named programs · 5 · from sources
what they call their work
Links For Lymphedema
Golf tournament event that raises funds for the foundation while providing networking and awareness opportunities
Love For Lymphedema Fundraiser
Annual fundraising campaign supporting pediatric lymphedema treatment and awareness, featuring team-based donation drives
Parent's Lymphedema Road Map
Educational resource guide for parents navigating diagnosis, treatment, and long-term care for children with lymphedema
Support A Warrior Day
Annual event held during lymphedema awareness month to celebrate and support affected children and families
Treatment Assistance Program
Provides financial aid for customized compression garments, bandaging supplies, therapy sessions, surgical procedures, and compression pumps for pediatric patients
activities · 2 groups
what they do
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Pediatric Lymphedema Research and Advocacy 21 activities
- Advocacy and public education on pediatric lymphedemaRaises awareness and promotes education about pediatric lymphedema through public campaigns and participation in advocacy efforts, including the founder’s involvement with the Lymphedema Advocacy Group in support of the Lymphedema Treatment Act.
- Advocacy for lymphedema legislationSupports the Lymphedema Treatment Act through participation in advocacy groups.
- Advocacy for lymphedema policy changeEngages in policy advocacy by supporting the Lymphedema Treatment Act through participation in advocacy efforts in Washington, D.C. with the Lymphedema Advocacy Group.
- Advocacy for lymphedema policy reformEngages in policy advocacy by supporting the Lymphedema Treatment Act through participation in advocacy efforts in Washington, D.C.
- Financial assistance for pediatric lymphedema treatmentProvides financial assistance to pediatric lymphedema patients for necessary treatments, including custom garments, bandaging supplies, therapy sessions, surgical procedures, and compression pumps.
- Lymphedema patient resources and consultationsOffers clickable road map resources for parents navigating lymphedema care and provides virtual consultations and measuring sessions for lymphedema patients.
- Lymphedema patient resources and consultationsOffers clickable roadmap resources for parents navigating lymphedema care and provides virtual consultations and measuring sessions for lymphedema patients.
- Navigation and educational resources for lymphedema careOffers clickable roadmap resources and virtual support to help parents navigate pediatric lymphedema care and access appropriate treatment options.
- Operation of educational and navigational resources for lymphedema careOffers clickable roadmap resources and virtual support to help parents navigate pediatric lymphedema care, improving access to treatment and information.
- Pediatric lymphedema awareness and educationConducts advocacy efforts to raise public awareness and promote education about pediatric lymphedema, including participation in awareness month events and public outreach.
- Pediatric lymphedema awareness and educationRaises awareness and promotes education about pediatric lymphedema.
- Pediatric lymphedema awareness and education campaignsRaises public awareness and promotes education about pediatric lymphedema through advocacy events and participation in awareness month activities.
- Provision of lymphedema treatment and medical suppliesProvides necessary treatment and medical support to pediatric lymphedema patients, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and virtual consultations and measuring sessions. Services are prioritized for patients in financial need.
- Provision of lymphedema treatment and medical supplies for pediatric patientsProvides necessary treatment and medical support to pediatric lymphedema patients in financial need, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and virtual consultations with measuring sessions.
- Provision of treatment and medical supplies for pediatric lymphedema patientsProvides necessary treatment and medical support to pediatric lymphedema patients in financial need, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and treatment assistance programs.
- Resource navigation support for familiesProvides clickable roadmap resources to help parents navigate the complexities of pediatric lymphedema care.
- Support for lymphedema researchAids in groundbreaking research for pediatric lymphedema.
- Support for pediatric lymphedema researchContributes to advancing medical knowledge by aiding groundbreaking research focused on pediatric lymphedema.
- Support for pediatric lymphedema researchContributes to groundbreaking research focused on pediatric lymphedema to advance medical understanding and treatment options.
- Support for pediatric lymphedema researchAids in advancing medical knowledge through support of groundbreaking research focused on pediatric lymphedema.
- Virtual care services for lymphedema patientsOffers virtual consultations and remote measuring sessions to support lymphedema patients in accessing necessary care and treatment planning.
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Themed Community Fundraising Events 4 activities
- Fundraising events and community engagementHosts fundraising and awareness events such as the annual golf tournament and "Support A Warrior Day," which include participant amenities and promote community involvement in lymphedema support.
- Fundraising events to support lymphedema programsHosts fundraising events such as golf tournaments and "Support A Warrior Day" to generate support and awareness, with one event raising $84,860.41 for lymphedema care initiatives.
- Fundraising initiativesConducts fundraising campaigns such as the "Love For Lymphedema Fundraiser," which raised $84,860.41 to support the organization’s programs and services.
- Hosting of fundraising and awareness eventsOrganizes events such as the annual "Support A Warrior Day" and a golf fundraiser that includes meals, drinks, apparel, and recreational activities to engage supporters and raise funds for pediatric lymphedema care.
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financials · form 990EZ · fy2020
revenue
Total revenue$106K
Contributions & grants$101K96%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$50K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$3K
balance sheet
Total assets$85K
Cash—
Investments—
Liabilities—
Net assets$85K
1 years on record · 2020–2020
leadership · form 990 part vii · fy2020
who runs it
paid leadership · 2
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Brittany Williams | Executive Director | 40 | $14K |
| Betty Westbrook | Director Camp Watchme | 10 | $1K |
board members · 1
- Alesondra Mora — Director of Marketing
relationships · 7
who they work with
- Klose Training Partner — Provides access to Klose Training's Certified Lymphedema Therapist directory.
- Lymphedema Advocacy Group Partner — Founder joined the group in Washington, D.C. to support the Lymphedema Treatment Act.
- Lymphedema Treatment Act Partner — Provides access to the Lymphedema Treatment Act policy document as an educational resource.
- Lymphology Association of North America Partner — Directs users to LANA's Certified Lymphedema Therapist directory.
- Stanford Medicine Partner — Links to lymphedema-related research conducted by Stanford Medicine.
- The National Library of Medicine Partner — References clinical trials on lymphedema from ClinicalTrials.gov, managed by the National Library of Medicine.
- The Rivera Foundation Partner — Refers adults to The Rivera Foundation for lymphedema garment support.