named programs · 9 · from sources
what they call their work
AZ Partners in Leadership
An innovative leadership training program that teaches individuals with disabilities and parents of children with disabilities to be community leaders and to affect systems and policy change at local, state, and national levels.
Grandparents Support Group
Support group for grandparents of children with special needs.
LEAP (Leadership Education Advocacy Partnership)
A self-advocacy development project that provides reimbursement for registration fees and accommodations for individuals to attend trainings, conferences, and workshops.
New Parent Support Group
Support group for parents of infants staying long term in Neonatal Intensive Care Units.
S.A.P.P.H.l.R.E. Project
Provides information and referral services for families in Southern Arizona, with an office in Nogales, AZ.
Sibshop
A workshop providing information and support to siblings (ages 7-14) of children with special needs, based on a national model.
Spanish-speaking parent support group for families with children with Down syndrome
A support group for Spanish-speaking families with children with Down syndrome, which published a book about personal experiences.
Special Needs Adoption Program
Program in conjunction with the Arizona's Children Association.
Welcome Parent Program
Provides individual support and informational materials from community resources to new parents of children with special needs.
activities · 5 groups
what they do
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Parent-to-Parent Support for Special Needs 12 activities
- Facilitate peer support networks for families of children with special needsConnects parents of children with special needs with experienced parent volunteers to build supportive relationships; also supports specialized groups such as grandparents of children with special needs and Spanish-speaking parents of children with Down syndrome.
- Facilitate peer support networks for families of children with special needsIdentifies parents of children with special needs and connects them with trained, experienced parent volunteers to build supportive relationships; also supports specialized groups such as New Parent Support Groups, Grandparents Support groups, and Spanish-speaking parent groups.
- Operate Sibshop support program for siblings of children with special needsRuns Sibshop, a workshop and support group that provides information, peer connection, and emotional support to siblings of children with special needs, extended throughout Southern Arizona via local staff.
- Operate Sibshop support program for siblings of children with special needsRuns Sibshop, a workshop and support group that provides information, peer connection, and support to siblings of children with special needs, extended throughout Southern Arizona via local staff.
- Operate Sibshop support program for siblings of children with special needsRuns Sibshop, a workshop and support group that provides information, peer connection, and support to siblings of children with special needs, extended throughout Southern Arizona via local staff implementation.
- Parent-to-Parent Support NetworkIdentifies parents of children with special needs and connects them with experienced parent volunteers to build a support network, offering friendship, information, and compassionate service. This network includes a statewide presence of several hundred trained parent volunteers.
- Peer Support for Parents of Children with Special NeedsIdentifies and connects parents of children with special needs with experienced parent volunteers to build a support network, offering friendship, information, and compassionate service.
- Provide parent-to-parent support and mentorshipIdentifies parents of children with special needs and connects them with trained, experienced parent volunteers to build supportive relationships, including through the "Welcome Parent" program and specialized groups such as Spanish-speaking and grandparents' support groups.
- Sibshop ProgramOperates Sibshop, a support group and workshop program for siblings of children with special needs, providing information and extending its reach throughout Southern Arizona.
- Sibshop ProgramOperates Sibshop, a support group and workshop providing information to siblings of children with special needs, extended throughout Southern Arizona.
- Specialized Support GroupsHelped form and supports specialized groups such as a Grandparents Support group for grandparents of children with special needs and a Spanish-speaking parent support group for families with children with Down syndrome.
- Specialized Support ProgramsImplements various specialized support programs including a "Welcome Parent" Program, a "New Parent Support Group" for parents of infants in NICUs, a "Special Needs Adoption Program," a Grandparents Support group, and a Spanish-speaking parent support group for families with children with Down syndrome.
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Foster and Kinship Family Support Services 9 activities
- Deliver information, referral, and advocacy resources to familiesCollects, organizes, and distributes information to help families advocate for their needs, including through the S.A.P.P.H.I.R.E. Project which funded an office in Nogales, AZ to serve Southern Arizona families.
- Education Coordination and SupportProvides educational support and resources to families, including contracting with the Arizona Department of Education to implement the State Improvement Grant and providing an Education Coordinator at Children’s Clinics for Rehabilitative Services.
- Education Coordination and SupportProvides educational support and resources to families, including contracting with the Arizona Department of Education for state improvement grants and providing an Education Coordinator at Children’s Clinics for Rehabilitative Services.
- Information and Referral ServicesCollects, organizes, and distributes information to help families advocate for their needs, including providing information and referral services through projects like S.A.P.P.H.l.R.E.
- Information and Referral ServicesCollects, organizes, and distributes information to help families advocate for their needs, including providing information and referral services through projects like S.A.P.P.H.l.R.E. in Southern Arizona.
- Parent Training and Information Center NetworkOperates as a partner in the Arizona Parent Training and Information Center network, providing education support, trainings, and workshops across nine counties in Southern Arizona.
- Provide educational support and training across Southern ArizonaContracts with state and local agencies to deliver education coordination services, trainings, and workshops; serves families in clinics and schools, and operates as part of the Arizona Parent Training and Information Center network across nine counties.
- Provide information, referral, and advocacy resources to familiesCollects, organizes, and distributes information to help families navigate systems and advocate for their needs, including through the S.A.P.P.H.I.R.E. Project which funded an office in Nogales, AZ to serve Southern Arizona families.
- Provide information, referral, and educational support servicesCollects, organizes, and distributes information to help families advocate for their children; offers educational support, workshops, and resources through staff positions in clinics and contracts across nine counties in Southern Arizona, including the S.A.P.P.H.I.R.E. Project and Arizona Parent Training and Information Center network.
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Youth Civic Leadership Development 7 activities
- Deliver leadership and advocacy training for community changeOffers leadership development programs such as "Partners in Leadership" and the LEAP project, which train individuals—especially parents and self-advocates—to become community leaders and drive systems and policy change at local, state, and national levels, including financial support for training participation.
- Deliver leadership and advocacy training programsOffers leadership development programs such as "Partners in Leadership" and LEAP, which train individuals—including parents and self-advocates—to become community leaders and effect systems and policy change at local, state, and national levels, including financial support for training participation.
- LEAP Self-Advocacy Development ProjectManages the LEAP (Leadership Education Advocacy Partnership) self-advocacy development project, which reimburses individuals for training, conference, and workshop fees and accommodations.
- Leadership Training for Community AdvocacyProvides leadership training through programs like "Partners in Leadership" and "Partners in Policymaking" to teach individuals to become community leaders and effect systems and policy change at local, state, and national levels.
- Partners in Leadership/Policymaking ProgramProvides leadership training through the "Partners in Leadership" program, teaching individuals to become community leaders and effect systems and policy change at local, state, and national levels. This includes coordinating the statewide Partners in Policymaking Project.
- Provide leadership and self-advocacy training for community membersOffers leadership development programs including "Partners in Leadership" and the LEAP project, which trains individuals to become community leaders, affect systems and policy change, and supports self-advocacy through training reimbursements.
- Self-Advocacy Development Project (LEAP)Manages the LEAP (Leadership Education Advocacy Partnership) self-advocacy development project, which reimburses individuals for training, conference, and workshop fees and accommodations.
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Professional Education for Special Needs Family Support 5 activities
- Collaborate with professionals across sectors to improve systemsWorks with professionals in education, healthcare, child protection, law enforcement, and public policy to improve their understanding and effectiveness in serving children with special needs and their families.
- Collaborate with professionals across sectors to improve systemsEngages professionals in education, healthcare, child protection, law enforcement, and public policy to enhance their understanding and effectiveness in supporting children with special needs and their families.
- Professional Development and CollaborationInteracts with professionals in various fields (education, healthcare, child protection, law enforcement, public policy) to enhance their understanding and effectiveness in caring for children with special needs and their families.
- Professional Training and CollaborationInteracts with professionals in education, healthcare, child protection, law enforcement, and public policy to enhance their understanding and effectiveness in caring for children with special needs and their families.
- Train parents and professionals to support children with special needsTrains experienced parents to provide peer support and also engages professionals in education, healthcare, child protection, law enforcement, and public policy to improve their effectiveness in serving children with special needs and their families.
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Uncategorized 7 activities
- Life Transition SupportAssists children, young adults, and family members through various life transitions.
- Support families during critical life transitionsOffers targeted programs such as New Parent Support Groups for parents of infants in NICUs, a Welcome Parent Program, and a Special Needs Adoption Program to assist children, young adults, and families during key developmental and systemic transitions.
- Support families through life transitionsProvides direct assistance to children, young adults, and family members as they navigate key life transitions.
- Support families through life transitions and specialized programsAssists children, young adults, and families during critical life transitions through targeted programs such as NICU parent support groups, special needs adoption services, and outreach initiatives for Native American and underserved communities.
- Support for Life TransitionsAssists children, young adults, and family members through various life transitions.
- Train and deploy parent leaders for community serviceTrains experienced parents to serve as mentors and support providers, equipping them to offer friendship, information, and compassionate service to other families navigating special needs systems.
- Train and engage parent leaders to support other familiesTrains experienced parents to provide friendship, information, and compassionate support to other families, expanding the organization’s reach through volunteer networks and leadership development.
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financials · form 990 · fy2022
revenue
Total revenue$284K
Contributions & grants$284K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$284K
Program expenses84%
Admin / overhead14%
Fundraising3%
Salaries & benefits$167K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$283K
Cash$282K
Investments$0
Liabilities$2K
Net assets$281K
Liquid reserves11.9 mo
3 years on record · 2020–2022 · YoY revenue -12.1%
leadership · form 990 part vii · fy2022
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| LENIA KALLIS | EXECUTIVE DIRECTOR | 40 | $64K |
board members · 8
- ANA NYGREN — TREASURER
- ANNABEL RATLEY — SECRETARY
- BILL ALLAIRE — PRESIDENT
- IRENE MACLEAN — DIRECTOR
- JILL MARTINDALE — DIRECTOR
- MJ DEMETRAS — VICE-PRESIDENT
- NELLIE SPRUNT — DIRECTOR
- PATSY CONKLIN — DIRECTOR
relationships · 17
who they work with
- AZ Department of Health Services Funder — Received funding for a Parent Resource Specialist at the Children’s Clinics for Rehabilitative Services.
- AZ Partners in Leadership Partner — Collaborative program providing leadership training for community advocacy and systems change.
- Arizona Center for Disability Law Partner — Collaborated with Arizona Center for Disability Law on a grant from The Arizona Coalition for Family Support and Self-Determination.
- Arizona Department of Economic Security, Division of Developmental Disabilities Funder — Primary funding source for parent-to-parent support since the program's beginning.
- Arizona Department of Economic Security’s Division of Developmental Disabilities Funder — Receives support through a contract.
- Arizona Department of Education Government — Became a contractor for the Arizona Department of Education to implement the State Improvement Grant.
- Arizona Department of Health Services, Bureau of Women’s and Children’s Health, Office for Children with Special Health Care Needs Funder — Receives support through the Title V Block Grant (B04MC21387).
- Arizona Developmental Disability Planning Council Funder — Awarded a contract for the LEAP (Leadership Education Advocacy Partnership) self-advocacy development project.
- Arizona Early Intervention Programs Partner — Conducted a "Welcome Parent" Program in conjunction with Arizona Early Intervention Programs.
- Arizona’s Children Association Partner — Provided a "Special Needs Adoption Program" in conjunction with the Arizona’s Children Association.
- Children’s Clinics for Rehabilitative Services Partner — Housed at the Children’s Clinics for Rehabilitative Services and contracted with them for an Education Coordinator.
- Enhancing Arizona’s Parent Networks group Partner — Involved with this statewide group that provides trainings for families on special education.
- Maternal and Child Health Bureau, HRSA Funder — Receives support through the Title V Block Grant (B04MC21387).
- People First of Arizona Partner — Collaborated with People First of Arizona on a grant from The Arizona Coalition for Family Support and Self-Determination.
- Raising Special Kids Partner — Received federal funding through a sub-contract with Raising Special Kids to fund an Education Coordinator.
- The Arizona Coalition for Family Support and Self-Determination Funder — Received funding from this grant in collaboration with other organizations.
- U of A Partner — Collaborated with U of A on a grant from The Arizona Coalition for Family Support and Self-Determination.