activities · 8
what they do
direct service · 5
- Parent training and information Life Skills and Parenting EducationProvides training and information to parents to help them understand their rights, roles, and responsibilities in their child’s healthcare and education, offered in English, Spanish, and other languages.
- Parent training and informationProvides training and information to parents to help them understand their rights, roles, and responsibilities in their child’s healthcare and education.
- Parent-to-parent support for families of children with disabilities Behavior Support Training for CaregiversProvides one-on-one parent-to-parent support for families of children with disabilities, including specialized support for military families and those with children in the NICU.
- Positive Family Coaching Behavior Support Training for CaregiversOffers Positive Family Coaching to provide practical tools and personalized support for families of children with disabilities.
- Refugee and Asylee Mentorship Program (RAMP) Refugee Resettlement and Integration SupportOperates the Refugee and Asylee Mentorship Program (RAMP) to provide culturally responsive support for refugee and asylee families of children with disabilities.
capacity building · 3
- Physician Residency Program Graduate Medical Education Residency & Fellowship ProgramsOperates a Physician Residency Program that focuses on families' lived experiences to foster compassionate and effective physicians.
- Professional training and family-centered careTrains Parent Leaders to assist professionals in building trust, improving communication, and centering family voices, and operates a Physician Residency Program focused on families' lived experiences to foster compassionate and effective physicians.
- Training for professionals by Parent Leaders Life Skills and Parenting EducationTrained Parent Leaders assist professionals in building trust, improving communication, and centering family voices.
strategies · 5
how they think
Theories of action extracted from this org's own source material. Click any to see the full field of orgs running the same approach.
- Centering Family Voices through Parent Panels parent_panelsThe organization uses Parent Panels to provide professionals with direct insights from real parent stories, aiming to build trust, improve communication, and ensure that family perspectives are central to service delivery and policy.
- Collaboration between Families and Professionals collaboration-focusedThe organization believes that fostering collaboration between families and professionals is crucial for achieving the best outcomes for children with disabilities, emphasizing shared decision-making and mutual understanding.
- Parent Leadership and Systems Advocacy parent_leadership_developmentThe organization empowers parents to develop leadership skills, enabling them to advocate for their children, influence systems, and drive systemic change based on their lived experiences.
- Peer-based Parent Support peer_support_modelThe organization utilizes a peer-based support model where parents of children with disabilities receive guidance and support from other experienced parents, leveraging shared lived experience to empower families.
- Universal Access to Services universal_accessThe organization provides universally accessible, no-cost services to all families of children with disabilities, without eligibility screening, and in multiple languages, ensuring broad reach and equitable support.
named programs · 10
what they call their work
Family Support
Connects parents with others who understand their journey to provide support.
Family Transition Navigation
Connects families with parents who understand their journey to provide support during transitions.
Military Family Support
Provides support to military families navigating complex systems related to special needs.
Neonatal Intensive Care Unit (NICU) Support
Connects families with someone who has experienced the NICU journey for comfort, resources, and encouragement.
Parent Leadership
Empowers parents to share their experiences to uplift others, influence systems, and create change.
Parent Panels
Trained Parent Leaders share real parent stories to help professionals build trust, improve communication, and center family voices.
Parent-to-Parent Support
One-on-one support from experienced parents to those navigating similar challenges.
Physician Residency Program
A hands-on program for physicians to experience families' lived experiences and grow as compassionate, effective practitioners.
Positive Family Coaching
Provides practical tools, personalized support, and a judgment-free partner to help children thrive.
Refugee and Asylee Mentorship Program (RAMP)
Offers respectful, culturally responsive support for refugee and asylee families raising children with disabilities.