named programs · 4 · from sources
what they call their work
Clinical Trials Advocacy Programs
Assists patients in finding and enrolling in relevant clinical trials, aiming to increase the percentage of cancer patients participating in trials.
Exon 20 Group
An international research consortium focused on battling rare EGFR exon 20 insertion and HER2 insertion mutations in non-small cell lung cancer and other cancers.
Personalized Medicine Cancer Case Navigation Programs
Provides individualized guidance and information to late-stage cancer patients regarding diagnostic and personalized treatment options, including cutting-edge anticancer drugs and clinical trials.
Remission CoachSM
A clinical trials search engine designed to empower patients, physicians, advocates, and researchers with enhanced clinical trials information, communication, analysis, and access.
activities · 3 clusters
what they do
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Cancer Research Infrastructure & Advocacy 6 activities
- Cancer Research Funding AdvocacySpearheaded a $10 million appropriation through the State Legislature for cancer researchers and medical centers statewide in 1998.
- Cancer Research Funding AdvocacySpearheaded a $10 million appropriation through the State Legislature for cancer researchers and medical centers statewide in 1998.
- Cancer Research Institute FundingFounding Trustees contributed over $150,000 to laboratories and the Babette ("Batya") Rosen Lobby at the ASU Cancer Research Institute, and the CEO underwrote a $25,000 Cancer Research Laboratory at ASU-CRI.
- Philanthropic support for cancer research infrastructureProvided foundational financial support for cancer research facilities, including over $150,000 from Founding Trustees to laboratories and the Babette Rosen Lobby at ASU Cancer Research Institute, and a $25,000 underwritten cancer research laboratory by the CEO.
- State-Level Cancer Research Funding AdvocacySpearheaded a $10 million appropriation through the State Legislature for cancer researchers and medical centers statewide in 1998.
- State-level cancer research advocacy and funding initiativesSpearheaded a $10 million legislative appropriation in 1998 for cancer researchers and medical centers across Arizona, demonstrating sustained advocacy for public investment in cancer research.
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Cancer Support Groups & Peer Networks 4 activities
- Personalized Cancer Patient Advocacy and Case ManagementProvides direct patient navigation, personalized information services, and case management for cancer patients, including those with Stage IV cancer. This involves reviewing medical records, identifying strategic treatment options (standard therapies, clinical trials, compassionate use), and offering recommendations for medical teams and strategic roadmaps for discussion with physicians. Services are available 24/7 and cover a wide range of cancers.
- Personalized Cancer Patient Advocacy and Case ManagementProvides direct patient navigation and personalized information services to Stage IV cancer patients, including recommendations for medical teams, strategic roadmaps with clinical trial options, and information on FDA-approved and experimental treatments. This service operates 24/7 and involves reviewing complete medical records to identify treatment options.
- Personalized cancer case management and patient navigationProvides Stage IV cancer patients with direct navigation services, including review of complete medical records (e.g., IHC, FISH, DNA sequencing, imaging) to develop strategic treatment roadmaps with options for standard therapies, clinical trials, and compassionate use of experimental drugs. Offers personalized recommendations for new medical teams and facilitates discussions with physicians.
- Remission CoachSM Search Engine and digital toolsOperates the Remission CoachSM Search Engine as part of its personalized cancer case management services, enabling targeted support and information delivery for cancer patients.
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Uncategorized 13 activities
- Cancer Patient Advocacy and Clinical Trials ProgramsOperates hundreds of cancer patient advocacy and clinical trials advocacy programs for a range of cancers, including common solid tumors and rare blood cancers. This includes collaborating with oncologists globally to identify treatment options and updating members of ICAN's patient organizations on new drug and clinical trial announcements.
- Cancer Patient Advocacy and Clinical Trials ProgramsOperates hundreds of cancer patient advocacy and clinical trials advocacy programs covering a range of cancers, from common solid tumors to rare blood cancers, and updates members on new drug and clinical trial announcements.
- Cancer patient advocacy and clinical trials support programsOperates over 200 cancer patient advocacy and clinical trials advocacy programs covering common solid tumors and rare blood cancers, providing up-to-date information on FDA-approved and experimental anticancer treatments and new clinical trial opportunities. These services are available 24/7, including holidays, since 1996.
- Global collaboration with satellite organizations and oncology professionalsCollaborates with leaders of ICAN’s international satellite organizations and with oncologists worldwide to identify and coordinate treatment options for patients. Also facilitates professional communications between advisory council members and program staff.
- Information Dissemination to Patient OrganizationsUpdates members of ICAN's patient organizations on new drug and clinical trial announcements.
- International Satellite Organization CollaborationCollaborates with leadership of ICAN's satellite organizations located outside the United States to extend its reach and impact.
- International Satellite Organization CollaborationCollaborates with the leadership of ICAN's satellite organizations located outside the United States to extend its reach and impact.
- International Satellite Organization CollaborationCollaborates with the leadership of ICAN's satellite organizations located outside the United States.
- Leadership in specialized cancer advocacy groupsICAN’s President and CEO, Marcia K. Horn JD, serves as Executive Director of the Exon 20 Group, indicating organizational leadership in niche cancer advocacy.
- Memoiral/Tribute Programs and patient outreachConducts Memorial/Tribute Programs and engages in outreach work with ICAN patients globally, supporting community and remembrance initiatives.
- Memorial and Tribute ProgramsConducts Memorial/Tribute Programs and outreach work with ICAN patients worldwide.
- Memorial and Tribute ProgramsConducts Memorial/Tribute Programs and outreach work with ICAN patients worldwide.
- Personalized Cancer Patient Advocacy and Case ManagementProvides direct patient navigation, personalized information services, and case management to cancer patients, particularly those with Stage IV cancer. This includes reviewing medical records, identifying strategic treatment options, recommending medical teams, and developing strategic roadmaps with clinical trial options.
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financials · form 990PF · fy2022
the money
revenue
Total revenue$898K
Contributions & grants$898K100%
Program service revenue——
Investment income$00%
Other revenue—
expenses
Total expenses$889K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$757
Cash—
Investments—
Liabilities—
Net assets$0
1 years on record · 2022–2022
relationships · 18
who they work with
- Arizona State University Partner — Received the Distinguished Achievements Award from the ASU Cancer Research Institute in 1999; Founding Trustees and CEO contributed to laboratories and a lobby at the ASU Cancer Research Institute.
- Biomarker Collaborative Partner — ICAN directs the Biomarker Collaborative and conducts major research projects through it.
- Eckelberg & Wienshienk, PC Partner — Accounting firm providing CPA services for ICAN
- Exon 20 Group Partner — ICAN's President and CEO is the Executive Director and co-founder of the Exon 20 Group, which focuses on rare cancer mutations.
- Frommer Lawrence & Haug LLP Partner — Legal firm providing pharmaceutical licensing counsel
- Guidestar Partner — Has a Platinum Seal of Transparency from Guidestar.
- King & Spalding LLP Partner — Legal firm representing National Coalition for Cancer Research on legislative matters
- Linda Jenckes and Associates Partner — Firm providing support on lobbying and legislative matters
- National Cancer Institute Government — Engaged in advocacy efforts to petition for compassionate use of experimental drugs for patients.
- National Cancer Institute Partner — Works with on pain management and other issues faced by late-stage cancer patients.
- Physicians Advisory Council Partner — Augments ICAN® Programs with specialists in medical oncology, surgical oncology, radiation oncology, anesthesiology, and interventional radiology.
- Richman and Associates Partner — Firm providing marketing communications and public relations support
- Scientific Advisory Council Partner — Comprised of leading anticancer drug discoverers, augmenting ICAN® Programs.
- Sechler CPA, PC Partner — Accounting firm providing CPA services and non-profit technology advice
- Staged Presence LLC Partner — Company providing special events support
- The University of Texas MD Anderson Cancer Center Partner — Collaborates with Jacqulyne ("Jackie") Robichaux, PhD, Assistant Professor at The University of Texas MD Anderson Cancer Center, who created a pie chart on molecular subtypes of Non-Small Cell Lung Cancer.
- Webster, Chamberlain & Bean Partner — Legal firm providing counsel on accounting, audit, Form 990, and non-profit law issues
- Weiss and Moy PC Partner — Legal firm providing trademark counsel in Arizona and California