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Brylan's Feat Foundation

Scottsdale, AZ · EIN 825373782 · Form 990EZ · FY2020 · NTEE G99 · Voluntary Health Associations · Small ($100K-$1M) · brylansfeat.org
revenue
$106K
expenses
$50K
net assets
$85K
employees
mission · from form 990

Supporting children who have lymphedema

profile · synthesized from sources

Brylan's Feat Foundation supports children with lymphedema by providing financial assistance for medical treatments and compression garments. Founded by a parent after her daughter's diagnosis, the organization serves pediatric patients in financial need, offering aid for therapy, supplies, and surgical procedures. It also promotes awareness, education, and research related to lymphedema.

named programs · 5 · from sources

what they call their work

Links For Lymphedema
Golf tournament event that raises funds for the foundation while providing networking and awareness opportunities
Love For Lymphedema Fundraiser
Annual fundraising campaign supporting pediatric lymphedema treatment and awareness, featuring team-based donation drives
Parent's Lymphedema Road Map
Educational resource guide for parents navigating diagnosis, treatment, and long-term care for children with lymphedema
Support A Warrior Day
Annual event held during lymphedema awareness month to celebrate and support affected children and families
Treatment Assistance Program
Provides financial aid for customized compression garments, bandaging supplies, therapy sessions, surgical procedures, and compression pumps for pediatric patients
activities · 2 groups

what they do

  • Pediatric Lymphedema Research and Advocacy 21 activities
    • Advocacy and public education on pediatric lymphedema
      Raises awareness and promotes education about pediatric lymphedema through public campaigns and participation in advocacy efforts, including the founder’s involvement with the Lymphedema Advocacy Group in support of the Lymphedema Treatment Act.
    • Advocacy for lymphedema legislation
      Supports the Lymphedema Treatment Act through participation in advocacy groups.
    • Advocacy for lymphedema policy change
      Engages in policy advocacy by supporting the Lymphedema Treatment Act through participation in advocacy efforts in Washington, D.C. with the Lymphedema Advocacy Group.
    • Advocacy for lymphedema policy reform
      Engages in policy advocacy by supporting the Lymphedema Treatment Act through participation in advocacy efforts in Washington, D.C.
    • Financial assistance for pediatric lymphedema treatment
      Provides financial assistance to pediatric lymphedema patients for necessary treatments, including custom garments, bandaging supplies, therapy sessions, surgical procedures, and compression pumps.
    • Lymphedema patient resources and consultations
      Offers clickable road map resources for parents navigating lymphedema care and provides virtual consultations and measuring sessions for lymphedema patients.
    • Lymphedema patient resources and consultations
      Offers clickable roadmap resources for parents navigating lymphedema care and provides virtual consultations and measuring sessions for lymphedema patients.
    • Navigation and educational resources for lymphedema care
      Offers clickable roadmap resources and virtual support to help parents navigate pediatric lymphedema care and access appropriate treatment options.
    • Operation of educational and navigational resources for lymphedema care
      Offers clickable roadmap resources and virtual support to help parents navigate pediatric lymphedema care, improving access to treatment and information.
    • Pediatric lymphedema awareness and education
      Conducts advocacy efforts to raise public awareness and promote education about pediatric lymphedema, including participation in awareness month events and public outreach.
    • Pediatric lymphedema awareness and education
      Raises awareness and promotes education about pediatric lymphedema.
    • Pediatric lymphedema awareness and education campaigns
      Raises public awareness and promotes education about pediatric lymphedema through advocacy events and participation in awareness month activities.
    • Provision of lymphedema treatment and medical supplies
      Provides necessary treatment and medical support to pediatric lymphedema patients, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and virtual consultations and measuring sessions. Services are prioritized for patients in financial need.
    • Provision of lymphedema treatment and medical supplies for pediatric patients
      Provides necessary treatment and medical support to pediatric lymphedema patients in financial need, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and virtual consultations with measuring sessions.
    • Provision of treatment and medical supplies for pediatric lymphedema patients
      Provides necessary treatment and medical support to pediatric lymphedema patients in financial need, including custom garments, bandaging supplies, therapy sessions, surgical procedures, compression pumps, and treatment assistance programs.
    • Resource navigation support for families
      Provides clickable roadmap resources to help parents navigate the complexities of pediatric lymphedema care.
    • Support for lymphedema research
      Aids in groundbreaking research for pediatric lymphedema.
    • Support for pediatric lymphedema research
      Contributes to advancing medical knowledge by aiding groundbreaking research focused on pediatric lymphedema.
    • Support for pediatric lymphedema research
      Contributes to groundbreaking research focused on pediatric lymphedema to advance medical understanding and treatment options.
    • Support for pediatric lymphedema research
      Aids in advancing medical knowledge through support of groundbreaking research focused on pediatric lymphedema.
    • Virtual care services for lymphedema patients
      Offers virtual consultations and remote measuring sessions to support lymphedema patients in accessing necessary care and treatment planning.
  • Themed Community Fundraising Events 4 activities
    • Fundraising events and community engagement
      Hosts fundraising and awareness events such as the annual golf tournament and "Support A Warrior Day," which include participant amenities and promote community involvement in lymphedema support.
    • Fundraising events to support lymphedema programs
      Hosts fundraising events such as golf tournaments and "Support A Warrior Day" to generate support and awareness, with one event raising $84,860.41 for lymphedema care initiatives.
    • Fundraising initiatives
      Conducts fundraising campaigns such as the "Love For Lymphedema Fundraiser," which raised $84,860.41 to support the organization’s programs and services.
    • Hosting of fundraising and awareness events
      Organizes events such as the annual "Support A Warrior Day" and a golf fundraiser that includes meals, drinks, apparel, and recreational activities to engage supporters and raise funds for pediatric lymphedema care.
financials · form 990EZ · fy2020
revenue
Total revenue$106K
Contributions & grants$101K96%
Program service revenue
Investment income
Other revenue
expenses
Total expenses$50K
Program expenses
Admin / overhead
Fundraising
Salaries & benefits
Grants paid out$3K
balance sheet
Total assets$85K
Cash
Investments
Liabilities
Net assets$85K
1 years on record · 2020–2020
leadership · form 990 part vii · fy2020

who runs it

paid leadership · 2
NameTitleHours/wkCompensation
Brittany Williams Executive Director 40 $14K
Betty Westbrook Director Camp Watchme 10 $1K
board members · 1
  • Alesondra Mora — Director of Marketing
relationships · 7

who they work with

  • Klose Training Partner — Provides access to Klose Training's Certified Lymphedema Therapist directory.
  • Lymphedema Advocacy Group Partner — Founder joined the group in Washington, D.C. to support the Lymphedema Treatment Act.
  • Lymphedema Treatment Act Partner — Provides access to the Lymphedema Treatment Act policy document as an educational resource.
  • Lymphology Association of North America Partner — Directs users to LANA's Certified Lymphedema Therapist directory.
  • Stanford Medicine Partner — Links to lymphedema-related research conducted by Stanford Medicine.
  • The National Library of Medicine Partner — References clinical trials on lymphedema from ClinicalTrials.gov, managed by the National Library of Medicine.
  • The Rivera Foundation Partner — Refers adults to The Rivera Foundation for lymphedema garment support.