named programs · 4 · from sources
what they call their work
Centers of Excellence
List of top medical centers worldwide with specialized teams and high success rates in treating primary aldosteronism
PA Specialist Directory
Online directory of endocrinologists, interventional radiologists, and endocrine surgeons experienced in diagnosing and treating primary aldosteronism
Patient Education Resources
Guides and FAQs on diagnosis, treatment options, medication side effects, and testing procedures for primary aldosteronism
Publications Database
Curated database of research studies on primary aldosteronism, with emphasis on symptoms, comorbidities, and clinical management
activities · 2 clusters
what they do
-
Primary Aldosteronism Care Coordination & Information Clearinghouse 11 activities
- Advocate for adequate responses to primary aldosteronismSupports the development of adequate responses to primary aldosteronism through an Open Letter campaign.
- Advocate for improved responses through Open Letter campaignConducts an Open Letter campaign to mobilize support and urge stakeholders to develop more effective responses to primary aldosteronism.
- Advocate for improved responses to primary aldosteronismSupports the development of adequate responses to primary aldosteronism through an Open Letter campaign.
- Collect and share patient stories to improve care standardsCollects and disseminates patient experiences with primary aldosteronism to enhance understanding of the disease and advocate for improved diagnostic and treatment practices.
- Curate and maintain research database on primary aldosteronismMaintains a continuously updated database of scientific publications on primary aldosteronism, focusing on clinical signs, symptoms, and comorbidities related to excess aldosterone.
- Maintain a database of primary aldosteronism publicationsMaintains a database of publications on primary aldosteronism, focusing on signs, symptoms, and comorbidities associated with excess aldosterone, with ongoing updates as new research becomes available.
- Maintain a database of primary aldosteronism publicationsMaintains a database of publications on primary aldosteronism, focusing on signs, symptoms, and comorbidities associated with excess aldosterone, with ongoing updates as new research becomes available.
- Maintain a directory of specialized medical centers and specialistsMaintains a worldwide directory of specialized medical centers and primary aldosteronism specialists to help patients locate skilled physicians, with inclusion conditional upon review of credentials. The organization also reviews and removes medical centers from its directory upon confirmation of substandard practices or medical errors.
- Maintain a directory of specialized medical centers and specialistsMaintains a worldwide directory of specialized medical centers and primary aldosteronism specialists, with inclusion conditional upon review of credentials and removal upon confirmation of substandard practices or medical errors, to help patients locate skilled physicians.
- Operate global directory of primary aldosteronism specialistsMaintains a worldwide directory of physicians with expertise in primary aldosteronism, with inclusion based on credential review to help patients locate qualified specialists.
- Operate global directory of specialized medical centersMaintains a worldwide directory of medical centers specializing in primary aldosteronism, featuring institutions with dedicated staff and high case volumes, and removes centers found to have engaged in substandard care or medical errors.
-
-
Patient Storytelling & Peer Support Programs 2 activities
- Collect and share patient storiesCollects and shares patient stories to improve disease understanding and promote higher standards of care.
- Collect and share patient storiesCollects and shares patient stories to improve disease understanding and promote higher standards of care.
-
financials · form 990EZ · fy2022
the money
revenue
Total revenue$88K
Contributions & grants$88K100%
Program service revenue$00%
Investment income$410%
Other revenue$0
expenses
Total expenses$47K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits$0
Grants paid out$25
balance sheet
Total assets$90K
Cash—
Investments—
Liabilities—
Net assets$85K
2 years on record · 2021–2022 · YoY revenue +54.0%
leadership · form 990 part vii · fy2022
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Marianne Leenaerts | Director, Management Consultant | 40 | $40K |
board members · 4
- Deborah Kelly — Director
- Michael McGowan — Director, Principal Officer
- Rene Moreno — Director
- Tanya Hanner — Director
relationships · 22
who they work with
- AHA West Penn Hospital Partner — Listed as an AHA Certified Comprehensive Hypertension Center.
- Addenbrooke’s Hospital, Cambridge Partner — Listed as a medical center with expertise in hyperaldosteronism.
- Adrenal Center at Augusta University Partner — Medical center listed in the Foundation's directory for specialized care in primary aldosteronism
- Adrenal Center at Columbia University Irving Medical Center Partner — Medical center listed in the Foundation's directory for specialized care in primary aldosteronism
- American Heart Association Partner — The Primary Aldosteronism Foundation lists AHA Certified Hypertension Centers on its website.
- Amita Health Alexian Brothers Medical Center Partner — Listed as an AHA Certified Hypertension Practice Center.
- Boston Children’s Hospital Partner — Collaborates with the Center for Adrenal Disorders at Brigham and Women's Hospital, which is listed as a center of excellence.
- Brigham and Women’s Hospital Partner — Listed as a medical center with expertise in hyperaldosteronism.
- Carl Shapiro Center Partner — Listed as an AHA Certified Comprehensive Hypertension Center.
- Center for Hypertension at General University Hospital in Prague Partner — Medical center listed in the Foundation's directory for specialized care in primary aldosteronism
- Changi General Hospital Partner — Listed as a medical center with expertise in hyperaldosteronism.
- Cleveland Clinic Main Campus Partner — Listed as an AHA Certified Comprehensive Hypertension Center.
- Columbia University Hypertension Center Partner — Listed as an AHA Certified Comprehensive Hypertension Center.
- Comprehensive Hypertension Center at Boston Medical Center Partner — Medical center listed in the Foundation's directory for specialized care in primary aldosteronism
- Dana Farber Cancer Institute Partner — Collaborates with the Center for Adrenal Disorders at Brigham and Women's Hospital, which is listed as a center of excellence.
- Endocrinology & Metabolism Institute at Cleveland Clinic Partner — Medical center listed in the Foundation's directory for specialized care in primary aldosteronism
- Greenslopes Hospital Partner — Listed as a medical center with expertise in hyperaldosteronism.
- Hypertension Center at Cedars Sinai Partner — Medical center listed in the Foundation's directory for specialized care in primary aldosteronism
- Johns Hopkins Comprehensive Adrenal Center Partner — Listed as a medical center with expertise in hyperaldosteronism.
- King's Daughters Medical Center Nephrology Partner — Listed as an AHA Certified Hypertension Practice Center.
- Ludwig-Maximilians-Universität München Partner — Listed as a medical center with expertise in hyperaldosteronism.
- Princess Alexandra Hospitals Partner — Listed as a medical center with expertise in hyperaldosteronism.