named programs · 4 · from sources
what they call their work
Adaptive Recreation
Offers children with complex medical conditions opportunities to participate in sports and recreational activities, fostering confidence and social connections.
Childhood Experience Programs
Includes community events such as Back-to-School Fair and Inclusive Halloween, designed to create joyful experiences for children and families.
Down Syndrome Regression Clinic
Specializes in diagnosing and treating Down Syndrome Regression, providing hope and treatment options for affected individuals.
Multi-Specialty Interdisciplinary Clinic (MSIC)
Provides coordinated care for children with complex medical needs through a team of pediatric subspecialists, primary care providers, and support staff.
activities · 5 clusters
what they do
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Adaptive Sports Programs for Youth with Disabilities 7 activities
- Delivery of patient and family support servicesOffers ancillary support services including Patient & Family Services, RN Coordinators, and Pet Therapy. Also provides specialized equipment such as Cubby Beds for children with autism and adaptive therapy bikes to enable community participation.
- Facilitation of patient community engagement and enrichmentSupports patients in participating in community and social activities, such as enabling a patient to join the University of Arizona’s Pride of Arizona marching band and participate in the El Tour de Tucson’s Family Fun Ride.
- Offers patient and family support servicesSupports patients and families through ancillary services including Patient & Family Services, RN Coordinators, and Pet Therapy. Also facilitates meaningful community experiences, such as supporting a patient’s honorary membership in the University of Arizona’s Pride of Arizona marching band.
- Provides ancillary support services for patients and familiesOffers supportive services including Patient & Family Services, pet therapy, and RN coordinators to assist patients and their families beyond clinical care.
- Provides specialized equipment and adaptive support for patientsSecures and provides specialized medical equipment such as the Cubby Bed for children with autism and adaptive therapy bikes that enable patient participation in community events like the El Tour de Tucson’s Family Fun Ride.
- Secures specialized medical equipment for patientsObtains and provides specialized equipment such as Cubby Beds—enclosed beds designed for children with autism—to support patient safety and care at home.
- Support patients and families with ancillary services and adaptive equipmentOffers ancillary services like Patient & Family Services, Pet Therapy, and RN Coordinators. The organization also assists families in obtaining specialized equipment, such as a Cubby Bed for a child with autism, and adaptive therapy bikes to enable participation in community events.
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Pediatric Transplant & Regenerative Therapies 4 activities
- Delivers comprehensive healthcare services to children with special healthcare needsProvides medical and therapeutic care to children with special healthcare needs, facilitating over 40,000 patient visits across a range of clinics in 2024. Services include specialized clinics such as the Down Syndrome Regression Clinic, which has cared for approximately 10 patients since opening.
- Delivers specialized healthcare services for children with special needsProvides comprehensive medical and therapeutic care to children with special healthcare needs, facilitating over 40,000 patient visits across multiple clinics in 2024.
- Provide healthcare services for children with special healthcare needsDelivers medical and therapeutic services to children with special healthcare needs, facilitating over 40,000 patient visits in 2024 across various clinics. This includes specialized care such as the Down Syndrome Regression Clinic, which has served approximately 10 patients since its opening.
- Provision of specialized pediatric healthcare servicesProvides comprehensive medical and therapeutic care to children with special healthcare needs, including clinics for medically complex patients such as the Down Syndrome Regression Clinic. Facilitated over 40,000 patient visits in 2024 across a range of clinical services.
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Annual Impact & Transparency Reporting 2 activities
- Publication of community and outcomes reportingPublishes annual community reports from 2016 to 2025, disseminating insights on patient outcomes and organizational impact.
- Publishes community reports and organizational newslettersProduces and publishes annual community reports from 2016 to 2025, as well as the Winter 2025 edition of its newsletter, "Silhouettes," to communicate organizational updates and outcomes.
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Health Center Accreditation & Compliance 1 activity
- Maintains clinical accreditation and quality standardsAchieved a perfect survey score from The Joint Commission for the second consecutive year, maintaining full accreditation and demonstrating commitment to high-quality clinical standards.
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Uncategorized 5 activities
- Conduct of clinical and health services researchConducts research on the effectiveness and outcomes of the MSIC (Medically Specialized Interdisciplinary Care) model using AHCCCS claims data from 2018–2025. Findings include a 7.7-year increase in life expectancy, 50% lower mortality, reduced hospital readmissions, and one-third lower costs for long-term care patients compared to alternative models.
- Conduct research on the effectiveness of care models for medically complex childrenConducts quality outcomes studies, such as evaluating the MSIC model using AHCCCS claims data from 2018–2025, to assess its effectiveness for medically complex children. Research findings indicate improved longevity, reduced mortality, lower readmission rates, and cost-effectiveness for MSIC patients.
- Conducts and publishes community health researchProduces and publishes annual community reports from 2016 to 2025, contributing to ongoing research and public health understanding.
- Conducts research on pediatric care outcomes and model effectivenessConducts research using AHCCCS claims data (2018–2025) to evaluate the effectiveness of the MSIC model for medically complex children. Findings show MSIC patients live 7.7 years longer on average, have half the mortality rate, lower 30-day hospital readmission rates, and cost one-third as much for long-term care compared to alternative models.
- Maintenance of clinical accreditation and quality standardsMaintains full accreditation by achieving a perfect survey score from The Joint Commission for two consecutive years.
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financials · form 990 · fy2021
the money
revenue
Total revenue$546K
Contributions & grants$192K35%
Program service revenue$15K3%
Investment income$340K62%
Other revenue$0
expenses
Total expenses$522K
Program expenses87%
Admin / overhead13%
Fundraising0%
Salaries & benefits$90K
Grants paid out$98K
Largest expense lineFacilities
balance sheet
Total assets$10.79M
Cash$376K
Investments$5.71M
Liabilities$0
Net assets$10.79M
Liquid reserves140.1 mo
3 years on record · 2019–2021 · YoY revenue -21.6%
leadership · form 990 part vii · fy2021
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| AMY BURKE | EXECUTIVE DIRECTOR | 40 | $65K |
board members · 9
- BOB RICHARDS — DIRECTOR
- CRAIG GROSS — DIRECTOR
- FRED LOHMAN — DIRECTOR
- JAMES WOLFE — SECRETARY
- ROB SETTLEMEYER — TREASURER
- ROGER BIEDE — DIRECTOR
- RON ALLEN — VICE PRESIDENT
- VAN ELROD — PRESIDENT
- VINCENT SANTOS — DIRECTOR
relationships · 10
who they work with
- Banner University Medical Center Government — Founding organization and ongoing partner in supporting the clinic's mission.
- Children's Clinics Partner — Philanthropic partner, providing financial support to enable them to deliver medical care.
- Children’s Clinics Partner — Supports Children's Clinics' ancillary services for patients and their families.
- Fry's Partner — Participates in the Fry's Community Rewards program, where a percentage of customer purchases are donated to the clinic.
- Fry’s Community Rewards Partner — Participates in a rewards program where a percentage of purchases are given as a charitable donation.
- Square & Compass Government — Founding organization whose dedication makes the clinic's work possible.
- Team Impact Partner — Nationwide program that partners with the clinic to connect children with disabilities to college athletic teams.
- The Grand Lodge of Arizona Funder — Received a donation from The Grand Lodge of Arizona in August 2024.
- Tucson Medical Center Government — Founding organization and ongoing partner in supporting the clinic's mission.
- University of Arizona Partner — Partnered to conduct a Quality Outcomes Study analyzing AHCCCS claims data from 2018–2025.