activities · 19
what they do
direct service · 10
- Financial assistance for pediatric lymphedema treatment Pediatric Lymphedema Care SupportProvides financial assistance to pediatric lymphedema patients for necessary treatments, including custom garments, bandaging supplies, therapy sessions, surgical procedures, and compression pumps.
- Fundraising events and community engagement Cancer-Focused Fundraising & Awareness EventsHosts fundraising and awareness events such as the annual golf tournament and "Support A Warrior Day," which include participant amenities and promote community involvement in lymphedema support.
- Fundraising events to support lymphedema programs Cancer-Focused Fundraising & Awareness EventsHosts fundraising events such as golf tournaments and "Support A Warrior Day" to generate support and awareness, with one event raising $84,860.41 for lymphedema care initiatives.
- Lymphedema patient resources and consultations Pediatric Lymphedema Care SupportOffers clickable road map resources for parents navigating lymphedema care and provides virtual consultations and measuring sessions for lymphedema patients.
- Lymphedema patient resources and consultations Pediatric Lymphedema Care SupportOffers clickable roadmap resources for parents navigating lymphedema care and provides virtual consultations and measuring sessions for lymphedema patients.
- Navigation and educational resources for lymphedema care Pediatric Lymphedema Care SupportOffers clickable roadmap resources and virtual support to help parents navigate pediatric lymphedema care and access appropriate treatment options.
- Provision of lymphedema treatment and medical supplies Pediatric Lymphedema Care SupportProvides necessary treatment and medical support to pediatric lymphedema patients, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and virtual consultations and measuring sessions. Services are prioritized for patients in financial need.
- Provision of treatment and medical supplies for pediatric lymphedema patients Pediatric Lymphedema Care SupportProvides necessary treatment and medical support to pediatric lymphedema patients in financial need, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and treatment assistance programs.
- Resource navigation support for families Pediatric Lymphedema Care SupportProvides clickable roadmap resources to help parents navigate the complexities of pediatric lymphedema care.
- Virtual care services for lymphedema patients Pediatric Lymphedema Care SupportOffers virtual consultations and remote measuring sessions to support lymphedema patients in accessing necessary care and treatment planning.
advocacy · 6
- Advocacy for lymphedema legislation Pediatric Lymphedema & Rare Disease AdvocacySupports the Lymphedema Treatment Act through participation in advocacy groups.
- Advocacy for lymphedema policy change Pediatric Lymphedema & Rare Disease AdvocacyEngages in policy advocacy by supporting the Lymphedema Treatment Act through participation in advocacy efforts in Washington, D.C. with the Lymphedema Advocacy Group.
- Advocacy for lymphedema policy reform Pediatric Lymphedema & Rare Disease AdvocacyEngages in policy advocacy by supporting the Lymphedema Treatment Act through participation in advocacy efforts in Washington, D.C.
- Pediatric lymphedema awareness and education Pediatric Lymphedema & Rare Disease AdvocacyRaises awareness and promotes education about pediatric lymphedema.
- Pediatric lymphedema awareness and education Pediatric Lymphedema & Rare Disease AdvocacyConducts advocacy efforts to raise public awareness and promote education about pediatric lymphedema, including participation in awareness month events and public outreach.
- Pediatric lymphedema awareness and education campaigns Pediatric Lymphedema & Rare Disease AdvocacyRaises public awareness and promotes education about pediatric lymphedema through advocacy events and participation in awareness month activities.
research · 3
- Support for lymphedema research Pediatric Lymphedema & Rare Disease AdvocacyAids in groundbreaking research for pediatric lymphedema.
- Support for pediatric lymphedema research Pediatric Lymphedema & Rare Disease AdvocacyContributes to advancing medical knowledge by aiding groundbreaking research focused on pediatric lymphedema.
- Support for pediatric lymphedema research Pediatric Lymphedema & Rare Disease AdvocacyAids in advancing medical knowledge through support of groundbreaking research focused on pediatric lymphedema.
strategies · 25
how they think
Theories of action extracted from this org's own source material. Click any to see the full field of orgs running the same approach.
- Advocacy for Children with Lymphedema advocacyThe organization advocates on behalf of children suffering from lymphedema. This strategy aims to influence policy, increase support, and ensure that the needs of these children are recognized and addressed.
- Advocacy for Children with Lymphedema advocacyThe organization advocates on behalf of children suffering from lymphedema to ensure their needs are met and their voices are heard.
- Advocacy for children with lymphedema advocacyActively advocates for children suffering from lymphedema to improve recognition, support, and access to care within broader healthcare and policy contexts.
- Advocacy for pediatric lymphedema patients advocacyActively advocates for children with lymphedema to improve recognition, care, and support at systemic levels.
- Awareness and Education Campaigns awareness_and_educationThe organization actively spreads awareness and provides education about lymphedema to the public and affected communities. This strategy aims to increase understanding of the condition, reduce stigma, and encourage early diagnosis and treatment.
- Awareness and Education Campaigns awareness_campaignThe organization actively spreads awareness and provides education about lymphedema, including through annual events and documentaries, to inform the public, engage supporters, and advocate for affected individuals.
- Awareness and education through events and media awareness_and_educationHosts annual events and produces documentaries to raise public awareness, educate communities, and engage supporters, using storytelling to illustrate impact and drive involvement.
- Awareness and education through multimedia and events awareness_campaignConducts awareness campaigns using documentaries and annual events to educate the public and engage supporters around lymphedema.
- Comprehensive Patient Support for Pediatric Lymphedema comprehensive_patient_supportThe organization supports pediatric lymphedema patients through a holistic approach that encompasses access to treatment, awareness campaigns, educational initiatives, and research efforts. This comprehensive model aims to address various facets of the patient journey and improve outcomes.
- Comprehensive Patient Support for Pediatric Lymphedema comprehensive_patient_supportThe organization supports pediatric lymphedema patients through a holistic approach that encompasses access to treatment, awareness campaigns, educational initiatives, and research efforts. This comprehensive model aims to address various facets of the patient journey, from diagnosis to ongoing care.
- Comprehensive Patient Support for Pediatric Lymphedema comprehensive_patient_supportThe organization supports pediatric lymphedema patients through a holistic approach that encompasses access to treatment, awareness campaigns, educational initiatives, and research efforts. This comprehensive support aims to address various facets of the patient journey.
- Comprehensive support model for pediatric lymphedema comprehensive_patient_supportSupports pediatric lymphedema patients through an integrated approach that includes access to treatment, education, awareness, research, and curated resources, addressing multiple dimensions of care and long-term outcomes.
- Comprehensive support model for pediatric lymphedema comprehensive_patient_supportSupports pediatric lymphedema patients through an integrated approach that includes access to treatment, education, awareness, and research advancement.
- Direct financial and treatment access support direct_serviceProvides direct assistance to help families afford medically necessary lymphedema garments and treatments, with clear eligibility criteria tied to diagnosis.
- Financial Assistance for Lymphedema TreatmentThe organization provides financial aid to families to help them afford medically necessary garments and other treatments for lymphedema. This strategy aims to remove financial barriers to essential care.
- Financial Assistance for Lymphedema TreatmentThe organization provides financial aid to families to help them afford medically necessary garments and other treatments for lymphedema. This strategy aims to remove financial barriers to essential care for children with the condition.
- Financial Assistance for Lymphedema TreatmentThe organization provides financial aid to families to help them afford medically necessary garments and other treatments for lymphedema, thereby removing financial barriers to care.
- Patient Navigation through Visual Roadmaps patient_navigationThe organization guides parents through the complex lymphedema care journey by utilizing visual and interactive road maps. This approach aims to simplify the process and empower families to navigate treatment effectively.
- Patient Navigation through Visual Roadmaps patient_navigationThe organization guides parents through the complex lymphedema care journey by utilizing visual and interactive road maps. This approach aims to simplify and clarify the treatment process, making it more manageable for families.
- Patient Navigation through Visual Roadmaps patient_navigationThe organization guides parents through the complex lymphedema care journey by utilizing visual and interactive road maps. This approach aims to simplify and clarify the treatment process for families.
- Patient navigation through visual care roadmaps patient_navigationUses visual, interactive road maps to guide parents through the lymphedema care journey, improving understanding and continuity of care for pediatric patients.
- Patient navigation through visual care roadmaps patient_navigationUses visual, interactive road maps to guide parents through the pediatric lymphedema care journey, improving understanding and continuity of care.
- Raising Awareness and Education through Events and Media awareness_campaignThe organization actively raises awareness and educates the public about lymphedema through annual events and by producing documentaries that showcase the impact of donations and engage supporters. This strategy aims to increase understanding and support for individuals affected by the condition.
- Resource curation and referral for patient empowerment resource_curation_and_referralCurates and shares educational materials, support groups, therapy directories, and research links to connect affected individuals with tools and care.
- Targeted financial and treatment assistance with eligibility criteria direct_serviceProvides direct financial aid for medically necessary garments and treatments to families affected by lymphedema, using defined eligibility criteria to ensure alignment with mission goals.
named programs · 5
what they call their work
Links For Lymphedema
Golf tournament event that raises funds for the foundation while providing networking and awareness opportunities
Love For Lymphedema Fundraiser
Annual fundraising campaign supporting pediatric lymphedema treatment and awareness, featuring team-based donation drives
Parent's Lymphedema Road Map
Educational resource guide for parents navigating diagnosis, treatment, and long-term care for children with lymphedema
Support A Warrior Day
Annual event held during lymphedema awareness month to celebrate and support affected children and families
Treatment Assistance Program
Provides financial aid for customized compression garments, bandaging supplies, therapy sessions, surgical procedures, and compression pumps for pediatric patients
relationships · 7
who they work with
- Klose Training Partner — Provides access to Klose Training's Certified Lymphedema Therapist directory.
- Lymphedema Advocacy Group Partner — Founder joined the group in Washington, D.C. to support the Lymphedema Treatment Act.
- Lymphedema Treatment Act Partner — Provides access to the Lymphedema Treatment Act policy document as an educational resource.
- Lymphology Association of North America Partner — Directs users to LANA's Certified Lymphedema Therapist directory.
- Stanford Medicine Partner — Links to lymphedema-related research conducted by Stanford Medicine.
- The National Library of Medicine Partner — References clinical trials on lymphedema from ClinicalTrials.gov, managed by the National Library of Medicine.
- The Rivera Foundation Partner — Refers adults to The Rivera Foundation for lymphedema garment support.