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SPINA BIFIDA ASSOCIATION OF ARIZONA

PHOENIX, AZ · EIN 860355183 · Form 990 · FY2021 · NTEE G55Z · Voluntary Health Associations · Small ($100K-$1M) · sbaaz.org
revenue
$132K
expenses
$147K
net assets
$771K
employees
4
volunteers
15
program ratio
86%
mission · from form 990

PROVIDE ASSISTANCE TO FAMILIES LIVING WITH SPINA BIFIDA THROUGH PEER MENTORING SERVICES, NUTRITIONAL AND INDEPENDENCE EDUCATION, ACCESS TO URNIARY CARE SUPPLIES, LIVING FACILITIES, AND ADAPTIVE EQUIPMENT.

profile · synthesized from sources

Spina Bifida Association of Arizona supports individuals and families affected by Spina Bifida through resource navigation, education, and community connection. The organization serves people across Arizona who are impacted by this birth defect, offering guidance on healthcare, adaptive recreation, education, and government services. It is led by a board including individuals with lived experience and medical professionals.

named programs · 3 · from sources

what they call their work

Adaptive Recreation Referrals
Connects individuals with Spina Bifida to adaptive recreation programs through local municipalities and organizations such as Ability360 and Arizona Disabled Sports
Resource Navigation
Provides curated lists of medical, educational, recreational, and government resources for individuals with Spina Bifida and their families across Arizona
Wellness Information
Distributes healthcare guidelines and educational materials for new and expectant parents, including national Spina Bifida association resources
financials · form 990 · fy2021

the money

revenue
Total revenue$132K
Contributions & grants$99K75%
Program service revenue$00%
Investment income$33K25%
Other revenue$380
expenses
Total expenses$147K
Program expenses86%
Admin / overhead11%
Fundraising3%
Salaries & benefits$58K
Grants paid out$42K
Largest expense lineCompensation
balance sheet
Total assets$774K
Cash$48K
Investments$725K
Liabilities$3K
Net assets$771K
Liquid reserves63.3 mo
2 years on record · 2020–2021 · YoY revenue -77.6%
leadership · form 990 part vii · fy2021

who runs it

paid leadership · 1
NameTitleHours/wkCompensation
SHARRI RUNNELS EXECUTIVE DIRECTOR 40 $46K
board members · 7
  • DAVID MARTIN — DIRECTOR
  • DIANE YODER — TREASURER
  • JAY BROWN — SECRETARY
  • KIMBERLY WILLIAMS — DIRECTOR SINCE 11/16/2021
  • LAUREN SHOEMAKER — DIRECTOR
  • MICHAEL KUHLMANN — CHAIR
  • RON WHITESIDE — DIRECTOR
relationships · 11

who they work with

  • Ability360 Partner — Listed as an organizational adaptive recreation resource.
  • Arizona Adaptive Water Sports Partner — Listed as an organizational adaptive recreation resource.
  • Arizona Disabled Sports Partner — Listed as an organizational adaptive recreation resource.
  • Camp Patrick Partner — Listed as a camp resource.
  • Camp with a Ramp Partner — Listed as a camp resource.
  • Department of Economic Security Government — Provides information on various services including Vocational Rehabilitation Services, DDD, AzEIP, Parents as Paid Caregivers, and AZ ABLE.
  • Department of Health Services Government — Provides information on Arizona Health Care Cost Containment System (AHCCCS), Children’s Rehabilitative Services, and Arizona Long Term Care System.
  • Encircle Families Partner — Listed as a local provider of assistance for IEPs and transition to adulthood.
  • Hanger Partner — Ron Whiteside, an orthotist involved with the Spina Bifida community, works for Hanger.
  • Hanger Clinic Partner — Dakota Christiansen, an ABC-certified prosthetist/orthotist specializing in pediatric lower extremity orthotics and scoliosis, works for Hanger Clinic in Phoenix, Arizona, and works with Spina Bifida patients.
  • High Country Adaptive Sports Partner — Listed as an organizational adaptive recreation resource.