named programs · 10 · from sources
what they call their work
Family Support
Connects parents with others who understand their journey to provide support.
Family Transition Navigation
Connects families with parents who understand their journey to provide support during transitions.
Military Family Support
Provides support to military families navigating complex systems related to special needs.
Neonatal Intensive Care Unit (NICU) Support
Connects families with someone who has experienced the NICU journey for comfort, resources, and encouragement.
Parent Leadership
Empowers parents to share their experiences to uplift others, influence systems, and create change.
Parent Panels
Trained Parent Leaders share real parent stories to help professionals build trust, improve communication, and center family voices.
Parent-to-Parent Support
One-on-one support from experienced parents to those navigating similar challenges.
Physician Residency Program
A hands-on program for physicians to experience families' lived experiences and grow as compassionate, effective practitioners.
Positive Family Coaching
Provides practical tools, personalized support, and a judgment-free partner to help children thrive.
Refugee and Asylee Mentorship Program (RAMP)
Offers respectful, culturally responsive support for refugee and asylee families raising children with disabilities.
activities · 6 groups
what they do
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Parent-to-Parent Support for Special Needs 2 activities
- One-on-One Parent Support ProgramsProvides one-on-one parent-to-parent support for families of children with disabilities, including specialized programs for families in the NICU, military families, and refugee/asylee families through the Refugee and Asylee Mentorship Program (RAMP). Services are offered at no cost and without qualification barriers.
- Parent-to-parent support for families of children with disabilitiesProvides one-on-one parent-to-parent support for families of children with disabilities, including specialized support for military families and those with children in the NICU.
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Parenting Education and Skill-Building Programs 2 activities
- Parent Leader Training and Professional Capacity BuildingTrains Parent Leaders who support professionals in improving communication, building trust, and integrating family perspectives into practice.
- Training for professionals by Parent LeadersTrained Parent Leaders assist professionals in building trust, improving communication, and centering family voices.
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Graduate Medical Education Residency Programs 2 activities
- Physician Residency ProgramOperates a Physician Residency Program that focuses on families' lived experiences to foster compassionate and effective physicians.
- Physician Residency Program on Family-Centered CareOperates a Physician Residency Program that educates future physicians by centering families' lived experiences to promote compassionate and effective medical care for children with disabilities.
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Translation and Bilingual Support Services 1 activity
- Language-Accessible Family ServicesDelivers services in English, Spanish, and other languages to ensure accessibility for diverse families of children with disabilities.
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Refugee & Immigrant Integration Support 1 activity
- Refugee and Asylee Mentorship Program (RAMP)Operates the Refugee and Asylee Mentorship Program (RAMP) to provide culturally responsive support for refugee and asylee families of children with disabilities.
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Uncategorized 6 activities
- Family Rights and Advocacy TrainingProvides training and information to parents to help them understand their rights, roles, and responsibilities in their child’s healthcare and education, empowering them to advocate effectively.
- Parent training and informationProvides training and information to parents to help them understand their rights, roles, and responsibilities in their child’s healthcare and education, offered in English, Spanish, and other languages.
- Parent training and informationProvides training and information to parents to help them understand their rights, roles, and responsibilities in their child’s healthcare and education.
- Positive Family CoachingOffers Positive Family Coaching to provide practical tools and personalized support for families of children with disabilities.
- Positive Family CoachingOffers Positive Family Coaching to equip families of children with disabilities with practical tools and personalized support to navigate challenges in healthcare and education systems.
- Professional training and family-centered careTrains Parent Leaders to assist professionals in building trust, improving communication, and centering family voices, and operates a Physician Residency Program focused on families' lived experiences to foster compassionate and effective physicians.
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financials · form 990 · fy2021
revenue
Total revenue$2.33M
Contributions & grants$2.33M100%
Program service revenue$00%
Investment income$10K0%
Other revenue$-7K
expenses
Total expenses$2.03M
Program expenses80%
Admin / overhead11%
Fundraising9%
Salaries & benefits$1.49M
Grants paid out$350
Largest expense lineCompensation
balance sheet
Total assets$2.18M
Cash$1.61M
Investments$378K
Liabilities$190K
Net assets$1.99M
Liquid reserves11.7 mo
3 years on record · 2019–2021 · YoY revenue +13.5%
leadership · form 990 part vii · fy2021
who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| CHRISTOPHER TIFFANY | EXECUTIVE DIRECTOR | 50 | $100K |
board members · 16
- ALAN TINSLEY — TREASURER
- CHARLES DOUGLASS — DIRECTOR
- ERIKA LEBLANC — DIRECTOR
- JENNIFER KUPISZEWSKI — DIRECTOR THRU 12/31/21
- JILL NICO — SECRETARY
- KELLY CARBONE — DIRECTOR
- LORI GELDER — DIRECTOR
- LYNDA MILLS — DIRECTOR
- MALLORY LEE — DIRECTOR THRU 2/1/21
- MICHAEL CHAPNEK — DIRECTOR
- MOHAN BELTHUR — DIRECTOR
- SHARON MOYER — PRESIDENT
- STACY JANTZI — DIRECTOR
- TODD LIOLIOS — DIRECTOR
- TRISH ROBINSON — VICE PRESIDENT
- WENDY COLLISON — DIRECTOR