activities · 13
what they do
direct service · 8
- Community Fundraising Events Charity Sports & Recreation TournamentsOrganizes various community events to raise funds and awareness, including a pickleball tournament ("Hearts N Pickle"), a hiking event ("Rae's Hike for Hearts"), a backyard concert ("The Beat Goes On"), and another event called "Rae's Hits for Hearts".
- Financial Assistance for Families Affected by Congenital Heart Defects Medical Cost & Equipment AssistanceProvides financial assistance to Arizona families affected by congenital heart defects to help cover essential needs such as housing, utilities, food, and medical-related expenses. The organization has provided over $540,000 in financial aid.
- Financial assistance for families affected by congenital heart defects Medical Cost & Equipment AssistanceProvides direct financial aid to Arizona families affected by congenital heart defects to cover essential needs such as housing, utilities, food, and medical-related expenses; has distributed over $540,000 in assistance to date.
- Fundraising events for CHD research and support Charity Sports & Recreation TournamentsOrganizes community events such as "Hearts N Pickle" (pickleball tournament), "Rae's Hike for Hearts" (hiking event), "The Beat Goes On" (backyard concert), and "Rae's Hits for Hearts" (music event) to raise funds and awareness for congenital heart defects.
- Fundraising events for congenital heart defect causes Charity Sports & Recreation TournamentsOrganizes community events including pickleball tournaments, hikes, backyard concerts, and music events to raise funds and awareness for congenital heart defects.
- Fundraising for Congenital Heart Defect Research and Programs Specialty License Plate FundraisingRaises funds for congenital heart defect research, education, and community programs, including contributions to Phoenix Children's Center for Heart Care. The organization has reached a $100,000 milestone in contributions to Phoenix Children's Foundation for CHD research.
- Support services for children and families managing congenital heart diseaseOffers ongoing support to children with congenital heart defects and their families, addressing the physical and emotional challenges associated with lifelong, specialized care and helping them navigate their CHD journeys.
- Support services for children with congenital heart defectsSupports children with congenital heart defects who face physical and emotional challenges due to their need for lifelong, specialized care, and assists families navigating congenital heart disease (CHD) journeys.
advocacy · 3
- Advocacy and funding through specialty license plate program Specialty License Plate FundraisingLaunched the Arizona CHD specialty license plate in May 2022, directing $17 from each $25 fee to Phoenix Children’s Center for Heart Care to support research, education, and community programs for children with congenital heart defects.
- Advocacy through specialty license plate program Specialty License Plate FundraisingLaunched the Arizona CHD specialty license plate in May 2022, directing $17 from each $25 plate fee to Phoenix Children’s Center for Heart Care to fund research, education, and community programs for children with congenital heart defects.
- Congenital Heart Defect Specialty License Plate Program Specialty License Plate FundraisingLaunched the Arizona CHD specialty license plate in May 2022, which directs $17 from each $25 plate fee to Phoenix Children’s Center for Heart Care to support research, education, and community programs for children with congenital heart defects.
capacity building · 2
- Contributions to congenital heart disease research Pediatric Cancer and Macular Degeneration ResearchChannels funds into congenital heart disease research, including a $100,000 contribution to Phoenix Children's Foundation to support research initiatives.
- Funding congenital heart disease research Specialty License Plate FundraisingContributes raised funds to Phoenix Children's Foundation to support congenital heart disease (CHD) research, reaching a milestone of $100,000 in contributions.
strategies · 14
how they think
Theories of action extracted from this org's own source material. Click any to see the full field of orgs running the same approach.
- Advocacy and Awareness for Congenital Heart Defects (CHD) awareness_and_advocacyThe organization advocates for increased research and public awareness of congenital heart defects, highlighting the disparity between prevalence and funding, and educates the community about CHD to foster understanding and support for affected families.
- Advocacy and awareness for congenital heart defects awareness_and_advocacyThe organization advances research and public understanding of congenital heart defects (CHD) by highlighting the gap between CHD’s high prevalence — affecting 1 in 110 births — and the low levels of research funding, using advocacy to drive change and support.
- Advocacy and awareness to advance research and support for congenital heart defects awareness_and_advocacyThe organization advocates for increased research funding and public awareness of congenital heart defects (CHD), emphasizing the disparity between CHD's high prevalence and its low research investment, thereby driving systemic change and community engagement.
- Community Engagement and Sustainable Funding for CHD Research and Support community-fundraising-eventThe organization engages the community through fundraising events and utilizes sustainable funding mechanisms, such as specialty license plates, to support research, education, and programs for children with congenital heart defects, while also building community and ensuring families have access to essential information.
- Community education and information access education and supportEmpowers families and communities by providing accessible education about congenital heart defects and ensuring caregivers have the information needed to support affected children.
- Customized philanthropic engagement customized_philanthropyOffers tailored involvement opportunities that align with the specific goals of individual donors or giving groups, increasing engagement and impact.
- Direct Financial and Emotional Support for Families with CHD lifelong_care_modelThe organization provides direct financial assistance to families of children with critical congenital heart defects, recognizing the lifelong nature of the condition and the need for specialized care, thereby reducing stress and allowing families to focus on their child's well-being.
- Direct financial and community support for affected families financial assistanceThe foundation reduces family burden through direct financial assistance programs like Rae It Forward™ and community fundraising events, enabling caregivers to focus on their child’s medical needs while building supportive networks.
- Direct financial assistance to alleviate family burden financial assistanceProvides targeted financial aid to families of children with critical congenital heart defects through programs like Rae It Forward™, reducing non-medical stressors so families can focus on care and recovery.
- Lifelong, comprehensive care and support model for CHD patients and families lifelong_care_modelRecognizing congenital heart defects as lifelong conditions, the foundation provides sustained emotional, informational, and community-based support to patients and families across all demographics, ensuring continuity of care beyond acute medical intervention.
- Lifelong, inclusive care model for children with CHD lifelong_care_modelRecognizing congenital heart defects as lifelong conditions, the foundation provides sustained support across all demographics, with special emphasis on infants with critical defects like hypoplastic left heart syndrome who require immediate intervention.
- Personalized philanthropic engagementCustomizes giving opportunities to align with donors’ individual or group philanthropic goals, increasing engagement and fostering deeper community investment in the mission.
- Sustainable community-driven funding through public partnerships public-partnership-fundingLeverages mechanisms like specialty license plate sales and community fundraising events to generate sustainable revenue for research, education, and family support, embedding community participation in long-term funding.
- Sustainable public-partnership funding via specialty license plates public-partnership-fundingGenerates consistent funding for research, education, and family support programs through CHD specialty license plate sales, combining public engagement with long-term financial sustainability.
named programs · 3
what they call their work
CHD Education Initiative
Offers educational content about congenital heart defects, critical CHDs, and treatment options to inform and empower affected families and the broader community
Family Support Program
Provides direct support to families of children with CHD, including assistance during hospitalization and access to resources while navigating treatment
Rae's Rockstars
Shares the personal stories of children battling congenital heart defects to raise awareness, provide emotional support to families, and honor those who have passed
relationships · 26
who they work with
- Aldi Funder — Listed as a generous supporter.
- Arizona State University Partner — Rachel Brockway, a board member, teaches marketing, leadership, and ethics courses at Arizona State University.
- Benom Wines Funder — Listed as a generous supporter.
- Children’s Hospital Los Angeles Partner — Reagan was taken there for her second open heart surgery.
- Clos Solene Wines Funder — Listed as a generous supporter.
- Convey Communications Partner — Rachel Brockway, a board member, is the director of client services at Convey Communications.
- Costco Funder — Listed as a generous supporter.
- Creighton University School of Medicine Partner — Dr. Christopher Lindblade, a board member, is an assistant professor of pediatrics at Creighton University School of Medicine.
- Dunkin' Donuts Funder — Listed as a generous supporter.
- Grand Canyon University Partner — Rachel Brockway, a board member, teaches marketing, leadership, and ethics courses at Grand Canyon University.
- Majuscule Winery Funder — Listed as a generous supporter.
- Matt Farris Partner — Presents live music at the Backyard Concert to support fundraising for families affected by congenital heart defects.
- Mayo Clinic Partner — Reagan was accepted into a clinical trial there involving stem cell injection.
- Mayo Clinic Medical School Partner — Dr. Christopher Lindblade, a board member, is an assistant professor of pediatrics at Mayo Clinic Medical School.
- O.H.S.O Funder — Listed as a generous supporter.
- Phoenix Children's Center for Heart Care Partner — Beneficiary of the Backyard Concert event, co-supported by RaeRae of Light.
- Phoenix Children's Hospital Partner — Partnered to launch the CHD specialty license plate, with proceeds supporting the Center for Heart Care.
- Phoenix Children’s Foundation Partner — Supports congenital heart disease research at Phoenix Children's Foundation with 100% of CHD license plate sales.
- Phoenix Children’s Hospital Partner — Dr. Christopher Lindblade, a board member, is the medical director of the Fetal Cardiology program at Phoenix Children’s Hospital.
- Phoenix Children’s Hospital Partner — Reagan was hospitalized there on and off until October 2019.
- REI Adventure Center Funder — Listed as a generous supporter.
- Salernos Restaurant Partner — Provides dinner for the Backyard Concert fundraising event.
- Sprouts Funder — Listed as a generous supporter.
- Starbucks Funder — Listed as a generous supporter.
- Trader Joe's Funder — Listed as a generous supporter.
- University of Arizona College of Medicine Partner — Dr. Christopher Lindblade, a board member, is an assistant professor of pediatrics at the University of Arizona College of Medicine.