activities · 30
what they do
direct service · 10
- Administers client assistance and rights protection programs Supported Employment for People with DisabilitiesOperates the federally mandated Client Assistance Program (CAP) to provide information, advice, and advocacy helping people with disabilities access employment and other services, and fulfills oversight responsibilities under the PAIMI Act.
- Operates specialized advocacy offices for mental health and developmental disability communities Legal Advocacy for Institutionalized IndividualsManages the California Office of Patients’ Rights (COPR), providing independent advocacy for residents of state psychiatric hospitals, and leads the Office of Clients’ Rights Advocacy (OCRA), serving individuals with intellectual and developmental disabilities through California’s 21 regional centers.
- Operating the California Office of Patients' Rights (COPR) Legal Advocacy for Institutionalized IndividualsOperates the California Office of Patients' Rights (COPR), a unit contracted by the Department of State Hospitals, to provide independent advocacy for residents of state psychiatric hospitals.
- Provide legal services and direct advocacy to disabled Californians Legal Advocacy for Institutionalized IndividualsProvides free legal information, advice, and representation to individuals with disabilities, including regional center clients through the Office of Clients’ Rights Advocacy (OCRA), and operates the California Office of Patients’ Rights (COPR) to advocate for residents of state psychiatric hospitals. Delivered direct support to over 26,000 individuals.
- Provide legal services and direct advocacy to disabled Californians Legal Advocacy for Institutionalized IndividualsProvides free legal information, advice, and representation to individuals with disabilities, including regional center clients through the Office of Clients’ Rights Advocacy (OCRA), and operates the California Office of Patients’ Rights (COPR) to advocate for residents of state psychiatric hospitals. Served over 26,000 individuals through direct support.
- Provide legal services and direct advocacy to disabled Californians Legal Advocacy for Institutionalized IndividualsProvides free legal information, advice, and representation to individuals with disabilities, particularly regional center clients through the Office of Clients’ Rights Advocacy (OCRA), and operates the California Office of Patients’ Rights (COPR) to advocate for residents of state psychiatric hospitals. Served over 26,000 individuals through direct support.
- Provide legal services and direct advocacy to disabled Californians Legal Advocacy for Institutionalized IndividualsOffers free legal information, advice, and representation to individuals with disabilities, particularly through programs like the Office of Clients’ Rights Advocacy (OCRA) for regional center clients and the California Office of Patients’ Rights (COPR) for state hospital patients. Provided direct support to over 26,000 individuals.
- Provides legal services and representation to disabled Californians Legal Advocacy for Institutionalized IndividualsOffers free legal information, advice, and representation to individuals with disabilities, particularly regional center clients, through the Office of Clients’ Rights Advocacy (OCRA) and other legal programs. This includes direct intervention in individual cases such as reclaiming financial rights or securing medical care.
- Providing Legal Services and Advocacy for Disabled Californians Legal Advocacy for Institutionalized IndividualsProvides quality legal services, guidance, resources, and representation to disabled Californians, including direct support for individuals with intellectual and developmental disabilities through the Office of Clients’ Rights Advocacy (OCRA) and for those seeking employment services through the Client Assistance Program (CAP). This includes direct intervention in individual cases, such as securing medical care for residents of state psychiatric hospitals.
- Support client access to employment and public benefits Supported Employment for People with DisabilitiesProvides information, advice, and advocacy to help people with disabilities understand their rights and access employment services through the federally funded Client Assistance Program (CAP).
advocacy · 14
- Advocacy for Mental Health and Developmental Disability Rights Developmental Disability Rights AdvocacyWorks to expose and end abuse and neglect of disabled people, provides oversight to services under the Protection and Advocacy for Individuals with Mental Illness (PAIMI) Act, and educates and engages the community in mental health advocacy efforts. This includes advising on mental health community issues, shaping advocacy plans, and evaluating the effectiveness of mental health advocacy activities through annual reports. The organization also advocates for and oversees the California Memorial Project (CMP).
- Conduct systemic advocacy and litigation to protect disability rights Systemic Disability Rights LitigationEngages in systemic litigation and policy advocacy to advance the rights of Californians with disabilities in areas including education, employment, health, housing, and safety. Achievements include landmark cases such as Lopez v Heckler, Coffelt v DDS, and Sacramento City USD v Rachel Holland, impacting hundreds of thousands through class actions and federal policy influence.
- Conduct systemic advocacy and litigation to protect disability rights Systemic Disability Rights LitigationEngages in systemic litigation and policy advocacy to advance the rights of Californians with disabilities in areas including education, employment, health, housing, and safety. Achieved landmark legal outcomes such as Lopez v Heckler, Coffelt v DDS, and Rachel Holland, and impacted over 607,000 individuals through systemic efforts.
- Conduct systemic advocacy and litigation to protect disability rights Systemic Disability Rights LitigationEngages in high-impact litigation and policy advocacy to advance the rights of people with disabilities in areas including education, healthcare, housing, and institutional reform. Achieved landmark outcomes such as the Coffelt settlement for community-based living and the Lopez v Heckler ruling on SSI benefits, impacting hundreds of thousands.
- Conduct systemic advocacy and policy reform Developmental Disability Rights AdvocacyAdvocates for disability rights at local, state, and federal levels through coalition work, advisory roles (e.g., Governor’s Master Plan for Aging, federal COVID-19 Health Equity Task Force), and participation in national reform efforts such as guardianship and conservatorship reform. Focuses on education, employment, housing, health, and safety.
- Conducts systemic advocacy and policy influence at state and federal levels Developmental Disability Rights AdvocacyWorks in coalition to shape policy and reform systems at local, state, and federal levels, including participation in federal task forces, advisory committees, and national summits to advance disability justice, health equity, and guardianship reform.
- Engage in litigation to protect and expand disability rights Systemic Disability Rights LitigationConducts systemic litigation to defend the rights of people with disabilities, resulting in landmark cases such as Lopez v. Heckler (SSI benefits), Sacramento City USD v. Rachel Holland (inclusive education), and Coffelt v. Department of Developmental Services (deinstitutionalization), impacting hundreds of thousands of individuals.
- Engages in systemic litigation to protect and expand disability rights Systemic Disability Rights LitigationFiles class-action lawsuits and federal litigation that result in major legal precedents and systemic reforms, including cases related to SSI benefits, special education rights, psychiatric patient consent, and deinstitutionalization, impacting hundreds of thousands of individuals.
- Guardianship and Conservatorship Reform Advocacy Developmental Disability Rights AdvocacyParticipates in national and state-level discussions and panels to develop reform recommendations for guardianship systems and to review and recommend improvements and alternatives to conservatorship programs, particularly for individuals with developmental disabilities.
- Leads memorial and dignity restoration initiatives for institutionalized individuals Developmental Disability Rights AdvocacyAdvocates for and oversees the California Memorial Project (CMP), which honors and restores dignity to individuals with mental health and developmental disabilities who lived and died in state institutions.
- Litigation and Legislative Support for Disability Rights Systemic Disability Rights LitigationEngages in successful litigation and provides legal and legislative support to advance disability rights, including cases related to SSI benefits, due process safeguards for sterilization decisions, informed consent for psychiatric patients, transitioning individuals from institutions to community-based living, and the right of students with disabilities to be educated in general education classrooms. This also includes filing class-action lawsuits to create new mental health services for children and youth.
- Oversee and monitor mental health advocacy and services Developmental Disability Rights AdvocacyProvides federal oversight under the PAIMI Act, educates staff and community on mental health advocacy, advises on policy, and files annual reports on the effectiveness of mental health advocacy activities in California.
- Oversee and reform mental health and disability systems Developmental Disability Rights AdvocacyProvides federal and state-mandated oversight of mental health services under the PAIMI Act, advises on mental health policy, participates in national and state-level reform efforts (e.g., guardianship, conservatorship, CARE Court), and files annual reports on mental health advocacy effectiveness.
- Systemic Advocacy and Policy Influence Developmental Disability Rights AdvocacyWorks in partnership with disabled people to defend rights, advance opportunities, and influence policy at local, state, and federal levels of government. This includes advocating to protect the California disability community from health and economic impacts, shaping the Governor's Master Plan for Aging, participating in federal task forces, and advocating for self-determination for unhoused people with mental health disabilities.
capacity building · 6
- Capacity Building and Self-Advocacy Training Developmental Disability Rights AdvocacySupports individuals and communities in building power through outreach and self-advocacy training for people with mental health disabilities in various care settings. The organization also produces publications, many translated into multiple languages, to support these efforts.
- Deliver education, outreach, and self-advocacy training Developmental Disability Rights AdvocacyProvides outreach, self-advocacy training, and resources to people with mental health and developmental disabilities through programs like Peer Self-Advocacy (PSA) and the Advocacy and Community Engagement (ACE) Program. Produces over 400 publications, many translated into 11 languages.
- Delivers information, education, and self-advocacy training to disabled communities Developmental Disability Rights AdvocacyProvides resources, trainings, and outreach including self-advocacy programs for people with mental health disabilities in residential facilities and the community, along with producing over 400 publications translated into 11 languages to support community understanding of rights and services.
- Produce educational resources and conduct community outreach Developmental Disability Rights AdvocacyDevelops and distributes over 400 publications, many translated into 11 languages, to educate the public and people with disabilities about their rights. Conducts outreach and self-advocacy training, particularly through the Peer Self-Advocacy (PSA) program for people with mental health disabilities.
- Produce educational resources and conduct community outreach Developmental Disability Rights AdvocacyProduces and distributes over 400 publications, many translated into 11 languages, and provides outreach, self-advocacy training, and education to people with mental health and developmental disabilities through programs like Peer Self-Advocacy (PSA) and the Advocacy and Community Engagement (ACE) Program.
- Produce educational resources and conduct community outreach Developmental Disability Rights AdvocacyProduces publications, trainings, and educational materials—many translated into 11 languages—to inform and empower people with disabilities. Conducts outreach and self-advocacy training through programs like Peer Self-Advocacy (PSA) and the Advocacy and Community Engagement (ACE) Program.
strategies · 39
how they think
Theories of action extracted from this org's own source material. Click any to see the full field of orgs running the same approach.
- Centering lived experience in governance and advocacy nothing-about-us-without-usEnsures that people with disabilities, particularly those with lived experience of mental health services, lead and shape advocacy efforts and organizational priorities through mandated advisory councils and leadership roles, based on the principle that those most impacted should guide the work.
- Coalition and Community-Based Advocacy coalition-based advocacyDrives policy change and movement building through coalitions, community outreach, peer-led training, and public engagement platforms like podcasts to amplify impact across levels of government and civil society.
- Coalition and Community-Based Movement Building coalition-based advocacyBuilds power and advances policy through coalition-based advocacy, community outreach, peer-led training, and media platforms that strengthen the broader disability rights movement and public support for disability justice.
- Coalition-Based Advocacy coalition-based advocacyThe organization advances policy change by engaging in coalition-based advocacy across various levels of government.
- Coalition-based and movement-building strategies coalition-based advocacyBuilds power and advances policy change by working in coalition with other organizations and using media platforms like podcasts to foster strategic dialogue, public support, and collective organizing within the disability rights movement.
- Disability Justice Infrastructure and Organizational Strengthening disability_justice_infrastructureBuilds sustainable, values-aligned organizational infrastructure and high-performing teams to advance disability justice over the long term, guided by mission-aligned governance and an inclusive culture.
- Disability Justice-Centered Organizational Practice disability-justice-centered partnershipEmbeds disability justice principles in organizational infrastructure and culture by fostering inclusion, building sustainable values-aligned systems, and empowering employees and clients as agents of change.
- Disability Justice-Centered Partnership Model disability-justice-centered partnershipAdvances disability justice by partnering directly with disabled individuals to defend rights, expand opportunities, build power, and foster public support, grounded in participatory and rights-based frameworks.
- Disability Justice-Centered Partnership and Infrastructure Building disability-justice-centered partnershipBuilds sustainable, values-aligned organizational infrastructure and partnerships that center disability justice by expanding opportunities, defending rights, and increasing power for disabled communities across California.
- Disability-Justice Centered Partnership disability-justice-centered partnershipThe organization partners with disabled people to advance disability justice through rights defense, opportunity expansion, power building, and public support, guided by the principle of "nothing about us without us," meaning they take direction from people with disabilities in their work.
- Empowerment Through Peer-Led Self-Advocacy peer_led_self_advocacyBuilds individual and collective power by providing peer-led training and self-advocacy resources that enable people with disabilities to understand, assert, and defend their rights in personal and systemic contexts.
- Empowerment through peer-led self-advocacy and education peer_led_self_advocacyStrengthens individual and collective power by providing peer-led training and resources that enable people with disabilities to understand, assert, and defend their rights in personal and systemic contexts.
- Feedback and Data-Driven Accountability feedback-driven evaluationUses client and stakeholder feedback, data collection, and evaluation to assess impact, promote equity, and ensure organizational accountability and effectiveness.
- Feedback and Data-Driven Accountability feedback-driven evaluationUses ongoing client and stakeholder feedback, data collection, and evaluation to measure impact, ensure equity, and maintain accountability in advocacy and service delivery.
- Feedback-Driven Evaluation for Equity and Accountability feedback-driven evaluationThe organization uses client and stakeholder feedback and data collection to assess its impact, promote equity, and ensure accountability in its operations.
- Feedback-Driven and Equitable Evaluation feedback-driven evaluationUses ongoing client and stakeholder feedback, data collection, and equity-centered assessment practices to evaluate impact, ensure accountability, and adapt strategies to better serve communities.
- Feedback-Driven and Equitable Impact Evaluation feedback-driven evaluationUses data, client feedback, and stakeholder input to assess program effectiveness, ensure accountability, and promote equity in service delivery and advocacy outcomes.
- Feedback-driven, equity-centered organizational development feedback-driven evaluationUses client and stakeholder feedback, data, and a culture of inclusion to continuously assess impact, promote equity, strengthen operational effectiveness, and ensure the organization remains accountable and aligned with its mission.
- Integrated Legal and Community Advocacy integrated_legal_and_community_advocacyThe organization employs a comprehensive approach that combines legal services, education, training, and community advocacy to support the rights of people with disabilities.
- Lived Experience Advisory and Governance Model lived-experience advisory modelUses advisory councils composed predominantly of individuals with lived experience and family members to shape advocacy priorities and ensure accountability and authenticity in mental health and disability policy work.
- Lived-Experience Advisory and Leadership Model lived-experience advisory modelThe organization ensures that its mental health advocacy policies and priorities are guided by an advisory council where individuals with lived experience of mental health services or their family members hold majority representation and leadership positions.
- Long-term infrastructure building for disability justice disability_justice_infrastructureInvests in sustainable, values-aligned organizational infrastructure and partnerships to ensure enduring capacity to advance disability justice across California.
- Media and Coalition-Based Movement Building media-for-movement-buildingStrengthens the disability rights movement by using media platforms like podcasts for strategic dialogue and organizing, and by advancing policy through broad-based coalitions.
- Media and Narrative for Movement Building media-for-movement-buildingLeverages media platforms such as podcasts to foster strategic dialogue, amplify voices, and organize within the disability rights movement to shift public understanding and build collective power.
- Multi-Method Legal and Policy Advocacy multi-method legal and policy advocacyAdvances disability rights through an integrated combination of litigation, legal representation, policy advocacy, legislative engagement, investigations, and public education to create systemic change across multiple levels of government.
- Multi-Method Legal and Policy Advocacy multi-faceted legal and policy advocacyAdvances disability rights through an integrated combination of litigation, legal representation, policy advocacy, legislation, investigations, and public campaigns to create systemic change across multiple levels of government.
- Multi-Method Legal and Policy Advocacy multi-faceted legal and policy advocacyCombines litigation, legal representation, policy advocacy, investigations, legislation, and community outreach in a comprehensive strategy to advance systemic disability rights change.
- Multi-Method Legal and Policy Advocacy multi-method legal and policy advocacyAdvances disability rights through an integrated combination of litigation, legal representation, policy advocacy, legislative engagement, investigations, and public education to create systemic change across multiple levels of government and institutions.
- Multi-faceted Legal and Policy Advocacy multi-faceted legal and policy advocacyThe organization employs a comprehensive approach to advance disability rights, utilizing litigation, legal representation, advocacy, investigations, public policy work, community outreach, legislation, education, and direct client representation.
- Multi-method legal and policy advocacy for systemic change multi-faceted legal and policy advocacyAdvances disability rights through a comprehensive combination of litigation, legal representation, policy advocacy, investigations, legislation, and community outreach to create systemic impact across multiple levels of government.
- Nothing About Us Without Us nothing-about-us-without-usCenters decision-making and organizational direction on the leadership and input of people with disabilities, ensuring that programs and advocacy are guided by lived experience.
- Nothing About Us Without Us — Lived Experience Leadership nothing-about-us-without-usCenters decision-making and organizational direction in the leadership and input of people with disabilities, ensuring that programs and advocacy are guided by those most impacted. This includes mandated advisory councils with majority lived-experience representation and peer-led programming.
- Nothing About Us Without Us — Lived Experience Leadership nothing-about-us-without-usCenters decision-making and organizational direction on the leadership and input of people with disabilities, ensuring that programs and advocacy are guided by those most impacted, through advisory councils and majority lived-experience representation in governance.
- Organizational Effectiveness and Capacity Building organizational effectivenessStrengthens mission impact by developing high-performing teams, efficient systems, and sustainable operational infrastructure within disability rights organizations.
- Organizational Effectiveness and Inclusive Culture organizational effectivenessStrengthens mission impact by building high-performing, operationally effective teams and fostering an inclusive organizational culture where employees can bring their authentic selves to work.
- Organizational and Operational Effectiveness organizational effectivenessStrengthens mission impact by building high-performing teams, inclusive cultures, and sustainable, values-aligned infrastructure through mission-centered governance and operational systems.
- Self-Advocacy Empowerment self-advocacy empowermentThe organization provides resources and peer-led training to help individuals understand and assert their rights, promoting independence and rights awareness among people with mental health disabilities.
- Self-Advocacy Empowerment Model self-advocacy empowermentEquips individuals with disabilities with knowledge, tools, and peer support to understand and assert their rights, promoting independence and systemic awareness.
- Self-Advocacy Empowerment and Peer-Led Education peer_led_self_advocacyEquips individuals with disabilities with knowledge and tools to assert their rights through peer-led training, outreach, and self-advocacy resources that promote independence and rights awareness.
named programs · 7
what they call their work
California Memorial Project (CMP)
An effort to restore graves and collect names of people who died in state institutions, honoring and restoring dignity to these individuals.
California Office of Patients’ Rights (COPR)
Provides independent advocacy services for residents in state psychiatric hospitals, including protection of legal and treatment rights, and offers training to county-level patient advocates
California Office of Patient’s Rights (COPR)
Provides advocacy services and expertise to state hospital residents and county patients’ rights advocates, protecting the rights of individuals in state psychiatric hospitals.
Investigations Unit
Conducts investigations into abuse, neglect, and rights violations of people with disabilities in institutions and community settings, and advocates for systemic reforms
Office of Clients’ Rights Advocacy (OCRA)
Advocates for individuals with intellectual and developmental disabilities served by California’s 21 regional centers, ensuring access to services and supports in the community
Peer Self-Advocacy Program (PSA)
Empowers individuals with mental health disabilities to understand and assert their rights through peer-led education and self-advocacy group development
Therapeutic Behavioral Services (TBS)
Federal class action litigation led to the creation of this mental health service for children and youth with serious behavioral health needs to live safely in the community
relationships · 15
who they work with
- ACLU Partner — Collaborated with DRC on litigation against Los Angeles Unified School District regarding special education services.
- California Department of Developmental Services Partner — Collaborated on a panel to review the conservatorship program and recommend oversight improvements and alternatives.
- Centene National Disability Advisory Council Government — Andrew Imparato serves as Chair of the Centene National Disability Advisory Council, advising a Medicaid Managed Care company on disability issues.
- Center for Health Care Strategies (CHCS) Partner — Sarah Triano, a PAC member, is associate director at CHCS, indicating professional affiliation with national policy organization.
- Central Valley Regional Center Partner — Tamara Trevino, a PAC member, is a Program Manager at Central Valley Regional Center, indicating direct professional link.
- Department of State Hospitals Government — Contracts with Disability Rights California for the California Office of Patients' Rights (COPR).
- Fountain House Partner — Andrew Imparato serves on the Board of Directors of Fountain House, an organization supporting recovery and community integration for people with mental health disabilities.
- Independent Living Resource Center Partner — Jacob Lesner-Buxton, a PAC member, works as System Change Coordinator at the Independent Living Resource Center, indicating professional affiliation and potential collaboration.
- National Alliance for Mental Illness (NAMI) Partner — Kristi Holst, a PAC member, is a member of the local NAMI chapter in El Dorado County, California, indicating organizational connection through shared advocacy.
- National Association of State Directors of Developmental Disabilities Services Partner — Co-convened a panel with the California Department of Developmental Services to review conservatorship practices and recommend reforms.
- Resources for Independent Living in Sacramento Partner — Eric Harris served as a board member for Resources for Independent Living in Sacramento.
- Robert Wood Johnson Foundation Government — Andrew Imparato is a member of the National Advisory Committee for the Robert Wood Johnson Foundation’s Health Policy Research Scholars.
- Tarjan Center Partner — Kecia Weller, a PAC member, works at the Tarjan Center supporting self-advocates, indicating institutional connection.
- community partners Partner — Partners with organizations to reach more people and build collective power.
- disabled people Partner — Works in partnership with disabled people to defend rights and advance opportunities.