activities · 14
what they do
direct service · 4
- Family Support and Resources for Pediatric Feeding Disorder (PFD) and ARFID Family Support and Education ProgramsProvides peer-to-peer support, educational resources, and directories of qualified providers for families of children with Pediatric Feeding Disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID). This includes access to screening tools like the PARDI-AR-Q and the Infant and Child Feeding Questionnaire©.
- Offer family support and provider directories for PFD Family Support and Education ProgramsProvide peer-to-peer support for families of children with pediatric feeding disorder (PFD) through programs like "Power of Two" and maintain a directory to help families find qualified PFD providers.
- Offer family support programs and provider directories Family Support and Education ProgramsOperate programs like "Power of Two" to provide peer-to-peer support for families of children with pediatric feeding disorder (PFD) and maintain a directory to help families find qualified providers.
- Provide educational resources and screening tools for pediatric feeding disorder (PFD) and ARFID Family Support and Education ProgramsDevelop and provide educational resources, including a Family Guide, and screening tools like the Infant and Child Feeding Questionnaire (ICFQ) and PARDI-AR-Q, to help families and professionals understand, identify, and differentiate pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID).
advocacy · 3
- Advocacy and Awareness Campaigns Family Support and Education ProgramsEngages in national advocacy to improve services for children with Pediatric Feeding Disorder (PFD) and launches public awareness campaigns, such as "It’s Not Picky Eating," to educate about Avoidant/Restrictive Food Intake Disorder (ARFID) and establish PFD as a recognized diagnosis.
- Advocate for recognition and improved services for PFD and ARFID Family Support and Education ProgramsEngage in national advocacy to establish pediatric feeding disorder as a recognized diagnosis, improve services for children with PFD, and raise awareness about ARFID through campaigns like "It’s Not Picky Eating."
- Advocate for recognition and improved services for pediatric feeding disorder (PFD) and ARFID Family Support and Education ProgramsEngage in national advocacy to establish pediatric feeding disorder as a recognized diagnosis, raise awareness through campaigns like "It’s Not Picky Eating," and launch system-change initiatives to improve health outcomes and support for patients, families, and professionals.
research · 3
- Conduct and support research on PFD and ARFID Family Support and Education ProgramsAdvance research and screening related to pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID) through initiatives like the Research Initiatives Task Force, expert convenings, and the publication of diagnostic criteria and consensus papers.
- Conduct and support research on pediatric feeding disorder (PFD) and ARFID Family Support and Education ProgramsAdvance research and screening related to pediatric feeding disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID) through initiatives like the Research Initiatives Task Force, collaborations with universities, and publishing consensus papers to clarify diagnostic criteria and improve understanding.
- Research and Diagnostic Clarification for PFD and ARFID Family Support and Education ProgramsConducts and supports evidence-based research related to Pediatric Feeding Disorder (PFD) and Avoidant/Restrictive Food Intake Disorder (ARFID), including investigating research challenges, clarifying diagnostic criteria through expert convenings, and publishing consensus papers and infographics.
capacity building · 4
- Build capacity for awareness and fundraising Family Support and Education ProgramsImprove education and awareness about pediatric feeding disorder (PFD) among clinicians and parents, and facilitate fundraising efforts through programs like Gatherings for Good, providing promotional materials, and hosting educational webinars and signature events.
- Capacity Building and Fundraising SupportSupports third-party fundraising and awareness events by providing promotional materials, nonprofit status proof, and acknowledgment letters for donors. The organization also works to improve education and awareness among clinicians and parents and hosts educational webinars and events.
- Facilitate third-party fundraising and awareness events Public Environmental Events & OutreachOperate the Gatherings for Good program and provide resources such as logos, proof of nonprofit status, and informational materials to supporters hosting events that raise funds and awareness for the organization.
- Improve education and awareness for clinicians and parents Family Support and Education ProgramsWork to improve education and awareness about pediatric feeding disorder (PFD) among clinicians and parents, including through initiatives like the "PFD and ARFID: Navigating the Overlap" system-change initiative and the Feeding and Eating Psychology Summit.
strategies · 17
how they think
Theories of action extracted from this org's own source material. Click any to see the full field of orgs running the same approach.
- Advance the field of pediatric feeding disorder through a multi-pronged approach multi-pronged approachThe organization aims to improve the system of care for pediatric feeding disorder by accelerating identification, igniting research, promoting collaborative care, and utilizing advocacy, education, and support.
- Advancing field through expert collaboration and research expert consensus and collaborationAccelerates progress in pediatric feeding disorders by promoting expert consensus, multidisciplinary collaboration, and research that addresses systemic barriers faced by families and clinicians.
- Bridging research and practice in feeding and eating disorders bridging research and practiceThe organization aims to bridge the gap between the fields of pediatric feeding disorder (PFD) and avoidant/restrictive food intake disorder (ARFID) and unite the fields of eating disorders and feeding disorders to improve health outcomes, offer clearer guidance, and support patients, families, and professionals.
- Bridging research and practice through collaboration bridging research and practiceThe organization aims to improve health outcomes by bridging the gap between the fields of pediatric feeding disorder (PFD) and avoidant/restrictive food intake disorder (ARFID), uniting these fields of study, and facilitating expert consensus and collaboration between families and professionals.
- Early identification and education early_interventionThe organization emphasizes early detection and treatment of Pediatric Feeding Disorder (PFD) as critical for long-term health, and educates others on the signs of PFD to facilitate early identification as the first step in treatment.
- Early identification and education early_interventionThe organization emphasizes early detection and treatment of Pediatric Feeding Disorder (PFD) as critical for long-term health, achieved through public awareness campaigns and educating others on the signs of PFD to facilitate early identification.
- Early intervention through education and detection early_interventionPrioritizes early identification of Pediatric Feeding Disorder (PFD) by educating stakeholders on warning signs, with the theory that earlier detection leads to better long-term health outcomes.
- Expert consensus and collaboration expert consensus and collaborationThe organization facilitates expert consensus and assesses barriers affecting families and children with feeding and eating differences, based on the principle that families and professionals must collaborate to advance the field of pediatric feeding disorders.
- Family-centered care family-centered approachThe organization operates with a family-centered approach, built by and for families navigating pediatric feeding disorder, emphasizing a multidisciplinary approach that centers the family in the child's care.
- Family-centered care and support family-centered approachThe organization operates with a family-centered approach, built by and for families navigating pediatric feeding disorder, emphasizing the family's central role in the child's care and providing comprehensive support to children, families, and healthcare professionals.
- Family-centered care as foundational to treatment and support family-centered careCenters families in the care model for pediatric feeding disorders, both by designing services around family needs and involving families as core collaborators in care planning and field advancement.
- Leveraging supporter-led events and volunteers for reach and awareness supporter-led eventsThe organization expands its reach and engagement by utilizing a decentralized, supporter-led event model for fundraising and awareness, and by engaging volunteers to support programs, events, and awareness initiatives.
- Multi-pronged systems change approach multi-pronged approachImproves the care ecosystem for pediatric feeding disorders through an integrated strategy of advocacy, education, family support, and research to transform fragmented systems into coordinated care pathways.
- Public awareness and education campaigns public_awareness_campaignThe organization uses public awareness campaigns to differentiate Pediatric Feeding Disorder and ARFID from picky eating and promote understanding of feeding disorders, and utilizes volunteers to support programs and raise awareness.
- Public awareness to differentiate feeding disorders from picky eating public_awareness_campaignUses public awareness campaigns to distinguish Pediatric Feeding Disorder (PFD) and ARFID from common picky eating behaviors, thereby promoting accurate understanding and earlier recognition of clinical conditions.
- Supporter-led events to expand awareness and fundraising reach supporter-led eventsEmploys a decentralized model of supporter-led events to grow awareness and funding for pediatric feeding disorders by empowering individuals to host private events that engage new communities.
- Unifying feeding and eating disorder fields to improve care uniting fields of studySeeks to bridge and unite the clinical and research fields of pediatric feeding disorders (PFD) and eating disorders like ARFID to reduce fragmentation, improve professional guidance, and enhance patient outcomes.
named programs · 3
what they call their work
Family Support
Provides education, advocacy, and mentoring for families of children with pediatric feeding disorder, including peer-to-peer support and a directory of qualified providers.
Power of Two program
Offers support to families navigating the challenges of pediatric feeding disorder through peer connections and resources.
Research Initiatives Task Force
Focuses on addressing research challenges in the field of pediatric feeding disorders and improving diagnostic criteria and treatment approaches.
relationships · 7
who they work with
- ARFID Awareness Partner — Collaborated with Feeding Matters to launch the "It’s Not Picky Eating" campaign.
- CDC Partner — Promotes CDC’s “Learn the Signs. Act Early.” program to encourage parents and providers to monitor child development and take action on concerns.
- Children’s Healthcare of Atlanta Partner — Partnered with the Research Initiatives Task Force (RITF) in 2023 to bring together experts in ARFID and PFD to clarify diagnostic criteria.
- Emory University Partner — Partnered with the Research Initiatives Task Force (RITF) in 2023 to bring together experts in ARFID and PFD to clarify diagnostic criteria.
- International Journal of Eating Disorders (IJED) Partner — Published a consensus paper in December 2024 resulting from the 2023 Consensus gathering.
- Jennifer J. Thomas, PhD, FAED Partner — Shared ARFID resources, including a book reference.
- Person and Family-Centered Feeding Research Consortium Partner — The organization works with the consortium on feeding research.