what they reported doing
Program narrative the organization filed with the IRS. Ordered by program spending.
- #1 primary $10KEducational Activities: hosted webinars and events dedicated to increasing the number of patients receiving effective pain care, this program accomplishes this by giving patients, caregivers, and health professionals practical information, and iPain Summit activities topics include understanding insurance, genetics, test results, etc.
- #2 $352KAssistance program: to patients, caregivers, and similar projects by other organizations, patient mentoring, patient advocates at medical appointments, assists patients in finding providers specialized in their disease. The foundation provides under-insurance patients with durable medical equipment, a quilt program, etc.
what they call their work
what they do
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Fundraising & Awareness for Neurodegenerative Diseases 2 activities
- Fundraising for Chronic Pain SupportCoordinates fundraising events, such as the annual Comic Pain Relief fundraiser, to support education, leadership training, and support projects for chronic pain patients with neurological conditions.
- Host annual fundraising events for patient support and trainingOrganizes annual fundraising events, including "Comic Pain Relief," to support education, leadership training, and support projects for chronic pain patients with neurological conditions.
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Educator and Professional Recognition Awards 2 activities
- Recognition and Advocacy AwardsRecognizes exceptional individuals through four award categories (Patient Advocacy, Caregiver Provider, Media) for their commitment to assisting and advocating for people with chronic pain diseases, including those with neuropathy.
- Recognize advocates and caregivers through annual awardsAdministers an annual awards program with four categories—Patient Advocacy, Caregiver Provider, Media, and others—to honor individuals who demonstrate exceptional commitment to supporting and advocating for people with chronic pain. Award recipients include a 2022 Patient Advocacy awardee for neuropathy advocacy, a Caregiver Provider awardee for long-term care services, and a Media awardee for national/international coverage of chronic pain.
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Uncategorized 3 activities
- Compile medical information on chronic pain conditionsCompiles lists of chronic conditions involving pain to support patient education and awareness efforts.
- Educational Programs for Chronic PainProvides free educational programs to chronic pain patients, caregivers, and medical professionals, including an annual summit focused on multi-modality and holistic treatment of chronic pain.
- Provide free educational programs for chronic pain patients and professionalsOffers free educational programs targeting chronic pain patients, caregivers, and medical professionals, including multi-modality and holistic treatment approaches. Hosted the 13th Annual iPAIN Summit on November 14, 2020, as part of this initiative.
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the money
who runs it
- Glen Shurtz — Director
- Jim Ingle Jr — Director
- Ken Taylor — Vice President & Executive Director
- Marbeth Levy — Director
who they work with
- Guidestar.org Government — Source for required IRS tax documentation.
- Pain News Network Partner — Recognized as an iPain Hero of Hope recipient in 2022 for media coverage of chronic pain.
- St. Jude Medical Neuromodulation Division Partner — Consults with St. Jude Medical Neuromodulation Division on pain-related initiatives.