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SOUTHWEST AUTISM RESEARCH AND RESOURCE

PHOENIX, AZ · EIN 311496646 · Form 990 · FY2022 · NTEE H99 · Medical Research · Large ($10M-$50M) · www.autismcenter.org
revenue
$23.8M
expenses
$18.2M
net assets
$21.3M
employees
315
volunteers
793
program ratio
73%
mission · from form 990

TO ADVANCE RESEARCH AND PROVIDE A LIFETIME OF SUPPORT FOR INDIVIDUALS WITH AUTISM & THEIR FAMILIES.

profile · synthesized from sources

The Southwest Autism Research & Resource Center (SARRC) is an operational and research organization based in Arizona. It provides diagnostic services, early intervention, and ongoing support for children, teens, and adults with autism spectrum disorder (ASD). SARRC utilizes Applied Behavior Analysis (ABA) across its programs and conducts research to improve understanding and interventions for ASD.

irs program accomplishments · form 990 part iii · fy2022

what they reported doing

Program narrative the organization filed with the IRS. Ordered by program spending.

  1. #1 primary $10.58M
    CLINICAL SERVICES: FOLLOWING A FAMILY-CENTERED APPROACH, SARRC IS FOCUSED ON ASSISTING FAMILIES ON THEIR JOURNEY ONCE A CHILD IS DIAGNOSED WITH ASD. SARRC'S CLINICAL MODEL IS GROUNDED IN APPLIED BEHAVIOR ANALYSIS WITH A PARTICULAR FOCUS ON NATURALISTIC BEHAVIORAL INTERVENTIONS IN INCLUSIVE ENVIRONMENTS (E.G. AT HOME, IN SCHOOL, ON THE JOB AND IN THE COMMUNITY). EACH OF OUR PROGRAMS, CLASSES AND TRAININGS ARE GUIDED BY BEST-PRACTICE MODELS; THE MOST CURRENTLY AVAILABLE SCIENCE; IMPROVING QUALITY OF LIFE AND PRODUCING MEANINGFUL OUTCOMES; AND THE INDIVIDUALIZED NEEDS OF THE CHILDREN, ADOLESCENTS, ADULTS AND FAMILIES WE SERVE.
  2. #2 $834K
    RESIDENTIAL TRANSITION ACADEMY: THE FIRST PLACE AZ TRANSITION ACADEMY OPERATED BY THE CENTER, IS A TWO-YEAR INTENSIVE AND COMPREHENSIVE COMMUNITY BASED STATE-OF-THE-ART PROGRAM DESIGNED TO TRANSITION YOUNG ADULTS WITH AUTISM TO LIVING INDEPENDENTLY IN THE COMMUNITY. THROUGH A PARTNERSHIP WITH FIRST PLACE AZ AND THE CENTER, STUDENTS LIVE IN THEIR OWN APARTMENTS WITHIN A MULTI-GENERATIONAL APARTMENT COMPLEX.
named programs · 13 · from sources

what they call their work

Autism Research Opportunities
Engages in research to understand causes of autism, identify better interventions, and improve quality of life for those affected by ASD.
Children's Services
Offers early intervention and other services for children with autism, utilizing Applied Behavior Analysis (ABA).
Children’s Services
Offers early intervention and treatment programs for children with autism using applied behavior analysis (ABA)
Community School Campus
An inclusive, high-quality preschool program.
Community Services
Partnerships and services aimed at integrating individuals with autism into inclusive communities.
Comprehensive Services
Offers intensive, individualized ABA treatment programs across home, school, and community settings
Diagnostic Services
Provides diagnostic evaluations for children and adults to identify autism and related developmental differences
Family Services
Provides training, support, and resources for families of individuals with autism
Focused, Short-Term Intervention
Delivers targeted, time-limited ABA-based services to address specific skill deficits
JumpStart® Program
State-of-the-art training program for parents of children with autism to build knowledge and support skills
JumpStart® program
Provides critical information, support, and training for parents of children with autism.
Self-Advocate Advisory Board (SAAB)
Group of autistic self-advocates advising SARRC on research, programs, and communications
Teen and Adult Services
Provides services for individuals ages 14+ focusing on independence, employment, and life skills
activities · 10 groups

what they do

  • Autism & Neurodiversity Research and Support Services 10 activities
    • Autism Diagnostic Services
      Provides diagnostic evaluations for autism spectrum disorder in children aged 7 and younger, using a three-part process including interviews, observational assessments, and questionnaires. Families receive a diagnostic report and guidance on next steps for treatment.
    • Autism Diagnostic Services
      Provides diagnostic evaluations for autism spectrum disorder in children aged 7 and younger, using a three-part process including interviews, observational assessments, and questionnaires. Families receive a diagnostic report and guidance on next steps.
    • Autism Diagnostic Services
      Provides diagnostic evaluations for autism spectrum disorder in children aged 7 and younger, using a three-part process including interviews, observational assessments, and questionnaires. Families receive a diagnostic report and guidance on next steps for treatment.
    • Autism Research
      Conducts innovative research and provides evidence-based practices for individuals with autism and their families, operating facilities like the Colonel Harland D. Sanders Center for Autism Studies.
    • Autism Research and Evidence-Based Practices
      Conducts innovative research, provides evidence-based practices, and disseminates training to build inclusive communities for individuals with autism and their families, operating facilities like the Colonel Harland D. Sanders Center for Autism Studies.
    • Autism Research and Evidence-Based Practices
      Conducts innovative research, provides evidence-based practices, and disseminates training to build inclusive communities for individuals with autism and their families.
    • Autism Research and Resource Facilities
      Conducts innovative research, provides evidence-based practices, and operates an 18,000-square-foot Campus for Exceptional Children and a 10,000-square-foot Colonel Harland D. Sanders Center for Autism Studies, which serve as models for research and resource facilities.
    • Conduct autism diagnostic evaluations
      Provides diagnostic services for autism spectrum disorder, particularly for children aged 7 and younger, using a three-part assessment process: developmental history interview, direct observational assessment (in-person or remote), and at-home questionnaires. Families receive a diagnostic report and guidance on next steps for treatment.
    • Lead autism research and evidence-based practice development
      Conducts innovative, cutting-edge research on autism and disseminates evidence-based practices to build inclusive communities. Operates large-scale facilities—the Campus for Exceptional Children and the Colonel Harland D. Sanders Center for Autism Studies—as hubs for research and resource development.
    • Research and Evidence-Based Practices
      Conducts innovative research and provides evidence-based practices for individuals with autism and their families, operating facilities that serve as models for research and resource centers.
  • Charity Galas and Auctions 5 activities
    • Community Engagement and Fundraising Events
      Organizes and hosts various fundraising and awareness events, including the Annual Community Breakfast, Swirl, Sip & Savor, and the YES Day Walk for Autism, often with volunteer support.
    • Community Engagement and Fundraising Events
      Organizes annual events such as the Annual Community Breakfast, Swirl, Sip & Savor, and the YES Day Walk for Autism, which serve as premier fundraising and awareness events, often supported by volunteers.
    • Community Engagement and Fundraising Events
      Organizes annual fundraising and awareness events such as the Annual Community Breakfast, Swirl, Sip & Savor, and the YES Day Walk for Autism, often with volunteer support for operations.
    • Community Fundraising and Awareness Events
      Hosts major fundraising events such as the Annual Community Breakfast and Swirl, Sip & Savor, and organizes the YES Day Walk for Autism for fundraising and awareness.
    • Host annual fundraising and awareness events
      Organizes major annual events including the Annual Community Breakfast, YES Day Walk for Autism, and Swirl, Sip & Savor (biennial), which serve as key fundraising and community engagement opportunities to support autism services and awareness.
  • General Volunteer Support Services 5 activities
    • Engage volunteers in program and event support
      Organizes volunteer opportunities for employees, corporate groups, and community members to support campus maintenance, preparation of educational materials, and event operations for programs like YES Day and the Annual Community Breakfast.
    • Volunteer Engagement and Event Support
      Organizes volunteer shifts for campus maintenance, preparation of educational materials, and support for major fundraising events like the Annual Community Breakfast and YES Day for Autism.
    • Volunteer Management and Support
      Organizes volunteer shifts for campus maintenance, preparation of educational materials for therapists, and event operations for fundraising events like the Annual Community Breakfast and YES Day for Autism.
    • Volunteer Program Management
      Organizes volunteer shifts for campus maintenance, preparation of educational materials for therapists, and engages corporate volunteer groups for classroom material preparation for the Community School.
    • Volunteer Program Management
      Organizes volunteer shifts to support campus maintenance, preparation of educational materials for therapists, and event operations for fundraising and awareness events.
  • School-Based Youth Mentoring Programs 5 activities
    • Teen Mentorship Program
      Recruits teen mentors to support participants in the PEERS Program and Community Works program, fostering leadership and inclusion.
    • Teen Mentorship Programs
      Recruits teen mentors to support participants in the PEERS Program and Community Works program, fostering leadership and inclusion.
    • Teen Mentorship and Inclusion Programs
      Recruits teen mentors to support participants in the PEERS Program and Community Works program, fostering leadership and inclusion for individuals with autism.
    • Teen Mentorship and Inclusion Programs
      Recruits teen mentors to support participants in the PEERS Program and Community Works program, fostering leadership and inclusion.
    • Teen Mentorship and Inclusion Programs
      Recruits teen mentors to support participants in the PEERS Program and Community Works program, fostering leadership and inclusion for individuals with autism.
  • On-Site Preschool Operation 4 activities
    • Inclusive Preschool Operations
      Operates onsite preschools, offering a 50% tuition discount to employee families, and launches inclusive, high-quality preschool campuses through start-up funding.
    • Inclusive Preschool Operations
      Operates onsite preschools, including inclusive, high-quality campuses, and offers a 50% tuition discount to employee families.
    • Inclusive Preschool Operations
      Operates onsite preschools, including inclusive, high-quality campuses, and offers a 50% tuition discount to employee families.
    • Operate inclusive preschool campuses
      Runs onsite preschools across multiple campuses in Arizona, including Phoenix, Scottsdale, Tempe, Mesa, and Tucson, with start-up funding to launch new high-quality, inclusive preschool programs. Offers a 50% tuition discount to employee families.
  • In-Home Habilitation & Life Skills Support for Autism 4 activities
    • Therapeutic Resource Provision
      Provides educational games, books, therapeutic tools, and classroom supplies to support communication, social skills, and daily living for individuals with autism through its Home and Community Based Services program, utilizing gift cards and in-kind donations for client therapies and individualized goals.
    • Therapeutic Resource Provision
      Provides educational games, books, therapeutic tools, and classroom supplies to support communication, social skills, and daily living for individuals with autism through its Home and Community Based Services program, utilizing gift cards and in-kind donations.
    • Therapeutic Resource Provision
      Provides educational games, books, therapeutic tools, and classroom supplies to support communication, social skills, and daily living for individuals with autism through its Home and Community Based Services program, utilizing gift cards and in-kind donations for client resources.
    • Therapeutic and Educational Resource Provision
      Provides educational games, books, therapeutic tools, and classroom supplies to support communication, social skills, and daily living for individuals with autism through its Home and Community Based Services program, utilizing gift cards and in-kind donations for client needs.
  • Applied Behavior Analysis (ABA) Therapy 3 activities
    • Applied Behavior Analysis (ABA) Services
      Provides short-term focused and comprehensive applied behavior analysis (ABA) services for children, teens, and adults with autism, delivered in home and community settings.
    • Applied Behavior Analysis (ABA) Services
      Provides short-term focused and comprehensive applied behavior analysis (ABA) services for children, teens, and adults with autism, delivered in home and community settings.
    • Provide applied behavior analysis (ABA) services
      Delivers short-term focused and comprehensive ABA-based services for children, teens, and adults with autism, including those aged 14+, in home and community settings. Services are part of a lifetime of supports offered to individuals with autism and their families.
  • Autism Family & Peer Support Groups 3 activities
    • Deliver family and community capacity-building programs
      Provides week-long intensive training for families of children with autism in rural or remote areas, offers scholarships for the JumpStart® parent training program, and recruits teen mentors to support participants in the PEERS Program and Community Works, promoting leadership and inclusion.
    • Family Training and Support Programs
      Delivers week-long intensive training for families of children with autism in rural or remote areas and offers scholarships for families to enroll in the JumpStart® program, which provides parent training and support.
    • Family Training and Support Programs
      Delivers week-long intensive training for families of children with autism in rural or remote areas and offers scholarships for families to enroll in the JumpStart® program, which provides parent training and support.
  • Holiday Gift and Family Support Programs 3 activities
    • Deliver holiday and in-kind support programs
      Runs Operation Santa Claus annually during November and December to provide holiday support to families in need. Accepts in-kind donations from a published wish list and uses gift cards to purchase science kits, toys, books, games, and therapeutic supplies for clients aged 15 months to 12 years, as well as materials supporting executive functioning and independent living for teens and adults.
    • Holiday Support Program
      Runs the annual Operation Santa Claus program during November and December to provide holiday support to families in need.
    • Holiday Support Program
      Runs the annual Operation Santa Claus program during November and December to provide holiday support to families in need.
  • Autism-Focused Community Recreation Events 2 activities
    • Autism Awareness and Acceptance Initiatives
      Collaborates with local businesses and community partners across Arizona to celebrate Autism Awareness & Acceptance Month and co-launched Arizona's first specialty autism license plate to generate funding for autism programs and services.
    • Expand organizational and community capacity for autism services
      Employs the largest number of Board Certified Behavior Analysts (BCBAs) in a single organization in Arizona (as of 2021) and co-launched Arizona’s first specialty autism license plate to generate sustainable funding for autism programs and services.
financials · form 990 · fy2022
revenue
Total revenue$23.78M
Contributions & grants$11.70M49%
Program service revenue$11.93M50%
Investment income$398K2%
Other revenue$-246K
expenses
Total expenses$18.21M
Program expenses73%
Admin / overhead18%
Fundraising8%
Salaries & benefits$13.91M
Grants paid out$180K
Largest expense lineCompensation
balance sheet
Total assets$23.15M
Cash$2.25M
Investments$7.06M
Liabilities$1.90M
Net assets$21.26M
Liquid reserves6.1 mo
3 years on record · 2020–2022 · YoY revenue +42.7%
leadership · form 990 part vii · fy2022

who runs it

paid leadership · 10
NameTitleHours/wkCompensation
DANIEL OPENDEN PRESIDENT & CEO 40 $326K
CHRISTOPHER SMITH CHIEF SCIENCE OFFICER 40 $194K
AMY KENZER CHIEF OPERATING OFFICER 40 $172K
MAUREEN JORDAN CHIEF DEVELOPMENT OFFICER 40 $150K
BRIAN SHAW DIRECTOR OF FINANCE 40 $130K
PAIGE RAETZ DIRECTOR OF CLINICAL SERVICES 40 $129K
RACHEL ANDERSON DIRECTOR OF CLINICAL SERVICES 40 $119K
NICOLE JAMES DIRECTOR OF RESEARCH 40 $115K
WADE NEWHOUSE DIRECTOR OF INFORMATION TECHNOLOGY 40 $112K
ANDREA LEVY CFO (THRU 5/22) 40 $90K
board members · 15
  • CHADWICK CAMPBELL — MEMBER
  • CHRISTINE WILKINSON PHD — CHAIR
  • DENISE RESNIK — EMERITUS MEMBER
  • GARY JABURG — EMERITUS MEMBER
  • GREGORY BERNOSKY — MEMBER
  • HOWARD SOBELMAN — EMERITUS MEMBER
  • JASON LATTIN — MEMBER
  • JULIE ALPERT — MEMBER
  • KEN MCELROY — MEMBER
  • KIM SHEPARD — MEMBER
  • MICHAEL BILL — MEMBER
  • MONICA COURY — MEMBER
  • NEIL BALTER — MEMBER
  • NICOLE GOODWIN — VICE CHAIR
  • PAIGE ROTHERMEL — MEMBER
relationships · 32

who they work with

  • Amazon Partner — Partner for in-kind donations through dedicated wish lists for multiple SARRC programs.
  • American Express Partner — Partnership enabling Members Give Online donations via American Express Card or Membership Rewards points redemption.
  • Android Partner — Accepted as a source of gift cards used to support teen and adult services.
  • Apple Partner — Accepted as a source of gift cards used to support teen and adult services.
  • Arizona Tuition Connection Partner — Partnership enabling Arizona taxpayers to direct tuition tax credit contributions to support families at SARRC’s Community School.
  • Behavior Analyst Certification Board Government — Follows certification standards from the Behavior Analyst Certification Board (BACB) for BCBAs and RBTs.
  • Blackwood Family Foundation Partner — Silver-level Multiyear Visionary Partner supporting SARRC programs
  • Candid Network — Recognized with Candid Platinum Seal of Transparency.
  • Charity Navigator Network — Rated by Charity Navigator as a participating nonprofit organization.
  • Director of Community Engagement Partner — Point of contact for event sponsorship and partnership inquiries.
  • Evite Partner — Collaboration allowing users to add donation buttons to invitations, with proceeds benefiting SARRC.
  • Family Resource Team Partner — Internal team responsible for managing mentorship program inquiries and placements.
  • First Place® AZ Partner — Co-launched Arizona's specialty autism license plate to fund programs for individuals with autism and other neurodiversities.
  • Fry’s Food Stores Partner — Participation in Fry’s Community Rewards program, enabling shoppers to direct a portion of spending to SARRC.
  • Gemini Exchange Partner — Platform through which SARRC accepts cryptocurrency donations, including Bitcoin and other supported tokens.
  • Global Roofing Group Partner — Platinum-level Multiyear Visionary Partner supporting SARRC programs
  • Goodmans Interior Structures Partner — Hosts SARRC's Tucson Campus within its building.
  • Minted.com Partner — Partnership where 10% of each purchase made with a designated promo code is donated to SARRC.
  • Paiute Neighborhood Center Partner — Hosts SARRC's Scottsdale Paiute Campus within its facility.
  • Papa John’s Pizza Partner — Collaboration providing a discount to customers using a promo code, with 10% of proceeds supporting SARRC.
  • Phoenix Autism Center – Justin & Breanne Hartman Partner — Bronze-level Multiyear Visionary Partner supporting SARRC programs
  • Serenity Mitchell Partner — Volunteer & Events Coordinator responsible for managing volunteer engagement and event coordination.
  • St. James Episcopal Church Partner — Hosts SARRC's Community School-Tempe within its facility.
  • Target Partner — Accepted as a source of gift cards used to purchase supplies for children's services.
  • The SPEAK Center for Language and Learning Partner — Bronze-level Multiyear Visionary Partner supporting SARRC programs
  • Valley of the Sun United Way Network — SARRC is a designated Community Partner, allowing donors to direct United Way contributions using a specific code.
  • Walmart Partner — Accepted as a source of gift cards used to purchase supplies for children's services.
  • Weitz Family Foundation Partner — Platinum-level Multiyear Visionary Partner supporting SARRC programs
  • Willmeng Construction, Inc. Partner — Bronze-level Multiyear Visionary Partner supporting SARRC programs
  • community partners Partner — Partners with community organizations across Arizona to promote autism awareness and acceptance.
+ 2 more