what they reported doing
Program narrative the organization filed with the IRS. Ordered by program spending.
- #1 primary $203KAWARENESS & OUTREACH - FACILITATING CHANGE AND ADVOCATING FOR PEDIATRIC FEEDING DISORDERS (PFD) TO BE A STAND-ALONE DIAGNOSIS WITH ITS OWN MEDICAL CODE FOR INSURANCE AND PROVIDING VALUABLE INFORMATION AND EDUCATION ABOUT FEEDING MATTERS AND PEDIATRIC FEEDING DISORDER TO THE HEALTHCARE COMMUNITY THROUGH THE RESOURCES ON OUR WEBSITE, PRESENTATIONS, TRAINING, EXHIBITOR BOOTH OPPORTUNITIES, AND NATIONAL GRASSROOTS OUTREACH EFFORTS.
- #2 $86KADVOCACY - IN COLLABORATION WITH RESPECTED CLINICIANS, RESEARCHERS, CAREGIVERS, EDUCATORS, HEALTHCARE PROFESSIONALS, AND MORE, FEEDING MATTERS AND THE PFD ALLIANCE FACILITATE GLOBAL CHANGE TO IMPROVE THE LIVES OF CHILDREN WITH PEDIATRIC FEEDING DISORDER - INCLUDING A STAND-ALONE DIAGNOSIS, GOVERNMENT AWARENESS, AND INCLUSIVE INSURANCE COVERAGE.
what they call their work
what they do
-
Pediatric Feeding Disorder Support & Advocacy 17 activities
- Advocacy and Awareness CampaignsEngages in national advocacy to improve services for children with Pediatric Feeding Disorder (PFD) and launches public awareness campaigns, such as "It’s Not Picky Eating," to educate about Avoidant/Restrictive Food Intake Disorder (ARFID) and establish PFD as a recognized diagnosis.
- Advocate for recognition and improved services for PFD and ARFIDEngage in national advocacy to establish pediatric feeding disorder as a recognized diagnosis, improve services for children with PFD, and raise awareness about ARFID through campaigns like "It’s Not Picky Eating."
- Advocate for recognition and improved services for pediatric feeding disorder (PFD) and ARFIDEngage in national advocacy to establish pediatric feeding disorder as a recognized diagnosis, raise awareness through campaigns like "It’s Not Picky Eating," and launch system-change initiatives to improve health outcomes and support for patients, families, and professionals.
- Advocate for recognition and improved services for pediatric feeding disorder (PFD) and ARFIDEngage in national advocacy to establish pediatric feeding disorder as a recognized diagnosis, raise awareness through campaigns like "It’s Not Picky Eating," and launch system-change initiatives to improve health outcomes and support for patients, families, and professionals.
- Build capacity for awareness and fundraisingImprove education and awareness about pediatric feeding disorder (PFD) among clinicians and parents, and facilitate fundraising efforts through programs like Gatherings for Good, providing promotional materials, and hosting educational webinars and signature events.
- Build capacity for awareness and fundraisingImprove education and awareness about pediatric feeding disorder (PFD) among clinicians and parents, and facilitate fundraising efforts through programs like Gatherings for Good, providing promotional materials, and supporting third-party events.
- Conduct and support research on PFD and ARFIDAdvance research and screening related to pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID) through initiatives like the Research Initiatives Task Force, expert convenings, and the publication of diagnostic criteria and consensus papers.
- Conduct and support research on pediatric feeding disorder (PFD) and ARFIDAdvance research and screening related to pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID) through initiatives like the Research Initiatives Task Force, collaborations with universities, and publishing consensus papers to clarify diagnostic criteria and improve understanding.
- Conduct and support research on pediatric feeding disorder (PFD) and ARFIDAdvance research and screening related to pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID) through initiatives like the Research Initiatives Task Force, collaborations with universities, and publishing consensus papers to clarify diagnostic criteria and improve understanding.
- Family Support and Resources for Pediatric Feeding Disorder (PFD) and ARFIDProvides peer-to-peer support, educational resources, and directories of qualified providers for families of children with Pediatric Feeding Disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID). This includes access to screening tools like the PARDI-AR-Q and the Infant and Child Feeding Questionnaire©.
- Improve education and awareness for clinicians and parentsWork to improve education and awareness about pediatric feeding disorder (PFD) among clinicians and parents, including through initiatives like the "PFD and ARFID: Navigating the Overlap" system-change initiative and the Feeding and Eating Psychology Summit.
- Offer family support and provider directories for PFDProvide peer-to-peer support for families of children with pediatric feeding disorder (PFD) through programs like "Power of Two" and maintain a directory to help families find qualified PFD providers.
- Offer family support programs and provider directoriesOperate programs like "Power of Two" to provide peer-to-peer support for families of children with pediatric feeding disorder (PFD) and maintain a directory to help families find qualified providers.
- Offer family support programs and provider directoriesOperate programs like "Power of Two" to provide peer-to-peer support for families of children with pediatric feeding disorder (PFD) and maintain a directory to help families find qualified providers.
- Provide educational resources and screening tools for pediatric feeding disorder (PFD) and ARFIDDevelop and provide educational resources, including a Family Guide, and screening tools like the Infant and Child Feeding Questionnaire (ICFQ) and PARDI-AR-Q, to help families and professionals understand, identify, and differentiate pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID).
- Provide educational resources and screening tools for pediatric feeding disorder (PFD) and ARFIDDevelop and provide educational resources, including a Family Guide, and screening tools like the Infant and Child Feeding Questionnaire (ICFQ) and PARDI-AR-Q, to help families and professionals understand, identify, and differentiate pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID).
- Research and Diagnostic Clarification for PFD and ARFIDConducts and supports evidence-based research related to Pediatric Feeding Disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID), including investigating research challenges, clarifying diagnostic criteria through expert convenings, and publishing consensus papers and infographics.
-
-
Youth-Focused Fundraising Support Services 1 activity
- Capacity Building and Fundraising SupportSupports third-party fundraising and awareness events by providing promotional materials, nonprofit status proof, and acknowledgment letters for donors. The organization also works to improve education and awareness among clinicians and parents and hosts educational webinars and events.
-
-
Uncategorized 1 activity
- Facilitate third-party fundraising and awareness eventsOperate the Gatherings for Good program and provide resources such as logos, proof of nonprofit status, and informational materials to supporters hosting events that raise funds and awareness for the organization.
-
who runs it
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| JACLYN PEDERSON | CEO | 40 | $119K |
| KATHY THOMAS | CFO & COO | 20 | $46K |
- BUCKY SLOMSKI — DIRECTOR
- COURTNEY BLISS — DIRECTOR
- EMILY ADAMS — DIRECTOR
- IAN RAKOW — DIRECTOR
- KRISTEN FRENCH — TREASURER
- LORI CRANDALL — SECRETARY
- MICHELLE ARNDT — DIRECTOR
- RHONDA ANDERSON — PAST CHAIR
- STACI MELTZER — DIRECTOR
- TODD PEARSON — BOARD CHAIR
- VINCE DANIELS — DIRECTOR
who they work with
- ARFID Awareness Partner — Collaborated with Feeding Matters to launch the "It’s Not Picky Eating" campaign.
- CDC Partner — Promotes CDC’s “Learn the Signs. Act Early.” program to encourage parents and providers to monitor child development and take action on concerns.
- Children’s Healthcare of Atlanta Partner — Partnered with the Research Initiatives Task Force (RITF) in 2023 to bring together experts in ARFID and PFD to clarify diagnostic criteria.
- Emory University Partner — Partnered with the Research Initiatives Task Force (RITF) in 2023 to bring together experts in ARFID and PFD to clarify diagnostic criteria.
- International Journal of Eating Disorders (IJED) Partner — Published a consensus paper in December 2024 resulting from the 2023 Consensus gathering.
- Jennifer J. Thomas, PhD, FAED Partner — Shared ARFID resources, including a book reference.
- Person and Family-Centered Feeding Research Consortium Partner — The organization works with the consortium on feeding research.