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RYAN HOUSE
PHOENIX, AZ · EIN 201852393 · Form 990 · FY2021 · NTEE P74 · Human Services · Medium ($1M-$10M) · ryanhouse.org
revenue
$3.1M
expenses
$2.7M
net assets
$5.1M
employees
30
volunteers
408
program ratio
75%
mission · from form 990

PROVIDES FAMILY RESPITE SERVICES AND END-OF-LIFE CARE TO AZ CHILDREN WITH LIFE-LIMITING CONDITIONS FROM DIAGNOSIS THROUGH DEATH, EASING PAIN AND SUFFERING WHILE IMPROVING QUALITY OF LIFE FOR THE ENTIRE FAMILY.

profile · synthesized from sources

Ryan House provides respite care, pediatric palliative care, and end-of-life care for children with life-limiting conditions and their families in a supportive, home-like environment. Located in Phoenix, Arizona, it is the only organization of its kind in the Southwest and one of three in the country, offering services at no cost to families.

irs program accomplishments · form 990 part iii · fy2021

what they reported doing

Program narrative the organization filed with the IRS. Ordered by program spending.

  1. #1 primary $323K
    PEDIATRIC END-OF-LIFE CARE - FAMILIES WITH A CHILD FACING END-OF-LIFE RECEIVE SUPPORTIVE PLANNING AND COMPASSIONATE CARE CONSISTENT WITH CLINICAL, CULTURAL, AND ETHICAL STANDARDS AND MAY STAY AS LONG AS NEEDED AT NO CHARGE TO FAMILIES. THE RYAN HOUSE CARE TEAM PROVIDES PARENTS, GUARDIANS AND SIBLINGS WITH A LOVING SYSTEM OF SUPPORT AND COMFORT AS WELL AS ANTICIPATORY GRIEF AND BEREAVEMENT SUPPORT INCLUDING A PERSONALIZED MEMORY TILE IN THE MEMORIAL GARDEN, FAMILY COUNSELING, PHOTOS, AND BEREAVEMENT BOXES FILLED WITH SPECIAL KEEPSAKES. ON-GOING SUPPORT IS PROVIDED THROUGH A BI-WEEKLY SUPPORT GROUP IN PARTNERSHIP WITH NEW SONG CENTER FOR GRIEVING CHILDREN. TWO INDIVIDUAL BEDROOMS AND TWO FAMILY SUITES ARE AVAILABLE FOR END-OF-LIFE CARE. DURING FISCAL YEAR 2022, 54 CHILDREN RECEIVED END-OF-LIFE CARE AT RYAN HOUSE AND 350 DAYS OF END-OF-LIFE CARE WERE PROVIDED.
  2. #2 $644K
    LIFE-ENHANCING THERAPIES PROGRAM - CHILDREN STAYING AT RYAN HOUSE ARE ENGAGED DAILY IN LIFE-ENHANCING THERAPEUTIC ACTIVITIES CUSTOMIZED FOR THEIR AGE, CONDITIONS AND DEVELOPMENTAL ABILITIES INCLUDING HYDROTHERAPY POOL, ART, PET THERAPY, SENSORY, MUSIC AND LEGACY BUILDING. A CERTIFIED CHILD LIFE SPECIALIST, CLINICAL STAFF, AND TRAINED VOLUNTEERS PROVIDE SPECIALIZED ACTIVITIES THAT IMPROVE OVERALL QUALITY OF LIFE BY PROVIDING OPPORTUNITIES TO EXPERIENCE NEW SENSATIONS, DEVELOP SKILLS AND GAIN CONFIDENCE, AND MAXIMIZE TIME FOR KIDS TO BE KIDS. THE RYAN HOUSE CHILD LIFE PROGRAM ENGAGES THE ENTIRE EXTENDED FAMILY THROUGHOUT THE YEAR WITH THEMED PARTIES AND EVENTS TO BUILD COMMUNITY. OUR CHILD LIFE SPECIALIST PLAYS A CRITICAL ROLE IN PROVIDING SEAMLESS COORDINATION OF CARE.
named programs · 4 · from sources

what they call their work

Grief and Bereavement Support
Provides various support services for families dealing with grief, including counseling and memorial events.
Pediatric End-of-Life Care
Delivers compassionate care and support for families facing end-of-life situations, in partnership with Hospice of the Valley.
Pediatric Palliative Care
Offers emotional and psychosocial support for families navigating complex medical journeys, focusing on overall well-being.
Pediatric Respite Care
Provides short-term overnight stays for families to take breaks from home care, allowing children to socialize with peers.
activities · 6 groups

what they do

  • Residential Lodging Facilities 4 activities
    • Family Accommodation and Amenities
      Offers eight themed bedrooms for children with daybeds for family, three hotel-like family suites with private patios, a family living room, a handicap accessible bathing room, a non-denominational Sanctuary, a family-style kitchen, and an accessible outdoor playground.
    • Family Support Facilities
      Maintains a 12,500 sq. foot home with eight themed bedrooms for children, three family suites with private patios, a family living room, a family-style kitchen, a handicap accessible bathing room, a non-denominational Sanctuary, and a Memorial Garden for reflection and peace.
    • Family Support Facilities
      Maintains a family living room with a library, reading corners, video games, and TV, an accessible outdoor playground, a handicap accessible bathing room, a non-denominational Sanctuary for reflection, and a family-style kitchen where children and families can gather and share meals.
    • Family Support and Accommodation
      Provides family accommodations including eight themed bedrooms for children with daybeds for family, three hotel-like family suites with private patios, a family living room, a handicap accessible bathing room, a non-denominational Sanctuary for reflection, and a family-style kitchen for gathering and meals.
  • Grief Support Services for Children and Families 4 activities
    • Family Support and Grief Services
      Provides grief and bereavement support to families through programs like Bridges of Support, family counseling, an annual community event to honor passed children, and bereavement boxes. This includes hosting an annual Memorial Tile Garden Event for nearly 100 family members and loved ones to honor children who have passed away, and maintaining a Memorial Garden for reflection.
    • Grief and Bereavement Support
      Provides grief and bereavement support to families through programs like Bridges of Support, family counseling, an annual community event to honor passed children, and bereavement boxes with keepsakes. This includes anticipatory grief support and hosting an annual Memorial Tile Garden Event for nearly 100 family members to honor children who have passed away, placing memorial tiles in a garden.
    • Grief and Bereavement Support
      Offers grief and bereavement support to families through programs like Bridges of Support, family counseling, an annual community event to honor passed children, and bereavement boxes with keepsakes. This includes hosting an annual Memorial Tile Garden Event and maintaining a Memorial Garden for reflection.
    • Grief and Bereavement Support
      Provides grief and bereavement support to families through programs like Bridges of Support, family counseling, an annual community event to honor passed children, bereavement boxes, and anticipatory grief support to children, siblings, and their families.
  • Pediatric Medical Respite Lodging 4 activities
    • Pediatric Respite Care
      Provides up to 28 days of round-the-clock pediatric respite care per year to children with life-limiting conditions and their families, including 27,792 hours of care provided to 294 children and families.
    • Pediatric Respite Care
      Provides up to 28 days of round-the-clock pediatric respite care annually to children with life-limiting conditions and their families, operating a 12,500 sq. foot home with eight themed bedrooms and three family suites. In one year, 294 children and families were enrolled, receiving 27,792 hours of respite care.
    • Pediatric Respite and Palliative Care
      Provides up to 28 days of round-the-clock pediatric respite care per year to children with life-limiting conditions and their families, including palliative and end-of-life care, operating from a 12,500 sq. foot facility in Phoenix, AZ. In one year, 294 children and families were enrolled, and 27,792 hours of respite care were provided.
    • Pediatric Respite and Palliative Care
      Provides up to 28 days of round-the-clock pediatric respite care per year to children with life-limiting conditions and their families, including palliative and end-of-life care, within a 12,500 sq. foot facility in Phoenix, AZ. This includes supporting 294 children and families in its respite program and 54 children and their families at end-of-life.
  • Adult Day Training & Enrichment Programs 4 activities
    • Therapeutic Activities and Facilities
      Offers life-enhancing therapeutic activities such as Legacy Building, art, music, pet, sensory, recreational, and hydro-therapeutic activities, delivered by certified child life specialists and trained volunteers. Facilities include a Sensory Tent, Music Room, Creative U (Arts and Crafts Room), Story of Me Multimedia Room, indoor hydrotherapy pool, and an accessible outdoor playground.
    • Therapeutic and Recreational Activities
      Offers life-enhancing therapeutic activities such as art, music, pet, sensory, recreational, and hydro-therapeutic activities, delivered by certified child life specialists and trained volunteers. This includes dedicated spaces like a Creative U (Arts and Crafts Room), Sensory Tent, Music Room, Story of Me Multimedia Room, an indoor hydrotherapy pool, and an accessible outdoor playground.
    • Therapeutic and Recreational Activities
      Offers life-enhancing therapeutic activities such as art, music, pet, sensory, recreational, and hydro-therapeutic activities, delivered by certified child life specialists and trained volunteers. Facilities include a Creative U (Arts and Crafts Room), Sensory Tent, Music Room, Story of Me Multimedia Room, and an indoor hydrotherapy pool.
    • Therapeutic and Recreational Activities
      Offers life-enhancing therapeutic activities including Legacy Building, art, music, pet, sensory, recreational, and hydro-therapeutic activities, delivered by certified child life specialists and trained volunteers. Facilities include a Creative U (Arts and Crafts Room), Sensory Tent, Music Room, Story of Me Multimedia Room, and an indoor hydrotherapy pool.
  • Charity Golf Tournament 3 activities
    • Community Awareness and Fundraising Events
      Organizes and participates in various events to raise awareness and funds, such as "Ryan House After Hours," an annual golf tournament, and presence at sporting events, including on-field presentations and raffles.
    • Community Awareness and Fundraising Events
      Organizes and participates in various events to raise awareness and funds, such as "Ryan House After Hours," the Annual Memorial Tile Garden Event, the Ryan House Open Golf Tournament, and presence at sports events like Diablos Day and Milwaukee Brewers spring training games.
    • Fundraising and Awareness Events
      Organizes and participates in various events to raise awareness and funds, such as "Ryan House After Hours" to showcase care impact, the annual Ryan House Open Golf Tournament, and presence at sports events like Diablos Day and Milwaukee Brewers spring training games.
  • Uncategorized 8 activities
    • Donation Management
      Accepts in-kind donations of items through an Amazon Wish List, organizes group drives, accepts drop-offs of supplies, utilizes donated gift cards to purchase items for children or families, and accepts vehicle donations.
    • Donation Programs
      Accepts in-kind donations of items through an Amazon Wish List, organizes group drives and accepts drop-offs of supplies, utilizes donated gift cards to purchase items for children or provide to families, and accepts vehicle donations including cars, trucks, motorcycles, RVs, boats, airplanes, heavy equipment, and farm machinery.
    • In-Kind and Vehicle Donations
      Accepts in-kind donations of items through an Amazon Wish List, organizes group drives for supplies, and accepts vehicle donations of various types and conditions.
    • Pediatric Palliative and End-of-Life Care
      Offers pediatric palliative care and end-of-life care, supporting 54 children and their families at end-of-life and providing a gathering for families of children who passed away at Ryan House.
    • Volunteer Engagement
      Engages various types of volunteers, including Care Team, Community and Corporate, Speakers Bureau, Administrative, Teen Board, and Kids for Ryan House, who assist with events, committees, donation drives, outdoor beautification, and direct interaction with children.
    • Volunteer Engagement
      Engages various types of volunteers, including Care Team, Community and Corporate, Speakers Bureau, Administrative, Teen Board, and Kids for Ryan House, who assist with events, serve on committees, organize donation drives, beautify outdoor spaces, and spend time with children.
    • Volunteer Engagement
      Engages various types of volunteers, including Care Team, Community and Corporate, Speakers Bureau, Administrative, Teen Board, and Kids for Ryan House, to assist with signature events, serve on committees and the board, organize donation drives, beautify outdoor spaces, and spend time with children in their care.
    • Volunteer Engagement
      Engages various types of volunteers, including Care Team, Community and Corporate, Speakers Bureau, Administrative, Teen Board, and Kids for Ryan House, who assist with events, serve on committees, organize donation drives, beautify spaces, and spend time with children.
financials · form 990 · fy2021
revenue
Total revenue$3.11M
Contributions & grants$3.02M97%
Program service revenue$00%
Investment income$124K4%
Other revenue$-36K
expenses
Total expenses$2.75M
Program expenses75%
Admin / overhead9%
Fundraising17%
Salaries & benefits$1.84M
Grants paid out$108
Largest expense lineCompensation
balance sheet
Total assets$5.52M
Cash$864K
Investments$4.15M
Liabilities$444K
Net assets$5.08M
Liquid reserves21.9 mo
3 years on record · 2019–2021 · YoY revenue -25.6%
leadership · form 990 part vii · fy2021

who runs it

paid leadership · 1
NameTitleHours/wkCompensation
TRACY LEONARD-WARNER EXECUTIVE DIRECTOR 40 $123K
board members · 14
  • ALAN MEDA — SECRETARY
  • ASHLEY CROWELL — DIRECTOR
  • BOB SERR — CHAIR
  • KATHLEEN HANLEY — VICE CHAIR
  • KEELEY DEAN — DIRECTOR
  • MARY THOMPSON — DIRECTOR
  • MICHELLE RONAN — DIRECTOR
  • OLIVER FULTZ — DIRECTOR
  • RHONDA ANDERSON — DIRECTOR
  • RITA MEISER — DIRECTOR
  • ROB MAVER — TREASURER
  • ROBERT GUTHRIE — DIRECTOR
  • SHANNON SCHRODER — DIRECTOR
  • TOM JARVIS — DIRECTOR
relationships · 16

who they work with

  • ARCH Partner — Listed as an affiliation.
  • CRHA Partner — Listed as an affiliation.
  • Candid Partner — Listed as a charity rating organization.
  • Communities Health Charities Partner — Partners with Communities Health Charities for federal employee giving through the Combined Federal Campaign (CFC).
  • Heart Hats Partner — Volunteers from this organization shared their time and energy in support of Ryan House.
  • Hospice of the Valley Partner — Care Team services are facilitated through Hospice of the Valley
  • Hospice of the Valley Partner — Provided a bridge grant to support the establishment of Ryan House.
  • Hospice of the Valley Partner — Provides end-of-life care in partnership with Hospice of the Valley.
  • Los Angeles Angels Partner — Associated with the Tempe Diablos, a community partner supporting Ryan House.
  • McCarthy Building Companies Partner — Volunteers from this company shared their time and energy in support of Ryan House.
  • Milwaukee Brewers Partner — Partnered with Ryan House for a spring training game, providing a table presence, 50/50 raffle, and public address announcement.
  • San Francisco Giants Partner — Associated with the Scottsdale Charros, a longtime partner supporting Ryan House.
  • Scottsdale Charros Partner — Longtime partners of the San Francisco Giants in Scottsdale, providing grant support and a gifted ad in their Spring Training Program.
  • St. Luke’s Health Initiatives Partner — Provided an initial planning grant for the founding of Ryan House.
  • Tempe Diablos Partner — Community partner whose charitable support is tied to the Los Angeles Angels in Tempe, providing grant support and inviting Ryan House to participate in their on-field presentation.
  • Vitalyst Health Foundation Partner — Formerly St. Luke’s Health Initiatives; provided initial planning grant for Ryan House.