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STUDENTS SUPPORTING BRAIN TUMOR RESEARCH

SCOTTSDALE, AZ · EIN 200345903 · Form 990 · FY2022 · NTEE G12 · Voluntary Health Associations · Small ($100K-$1M) · www.ssbtr.org
revenue
$421K
expenses
$226K
net assets
$212K
employees
0
program ratio
98%
mission · from form 990

SSBTR'S MISSION IS TO PROVIDE EDUCATION AND LEADERSHIP DEVELOPMENT OF OUR YOUTH, FURNISH A PLATFORM FOR THEM TO PLAY A PRINCIPLE ROLE IN EFFECTING POSITVE CHANGES IN THEIR COMMUNITIES, PROMOTE AWARENESS OF HOW COMMON BRAIN TUMORS ARE AS ONE OF THE LEADING CAUSES OF CANCER DEATHS AMONG THEIR PEERS AND ACT AS AN OUTREACH TO SUPPORT AFFECTED INDIVIDUALS AND THE THEIR FAMILIES. THE CENTERPIECE OF THIS STUDENT-RUN NONPROFIT IS ITS ANNUAL CURE-A-THON, WHICH SERVES AS A VEHICLE TOWARD RAISING SUPPORT FOR BRAIN TUMOR RESEARCH THROUGH SOLICITING DONATIONS AND ENHANCING COMMUNITY AND CORPORATE INVOLVEMENT.

profile · synthesized from sources

Students Supporting Brain Tumor Research (SSBTR) is a student-run nonprofit founded in 2002 that raises funds for brain tumor research. The organization primarily operates in Arizona, organizing walk-a-thons and other fundraising initiatives. SSBTR also provides educational and leadership development opportunities for students, promoting awareness of brain tumors and supporting affected individuals.

irs program accomplishments · form 990 part iii · fy2022

what they reported doing

Program narrative the organization filed with the IRS. Ordered by program spending.

  1. #1 primary $3K
    STUDENTS WERE EDUCATED IN NEUROSCIENCE FIELDS WHICH INCLUDE MEDICAL, RESEARCH LABS AND PHILANTHROPY. THESE ARE MONTHLY PROGRAMS STARTING IN AUGUST AND ENDING IN APRIL. SEVEN STUDENTS ARE ON THE BOARD OF DIRECTORS AND AN ADDITIONAL 50 STUDENTS ARE IN ATTENDANCE AT OUR MEETINGS.
named programs · 4 · from sources

what they call their work

Annual Walk-a-thon
A centerpiece fundraising event held in Scottsdale, AZ, and other locations, where students and community members walk to raise money and awareness for brain tumor research.
Community Outreach and Awareness
Promotes awareness of brain tumors as a leading cause of cancer deaths among youth and supports affected individuals and their families.
Medical Field Exposure
Offers students opportunities to observe live brain surgery, tour brain tumor research laboratories, and attend lectures from scientists.
Student Leadership Development
Provides opportunities for students to manage philanthropic activities, interact with companies and media, and meet with school administrators.
activities · 4 groups

what they do

  • Youth Career Exposure in Medicine & Science 5 activities
    • Educational Tours and Lectures
      Organizes educational experiences for students, including tours of medical facilities like a Proton Beam Radiation Unit and TGen, a lecture on radiation therapy, and an observation of live brain surgery at Barrow Neurological Institute.
    • Educational Tours and Lectures
      Organizes educational tours of medical facilities such as a Proton Beam Radiation Unit and TGen, and facilitates observations of live brain surgeries at Barrow. The organization also arranges lectures on radiation therapy by medical professionals.
    • Educational and Experiential Programs
      Organizes educational tours and lectures, including visits to a Proton Beam Radiation Unit, TGen, and observations of live brain surgery, to provide students and the public with insights into brain tumor treatment and research.
    • Facilitate educational experiences in brain tumor research and treatment
      Organizes tours and educational events for students at leading research and medical institutions, including TGen, the Proton Beam Radiation Unit, and live brain surgery observations at Barrow Neurological Institute, along with expert lectures such as one by Dr. Ahmed on radiation therapy.
    • Supports student engagement and leadership in brain tumor advocacy
      Engages students in leadership, philanthropy, and peer support by organizing educational and awareness activities, including tours of research and treatment facilities (e.g., TGen, Proton Beam Radiation Unit), observation of live brain surgeries at Barrow Neurological Institute, and lectures by medical experts such as Dr. Ahmed.
  • Youth Education & Peer Support Programs 4 activities
    • Student Support and Engagement
      Supports students fighting brain tumors by connecting them with peers and fostering leadership and philanthropy among youth. The organization also offers volunteer opportunities to students to support its activities.
    • Student Support and Engagement
      Supports students fighting brain tumors by connecting them with peers and fostering leadership and philanthropy among youth. The organization also offers volunteer opportunities to engage students in its activities.
    • Student Support and Engagement
      Supports students fighting brain tumors by connecting them with peers and fostering leadership and philanthropy among youth. The organization also offers volunteer opportunities to support its activities.
    • Support student engagement and leadership development for youth philanthropy
      Fosters youth leadership and philanthropy by connecting students affected by brain tumors with peer networks and involving them in organizational activities and events.
  • Community Event Calendar Management 1 activity
    • Public Information and Communication
      Maintains a calendar of events, provides updates on brain tumor research and organizational activities, and operates a contact form to respond to public inquiries.
  • Uncategorized 11 activities
    • Distribute funds to support brain tumor research
      Allocates 93% of funds raised to institutions conducting brain tumor research, including Barrow Neurological Institute, Phoenix Children's Hospital, the National Brain Tumor Society, and TGen.
    • Distributes raised funds to support brain tumor research
      Allocates 93% of funds raised to institutions conducting brain tumor research, including Barrow Neurological Institute, Phoenix Children's Hospital, the National Brain Tumor Society, and TGen.
    • Funding Brain Tumor Research Institutions
      Distributes a significant portion of funds raised (93%) to institutions such as Barrow Neurological Institute, Phoenix Children's Hospital, the National Brain Tumor Society, and TGen to directly support brain tumor research.
    • Fundraising for Brain Tumor Research
      Organizes annual walk-a-thons and cure-a-thons in Scottsdale, AZ, and at university campuses in Tucson and Tempe, to raise funds for brain tumor research. These events involve community and corporate participation, with over $2.6 million raised since 2002.
    • Fundraising for Brain Tumor Research
      Organizes annual walk-a-thons and "Cure-a-thon" events in Scottsdale, AZ, and at university campuses (University of Arizona, ASU, University of Arizona College of Medicine Phoenix) to raise donations for brain tumor research. These events have raised over $2.6 million since 2002, with 93% of funds distributed to institutions like Barrow Neurological Institute, Phoenix Children's Hospital, the National Brain Tumor Society, and TGen.
    • Fundraising for Brain Tumor Research
      Organizes annual walk-a-thons and cure-a-thons in Scottsdale, AZ, and at university campuses (University of Arizona, ASU, University of Arizona College of Medicine Phoenix) to raise donations for brain tumor research. These events have raised over $2.6 million since 2002, with 93% of funds distributed to institutions like Barrow Neurological Institute, Phoenix Children's Hospital, the National Brain Tumor Society, and TGen.
    • Maintain public event calendar and organize recognition events
      Manages a calendar of events to inform the public about organizational activities and hosts award ceremonies to recognize contributions and achievements.
    • Organize annual fundraising walk-a-thons and cure-a-thons
      Hosts annual walk-a-thon and cure-a-thon events in Scottsdale, AZ, and at universities including the University of Arizona, ASU, and the University of Arizona College of Medicine Phoenix, to raise funds and awareness for brain tumor research. The 2016 Phoenix/Scottsdale walk-a-thon drew over 3,000 students and raised over $200,000, contributing to a total of more than $2.6 million raised since 2002.
    • Organizes annual fundraising and awareness events (walk-a-thons and cure-a-thons)
      Hosts annual walk-a-thons and cure-a-thons in Scottsdale, AZ, and at universities including the University of Arizona, ASU, and the University of Arizona College of Medicine Phoenix campus to raise funds and awareness for brain tumor research. Events have drawn over 3,000 students and raised over $200,000 in a single year, with total donations exceeding $2.6 million since 2002.
    • Provides public communication and engagement infrastructure
      Maintains a contact form to respond to public inquiries and publishes updates on brain tumor research and organizational activities through a calendar of events and other communications.
    • Recognizes contributions through award ceremonies
      Organizes award ceremonies to recognize individuals or groups contributing to the organization’s mission.
financials · form 990 · fy2022
revenue
Total revenue$421K
Contributions & grants$420K100%
Program service revenue$00%
Investment income$4K1%
Other revenue$-3K
expenses
Total expenses$226K
Program expenses98%
Admin / overhead1%
Fundraising1%
Salaries & benefits$0
Grants paid out$218K
Largest expense lineFacilities
balance sheet
Total assets$212K
Cash$7K
Investments$205K
Liabilities$0
Net assets$212K
Liquid reserves11.3 mo
1 years on record · 2022–2022
leadership · form 990 part vii · fy2022

who runs it

board members · 13
  • ABBY OSTKE — STUDENT DIRECT
  • ADAM BURNS — STUDENT DIRECT
  • ADREINNE SCHECK PhD — BOARD MEMBER
  • AMUTHA RAJASUNDARUM — STUDENT DIRECT
  • AUTRIA ASHTIANI — STUDENT DIRECT
  • JESSE HIGGINS — BOARD MEMBER
  • MARTIN KAYE MD — BOARD MEMBER
  • MATTEO HUISH — STUDENT DIRECT
  • MIKAELA GIBSON — BOARD MEMBER
  • RON HIRSCH — Vice President
  • STEVE GLASSMAN — FOUNDER
  • VINESH KOTHARI — STUDENT DIRECT
  • WENDY KAYE MD — President
relationships · 18

who they work with

  • Amazon Partner — Receives a portion of purchases made through AmazonSmile.
  • Barrow Partner — Hosted a live brain surgery observation.
  • Barrow Neurological Institute Partner — Beneficiary of funds raised by SSBTR
  • Barrow Neurological Institute Partner — Recipient of distributed funds for brain tumor research.
  • Fry's Grocery Partner — Receives donations when supporters link their Fry's Grocery Club Card.
  • GoodSearch Partner — Receives payments for every search conducted using the GoodSearch engine.
  • GoodShop Partner — Receives a portion of purchases made through GoodShop at various establishments.
  • Mayo Hospital Partner — Hosted a Proton Beam Radiation Unit Tour and lecture on radiation therapy.
  • National Brain Tumor Society Partner — Beneficiary of funds raised by SSBTR
  • National Brain Tumor Society Partner — Recipient of distributed funds for brain tumor research.
  • Phoenix Children's Hospital Partner — Beneficiary of funds raised by SSBTR
  • Phoenix Children's Hospital Partner — Recipient of distributed funds for brain tumor research.
  • Saguaro High School Partner — Hosted a "Cure-A-Thon" event.
  • TGen Partner — Hosted a tour.
  • TGen Partner — Recipient of distributed funds for brain tumor research.
  • Translational Genomic Research Institute (TGen) Partner — Beneficiary of funds raised by SSBTR
  • University of Arizona Medical Research Partner — Beneficiary of funds raised by SSBTR
  • dedicated volunteer adults Partner — Volunteer adults work alongside students to support the organization's mission.