organizations running this strategy · 1
activities of orgs running this strategy
A sample of programmatic activities from the orgs above. These are what the strategy looks like on the ground.
- Collecting and Sharing SCAD Survivor Stories SCAD RESEARCH INCdirect serviceCollects, produces, and distributes personal written and video stories from individuals affected by SCAD through its website and YouTube channel to support recovery and community building. Includes stories gathered during 5K SCADaddle weekends and a virtual event in 2020, featuring interviews with 12 survivors.
- Distributing SCAD Educational Materials SCAD RESEARCH INCdirect serviceCreates and distributes educational brochures about SCAD tailored to different audiences to improve awareness and understanding of the condition.
- Funding SCAD Research at Mayo Clinic SCAD RESEARCH INCcapacity buildingRaises and donates funds to support clinical trials and research on Spontaneous Coronary Artery Dissection (SCAD), primarily directed to the Mayo Clinic SCAD Research Program. As of the latest evidence, has donated over $1.6 million to research, with prior totals reported at $965,000 as of December 2019.
- Fundraising for SCAD Research SCAD RESEARCH INCcapacity buildingRaises funds through events like 5K SCADaddle© for Research run/walks and direct donations to support clinical trials and research programs on Spontaneous Coronary Artery Dissection (SCAD), primarily at the Mayo Clinic SCAD Research Program.
- Fundraising for SCAD Research SCAD RESEARCH INCcapacity buildingRaises funds through events like 5K SCADaddle© for Research run/walks and direct donations to support clinical trials and research programs on Spontaneous Coronary Artery Dissection (SCAD), primarily at Mayo Clinic. As of December 2019, over $965,000 has been donated, with total donations exceeding $1.6 million.
- Operating the Global SCAD Registry SCAD RESEARCH INCresearchDeveloped and maintains the largest known SCAD registry in the world, which has contributed to key epidemiological insights, including that SCAD is far more common than previously believed. The registry supports ongoing research and facilitates global patient participation in studies.
- Organizing 5K SCADaddle© for Research Events SCAD RESEARCH INCdirect serviceOrganizes annual 5K SCADaddle© run/walk events in multiple locations across the United States to raise funds and awareness for SCAD research. These events have also served as venues for collecting survivor stories and conducting interviews.
- SCAD Educational Material Distribution SCAD RESEARCH INCdirect serviceCreates and distributes educational brochures about SCAD to various audiences.
- SCAD Educational Material Distribution SCAD RESEARCH INCdirect serviceCreates and distributes educational brochures about SCAD to various audiences to increase understanding of the condition.
- SCAD Patient Story Collection and Sharing SCAD RESEARCH INCdirect serviceCollects and shares personal written and video stories from individuals affected by SCAD through its website and YouTube channel to provide support and raise awareness.
- SCAD Patient Story Collection and Sharing SCAD RESEARCH INCdirect serviceCollects and shares personal written and video stories from individuals affected by SCAD through its website and YouTube channel, providing support and educational resources for others.
- SCAD Research Program Development and Support SCAD RESEARCH INCresearchEstablished and continues to support the Mayo Clinic SCAD Research Program, contributing to the development of the largest known SCAD registry and facilitating global participation in SCAD research studies.
- SCAD Research Program Support and Development SCAD RESEARCH INCresearchEstablished and supports the Mayo Clinic SCAD Research Program, contributing to the development of the world's largest SCAD registry and facilitating global patient participation in SCAD research studies.
- Supporting SCAD Research Program Development SCAD RESEARCH INCresearchPlayed a foundational role in establishing the Mayo Clinic SCAD Research Program in 2010, based on a research agenda initiated by SCAD survivors. This includes ongoing collaboration and funding to advance clinical research.