↑ parent cluster · ·
research dossier →

FOCUS ON LYME FOUNDATION

PARADISE VALLEY, AZ · EIN 860946204 · Form 990 · FY2022 · NTEE A112 · Arts, Culture & Humanities · Small ($100K-$1M) · focusonlyme.org
revenue
$233K
expenses
$201K
net assets
$100K
employees
2
program ratio
32%
mission · from form 990

TO IMPROVE DIAGNOSTICS, TREATMENT, PREVENTION AND ADVOCACY FOR PATIENTS SUFFERING FROM LYME AND ASSOCIATED TICK-BORNE DISEASES.

profile · synthesized from sources

Focus On Lyme Foundation is dedicated to improving diagnostics, treatment, prevention, and advocacy for patients suffering from Lyme and associated tick-borne diseases. The organization aims to address the challenges of misdiagnosis, lack of effective treatments, and high costs associated with Lyme disease by developing accurate diagnostic tools and supporting research.

irs program accomplishments · form 990 part iii · fy2022

what they reported doing

Program narrative the organization filed with the IRS. Ordered by program spending.

  1. #1 primary $58K
    SCIENTIFIC CONFERENCES, EDUCATIONAL FORUMS AND RESEARCH ACTIVITIES RELATED TO THE PRIMARY PURPOSE OF THE FOUNDATION.
named programs · 3 · from sources

what they call their work

Biorepository
A repository of quality serum and whole blood samples from Lyme and tick-borne disease patients, tested and qualified, to supply researchers for further understanding of diagnostics, treatment, and biology of these organisms.
Diagnostics Initiative
Working with a scientific team to create a more accurate and specific assay for Lyme disease diagnosis, aiming to improve upon current antibody-based and PCR tests.
Scientific Conference
An event focused on scientific advancements related to Lyme disease.
activities · 1 cluster

what they do

  • Lyme & Tick-Borne Disease Research Support 8 activities
    • Advocacy for improved Lyme disease care
      Works to improve diagnostics, treatment, prevention, and patient advocacy for individuals affected by Lyme and tick-borne diseases.
    • Advocating for Lyme and tick-borne disease patients
      Works to improve diagnostics, treatment, prevention, and advocacy for patients with Lyme and tick-borne diseases, and supports individuals affected by the disease to improve access to care.
    • Biological sample repository for Lyme research
      Provides tested and qualified biological samples, including serum and whole blood that are two-tier positive per CDC requirements, to support research on the diagnostics, treatment, and biology of Lyme and tick-borne diseases, with strict quality control measures in place.
    • Developing advanced Lyme disease diagnostics
      Develops more accurate and specific diagnostic assays for Lyme disease in collaboration with scientific teams using advanced technology.
    • Lyme disease diagnostic assay development
      Collaborating with a scientific team to develop a more accurate and specific diagnostic assay for Lyme disease using advanced technology.
    • Organizing scientific conferences on Lyme disease
      Organizes scientific conferences focused on Lyme disease to advance research and knowledge sharing.
    • Providing biological samples for Lyme disease research
      Provides tested and qualified biological samples, including serum and whole blood, that are two-tier positive per CDC requirements, to support research on diagnostics, treatment, and biology of Lyme and tick-borne diseases.
    • Scientific conference organization on Lyme disease
      Organizes a scientific conference dedicated to advancing knowledge and research in Lyme disease.
financials · form 990 · fy2022

the money

revenue
Total revenue$233K
Contributions & grants$215K92%
Program service revenue$00%
Investment income$00%
Other revenue$18K
expenses
Total expenses$201K
Program expenses32%
Admin / overhead68%
Fundraising0%
Salaries & benefits$110K
Grants paid out$6K
Largest expense lineCompensation
balance sheet
Total assets$109K
Cash$109K
Investments$0
Liabilities$10K
Net assets$100K
Liquid reserves6.5 mo
3 years on record · 2020–2022 · YoY revenue +44.7%
leadership · form 990 part vii · fy2022

who runs it

paid leadership · 1
NameTitleHours/wkCompensation
TAMMY CRAWFORD PRESIDENT & EXECUTIVE DIRE 20 $94K
board members · 4
  • CHRISTOPHER VOLK — DIRECTOR
  • MITCHELL CHRONISTER — DIRECTOR
  • SCOTT THEOBALD — DIRECTOR
  • STEPHEN SCHWANZ — DIRECTOR
relationships · 19

who they work with

  • AZ Petal Pusher Funder — Sponsor of Focus on Lyme Foundation
  • BHHS Legacy Foundation Funder — Sponsor of Focus on Lyme Foundation
  • Bank of Arizona Funder — Sponsor of Focus on Lyme Foundation
  • Blue Cross Blue Shield of Arizona Funder — Sponsor of Focus on Lyme Foundation
  • CopperPoint Insurance Companies Funder — Sponsor of Focus on Lyme Foundation
  • Dedicated advisory board Partner — Advisory board supports fundraising and strategic efforts across all areas of Lyme disease work.
  • Felice Agency Funder — Sponsor of Focus on Lyme Foundation
  • Findlay Toyota Flagstaff Funder — Sponsor of Focus on Lyme Foundation
  • Focus on Lyme Foundation Partner — Presented by Focus on Lyme Foundation
  • KS StateBank Funder — Sponsor of Focus on Lyme Foundation
  • Kendra Scott Funder — Sponsor of Focus on Lyme Foundation
  • Leadership Children's Foundation Funder — Sponsor of Focus on Lyme Foundation
  • McCarthy Building Companies, Inc. Funder — Sponsor of Focus on Lyme Foundation
  • Planet Chrysler Dodge Jeep Ram Funder — Sponsor of Focus on Lyme Foundation
  • Quarles & Brady LLP Funder — Sponsor of Focus on Lyme Foundation
  • Scientific team with world renowned success Partner — Collaborates with a high-achieving scientific team to develop a more accurate Lyme diagnostic assay.
  • Sponsored By Partner — Provides sponsorship support to FOCUS ON LYME FOUNDATION
  • V's Barbershop Funder — Sponsor of Focus on Lyme Foundation
  • Wells Fargo Funder — Sponsor of Focus on Lyme Foundation