named programs · 4 · from sources
what they call their work
Active Clinical Trials - GA (Geographic Atrophy)
Conducts multiple clinical trials for non-foveal and foveal involving geographic atrophy, testing oral medications, subcutaneous injections, and combination therapies to slow disease progression.
Active Clinical Trials - nAMD (Neovascular AMD)
Runs trials for treatment-naïve and previously treated nAMD patients, evaluating novel anti-VEGF therapies, implantable treatments, and dosing regimens.
Innovations in Retinal Research
Highlights advancements in gene therapy, stem cell therapy, and AI-powered imaging for early detection and treatment of retinal diseases.
Learning Center
Provides accessible educational content on retinal anatomy, diseases, genetic testing, clinical trials, and vision preservation strategies for patients, families, and donors.
activities · 3 clusters
what they do
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Genomic and Translational Biomedical Research 4 activities
- Conducting Clinical Trials for Geographic Atrophy (GA)Evaluates and investigates various treatments for Geographic Atrophy (GA), including oral medications to slow progression, drugs to improve mitochondrial function, combination therapies to regulate immune response, therapies to protect retinal cells, gene therapy, and oral medications to reduce toxic vitamin A buildup, comparing different dosing regimens.
- Conducting clinical trials for inherited retinal diseasesParticipates in gene therapy clinical trials for inherited retinal diseases such as retinitis pigmentosa and Stargardt disease, and investigates genetic testing to identify gene mutations and inform treatment.
- Funding and Supporting Retinal Disease ResearchActively funds and supports groundbreaking research in retinal diseases, including gene therapies and innovative drug treatments, often in collaboration with Associated Retina Consultants.
- Funding and supporting retinal disease researchActively funds and supports groundbreaking research in retinal diseases, including gene therapies and innovative drug treatments.
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Retinal and Ocular Disease Treatment Research 4 activities
- Conducting Clinical Trials for UveitisTests a new oral treatment for uveitis to provide an alternative to injections and reduce inflammation.
- Conducting clinical trials for Geographic Atrophy (GA)Evaluates various treatments for Geographic Atrophy (GA), including oral medications to slow progression, drugs to improve mitochondrial function, combination therapies to regulate immune response, therapies to protect retinal cells, gene therapy to address genetic causes, and oral medications to reduce toxic vitamin A buildup. Also compares different dosing regimens of BI771716 with standard GA treatments.
- Conducting clinical trials for neovascular age-related macular degeneration (nAMD)Tests novel anti-VEGF therapies, implantable treatments for extended disease control, sustained-release drug implants, innovative drug delivery systems, and single-dose gene therapies for long-lasting control of nAMD, including for newly diagnosed patients and those with prior anti-VEGF therapy.
- Conducting clinical trials for uveitisTests new oral treatments for uveitis to provide an alternative to injections and reduce inflammation.
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Uncategorized 4 activities
- Conducting Clinical Trials for Inherited Retinal DiseasesParticipates in gene therapy clinical trials for inherited retinal diseases such as retinitis pigmentosa and Stargardt disease, and highlights the role of genetic testing in identifying mutations and informing treatment.
- Conducting Clinical Trials for Neovascular Age-Related Macular Degeneration (nAMD)Tests novel anti-VEGF therapies, implantable treatments, sustained-release drug implants, and single-dose gene therapies to improve treatment options, extend disease control, and provide long-lasting solutions for nAMD, including for newly diagnosed patients and those with prior anti-VEGF therapy.
- Providing Educational Resources on Retinal DiseasesMaintains a "Learning Center" with educational resources, including an archive of past presentations, summaries, recordings, and materials, to inform individuals, families, and donors about eye anatomy, treatments, and support services for retinal diseases and vision research.
- Providing educational resources on retinal diseasesMaintains a "Learning Center" with educational resources, including an archive of past presentations, summaries, recordings, and materials, covering the anatomy of the eye, latest treatments, and support services for individuals, families, and donors.
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financials · form 990EZ · fy2022
the money
revenue
Total revenue$10K
Contributions & grants$10K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$266
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits$0
Grants paid out$0
balance sheet
Total assets$3K
Cash—
Investments—
Liabilities—
Net assets$3K
1 years on record · 2022–2022
leadership · form 990 part vii · fy2022
who runs it
board members · 4
- Andrea Bakall — Executive Director
- Dr Benjamin Bakall — President, board member
- Dr Kendra Klein-Mascia — board member
- Dr Kyrieckos Aleck — board member
relationships · 15
who they work with
- Arizona Center for the Blind and Visually Impaired Partner — Provides comprehensive training, state-of-the-art technologies, and rehabilitation services for individuals with vision loss.
- Arizona Department of Economic Security Government — Government affiliate providing vocational rehabilitation and job training services for individuals with vision-related disabilities.
- Arizona Industries for the Blind Partner — Nonprofit partner offering professional training and employment opportunities for visually impaired individuals in Arizona.
- Arizona State Schools for the Deaf and the Blind Partner — Offers low vision services, educational support, and assistive technology for children and adults.
- Associated Retina Consultants Partner — Collaborates with Associated Retina Consultants, who serve as the primary research team conducting many of the clinical trials supported by the foundation.
- Associated Retina Consultants Partner — Participates in pioneering gene therapy clinical trials.
- Associated Retina Consultants Partner — Provides specialized treatment for patients with vision loss and conducts research.
- Eyedaptic Partner — Develops smart glasses and innovative wearable vision aids for individuals with retinal diseases.
- Foundation for Blind Children Partner — Empowers individuals with blindness and low vision through education, training, and resources.
- Foundation for Blind Children Partner — Partner organization providing low vision evaluation, training, and educational services for children and adults.
- Midwestern University Clinics Partner — Partner organization operating a low vision rehabilitation clinic with training in low vision devices and technologies.
- Nationwide Vision Partner — Provides specialized low vision care and assessments.
- VRATE – Vision Rehabilitation and Assistive Technology Expo Partner — Connects individuals with vision impairments to resources, technology, and professional support through an annual event.
- View Finder Partner — Partner organization offering low vision optometry services and comprehensive evaluations.
- ViewFinder Low Vision Resource Center Partner — Offers personalized low vision aids, assistive technologies, and expert evaluations.