient of $75,000 for research on pediatric malignant brain tumors, and recipient of approximately $100,000 for a clinical research associate to expand the Neuro-oncology program.
  • Christiene Cusworth photography Partner — Provided photographic content for the organization's materials.
  • DLFF Funder — Violet sponsor of the 2018 Purple Ball.
  • IBC Funder — Violet sponsor of the 2018 Purple Ball.
  • Maserati Funder — Violet sponsor of the 2018 Purple Ball.
  • Pure Growth Partner — Volunteer group that created creative assets for the Mustard Challenge campaign.
  • Seattle Children's Hospital Partner — An investigator from this hospital is leading the full genomic sequencing of supratentorial PNET specimens in the CBTTC tissue bank.
  • Stand Up To Cancer Funder — Matches funds raised by the #MustardChallenge campaign, up to $6 million, to support a Pediatric Brain Cancer Dream Team.
  • The Cancer Center at The Children's Hospital of Philadelphia Partner — The Parkway Run & Walk supports childhood cancer research at this center.
  • The Children's Hospital of Philadelphia Partner — Nominated Naya for the Outstanding Youth in Philanthropy award for her efforts in childhood cancer advocacy.
  • The Naya Foundation Partner — Co-owner of the Mustard Challenge creative assets and bottle mascot.
  • Urban Outfitters Partner — Hosted the 2018 Purple Ball at their headquarters.
  • leading scientists Partner — Collaborates with leading scientists in the development of new treatments for childhood cancer.
  • leading scientists Partner — Collaborates with leading scientists to advance research for childhood cancer treatments.