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SCAD RESEARCH INC
SCOTTSDALE, AZ · EIN 452678388 · Form 990 · FY2022 · NTEE H124 · Medical Research · Small ($100K-$1M) · scadresearch.org
revenue
$132K
expenses
$120K
net assets
$45K
employees
0
volunteers
30
program ratio
96%
mission · from form 990

SUPPORTS THE RESEARCH AND AWARENESS OF SPONTANEOUS CORONARY ARTERY DISSECTION

profile · synthesized from sources

SCAD Research, Inc. is a nonprofit organization dedicated to advancing research on Spontaneous Coronary Artery Dissection (SCAD), a rare and often misdiagnosed form of heart attack that primarily affects young, healthy women. The organization raises funds to support the Mayo Clinic SCAD Research Program, which investigates the causes, treatments, and prevention of SCAD. It also provides educational resources and support for patients and families affected by the condition.

named programs · 3 · from sources

what they call their work

Mayo Clinic SCAD Research Program Support
Provides funding and support for the Mayo Clinic SCAD Research Program, the largest known SCAD registry in the world, focused on understanding causes, risk factors, diagnosis, treatment, and prevention of SCAD
Patient Education and Awareness
Offers evidence-based educational materials about SCAD, including symptoms, diagnosis, treatment, recurrence, and coping strategies, based on research as of 2017 and updated findings
SCAD Survivor Stories
Shares personal narratives from individuals affected by SCAD to foster connection, reduce isolation, and raise awareness about the condition
activities · 4 groups

what they do

  • SCAD Clinical Research Funding & Registry Development 10 activities
    • Founding and Supporting the Mayo Clinic SCAD Research Program
      Established the Mayo Clinic SCAD Research Program in 2010 through a survivor-driven research agenda, creating a foundational partnership that continues to guide and advance SCAD research.
    • Funding SCAD Clinical Research
      Raises and donates funds to support clinical research on Spontaneous Coronary Artery Dissection (SCAD), primarily directed to the Mayo Clinic SCAD Research Program. As of the latest evidence, over $1.6 million has been donated to research initiatives.
    • Funding SCAD Research at Mayo Clinic
      Raises and donates funds to support clinical trials and research on Spontaneous Coronary Artery Dissection (SCAD), primarily directed to the Mayo Clinic SCAD Research Program. As of the latest evidence, has donated over $1.6 million to research, with prior totals reported at $965,000 as of December 2019.
    • Fundraising for SCAD Research
      Raises funds through events like 5K SCADaddle© for Research run/walks and direct donations to support clinical trials and research programs on Spontaneous Coronary Artery Dissection (SCAD), primarily at the Mayo Clinic SCAD Research Program.
    • Fundraising for SCAD Research
      Raises funds through events like 5K SCADaddle© for Research run/walks and direct donations to support clinical trials and research programs on Spontaneous Coronary Artery Dissection (SCAD), primarily at Mayo Clinic. As of December 2019, over $965,000 has been donated, with total donations exceeding $1.6 million.
    • Operating the Global SCAD Registry
      Developed and maintains the largest known SCAD registry in the world, which has contributed to key epidemiological insights, including that SCAD is far more common than previously believed. The registry supports ongoing research and facilitates global patient participation in studies.
    • Operating the Global SCAD Registry
      Develops and maintains the largest known global registry of SCAD cases, enabling research that has redefined the understanding of SCAD prevalence. The registry supports ongoing clinical studies and facilitates international patient participation in research.
    • SCAD Research Program Development and Support
      Established and continues to support the Mayo Clinic SCAD Research Program, contributing to the development of the largest known SCAD registry and facilitating global participation in SCAD research studies.
    • SCAD Research Program Support and Development
      Established and supports the Mayo Clinic SCAD Research Program, contributing to the development of the world's largest SCAD registry and facilitating global patient participation in SCAD research studies.
    • Supporting SCAD Research Program Development
      Played a foundational role in establishing the Mayo Clinic SCAD Research Program in 2010, based on a research agenda initiated by SCAD survivors. This includes ongoing collaboration and funding to advance clinical research.
  • Personal Story Collection & Sharing 4 activities
    • Collecting and Sharing SCAD Survivor Stories
      Collects, produces, and distributes personal written and video stories from individuals affected by SCAD through its website and YouTube channel to support recovery and community building. Includes stories gathered during 5K SCADaddle weekends and a virtual event in 2020, featuring interviews with 12 survivors.
    • Collecting and Sharing SCAD Survivor Stories
      Collects, produces, and publishes written and video personal stories from individuals affected by SCAD, including interviews from SCADaddle events and virtual gatherings, to support recovery, raise awareness, and inform research. Content is shared via the organization’s website and YouTube channel.
    • SCAD Patient Story Collection and Sharing
      Collects and shares personal written and video stories from individuals affected by SCAD through its website and YouTube channel to provide support and raise awareness.
    • SCAD Patient Story Collection and Sharing
      Collects and shares personal written and video stories from individuals affected by SCAD through its website and YouTube channel, providing support and educational resources for others.
  • Disease Awareness & Education Campaigns 4 activities
    • Distributing SCAD Educational Materials
      Creates and distributes educational brochures about SCAD tailored to different audiences, including patients and healthcare providers, to improve understanding and awareness of the condition.
    • Distributing SCAD Educational Materials
      Creates and distributes educational brochures about SCAD tailored to different audiences to improve awareness and understanding of the condition.
    • SCAD Educational Material Distribution
      Creates and distributes educational brochures about SCAD to various audiences to increase understanding of the condition.
    • SCAD Educational Material Distribution
      Creates and distributes educational brochures about SCAD to various audiences.
  • Themed Community Fundraising Events 2 activities
    • Organizing 5K SCADaddle© for Research Events
      Organizes annual 5K SCADaddle© run/walk events in multiple locations across the United States to raise funds and awareness for SCAD research. These events have also served as venues for collecting survivor stories and conducting interviews.
    • Organizing SCADaddle© for Research Events
      Organizes annual 5K SCADaddle© run/walk events in multiple U.S. locations to raise funds and awareness for SCAD research. These events also serve as a platform for collecting survivor stories and fostering community engagement.
financials · form 990 · fy2022
revenue
Total revenue$132K
Contributions & grants$127K96%
Program service revenue$00%
Investment income$00%
Other revenue$5K
expenses
Total expenses$120K
Program expenses96%
Admin / overhead4%
Fundraising0%
Salaries & benefits$0
Grants paid out$110K
Largest expense lineProfessional Fees
balance sheet
Total assets$45K
Cash$38K
Investments$0
Liabilities$0
Net assets$45K
Liquid reserves3.8 mo
2 years on record · 2020–2022 · YoY revenue -1.4%
leadership · form 990 part vii · fy2022

who runs it

board members · 5
  • DAVID MCGARRY — DIRECTOR
  • JANET SAILLARD — SECRETARY
  • PETER ZICH — TREASURER
  • ROBERT ALICO — PRESIDENT
  • SUSAN ALICO — VICE PRESIDENT
relationships · 33

who they work with

  • Anonymous Family Foundation Funder — Nationwide sponsor of SCADaddle events, contributing $10,000+ in 2024.
  • Bingham Farms Oral & Maxillofacial Surgery Funder — Patron sponsor of SCADaddle events, contributing $1,000+ in 2024.
  • Binson’s Medical Equipment Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • C4 Technical Services Funder — Patron sponsor of SCADaddle events, contributing $1,000+ in 2024.
  • Corporate Sponsors Partner — Businesses that provide significant financial and in-kind support for SCAD research and education.
  • DesignPoint Inc. Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • Dr. Sharonne Hayes Partner — Leads the Mayo Clinic SCAD Research Program in collaboration with SCAD Research, Inc.
  • Dugan & Lopatka, CPAs Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • Event Sponsors Partner — Businesses, organizations, or individuals that sponsor specific fundraising events such as the 5K SCADaddle© for Research run/walks.
  • HSA Mechanical Funder — Supporting sponsor of SCADaddle events, contributing $2,500+ in 2024.
  • Henry Ford Heart and Vascular Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • JM Flooring Funder — Patron sponsor of SCADaddle events, contributing $1,000+ in 2024.
  • LA Smith Construction LLC Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • Lehigh Valley Heart and Vascular Institute Funder — Patron sponsor of SCADaddle events, contributing $1,000+ in 2024.
  • Mayo Clinic Partner — Collaborates on the SCAD Research Program led by Dr. Sharonne Hayes
  • Mayo Clinic Partner — Partner organization conducting SCAD clinical trials funded or supported by SCAD Research, Inc.
  • Mayo Clinic Partner — Primary recipient of research funding for the SCAD Research Program.
  • Mayo Clinic Partner — Provides links to Mayo Clinic's SCAD Research Program information, including research projects, clinical trials, and resources for medical professionals.
  • Mayo Clinic SCAD Research Program Partner — Recipient of most of SCAD Research, Inc.'s funding for groundbreaking research, directed by Dr. Sharonne Hayes.
  • Mayo Clinic SCAD Research Program Partner — Reviewed and provided input on SCAD awareness brochures.
  • McComesey Law Funder — Patron sponsor of SCADaddle events, contributing $1,000+ in 2024.
  • Millennium Cardiology Funder — Supporting sponsor of SCADaddle events, contributing $2,500+ in 2024.
  • My Virtual Academy Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • NOVA Marketing Services Partner — Provided expertise in redesigning SCAD awareness brochures.
  • Nick D’Orazio Partner — Captured many stories at SCADaddle weekends and created videos.
  • Nick D’Orazio Partner — Skilled videographer who captured Voices of SCAD stories; contributed creative expertise to document survivor experiences.
  • Pentech Industries Funder — Patron sponsor of SCADaddle events, contributing $1,000+ in 2024.
  • RJ Construction Funder — Supporting sponsor of SCADaddle events, contributing $2,500+ in 2024.
  • Schram Family Charity Trust Funder — Partner sponsor of SCADaddle events, contributing $500+ in 2024.
  • Sustaining Sponsors Partner — Businesses, organizations, or individuals providing ongoing financial or in-kind donations and services such as consulting, media exposure, or legal support.
+ 3 more