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BARROW NEUROLOGICAL FOUNDATION

PHOENIX, AZ · EIN 860174371 · Form 990 · FY2021 · NTEE G11 · Voluntary Health Associations · Very Large (>$50M) · www.supportbarrow.org
revenue
$54.1M
expenses
$24.3M
net assets
$224.4M
employees
0
volunteers
45
program ratio
86%
mission · from form 990

TO SUPPORT BARROW NEUROLOGICAL INSTITUTE, A DIVISION OF DIGNITY HEALTH.

profile · synthesized from sources

Barrow Neurological Foundation is a fundraising organization dedicated to supporting the Barrow Neurological Institute in Phoenix, Arizona. It raises funds for cutting-edge research, training of neuroscience specialists, and patient care for individuals with brain and spinal conditions. The foundation emphasizes that 100% of donations go directly to these initiatives.

named programs · 8 · from sources

what they call their work

Alzheimer's and Memory Disorders Program
Conducts clinical trials and research for Alzheimer's disease, aiming for early diagnosis and treatment.
Alzheimer’s and Memory Disorders Program
Conducts clinical trials and provides advanced diagnostics, such as amyloid PET scans, for early detection and treatment of Alzheimer’s disease and related dementias
Lewis Headache Center
Provides comprehensive diagnosis and treatment for headache disorders, including migraines and CSF leaks, using a multidisciplinary approach that includes medical, psychological, and physical therapy interventions
Neuro-Intensive Care Unit
Offers specialized care for critically ill patients with neurological conditions, focusing on stabilization and recovery.
Neuro-Intensive Care Unit (Neuro-ICU)
Specialized critical care for patients with severe neurological conditions, including coma and refractory seizures, offering life-saving interventions and compassionate support
Neuroscience Education
Trains future generations of neuroscience specialists through residency programs and other educational initiatives.
Neuroscience Research
Supports groundbreaking research in various areas of neuroscience, moving discoveries from the lab to clinical application.
Wellness Program
Offers mindfulness, yoga, and psychological support to enhance mind-body connection and improve quality of life for patients with chronic neurological conditions
activities · 5 groups

what they do

  • Philanthropic Fundraising for Medical Research and Care 9 activities
    • Funding Neuroscience Research and Patient Care
      Raises funds to advance neuroscience research and patient care, having raised over $135 million over 60 years and $50.1 million in fiscal year 2024. This includes specific fundraising for targeted research projects and the Ivy Brain Tumor Center.
    • Funding neuroscience research and patient care through major fundraising
      Raised over $135 million across more than 60 years to advance neuroscience research and patient care, including $50.1 million in fiscal year 2024 alone to support life-saving innovation.
    • Funding neuroscience research and patient care through major fundraising
      Has raised over $135 million across more than 60 years to support neuroscience research and patient care, including $50.1 million in fiscal year 2024 alone for life-saving innovation.
    • Fundraising to support neuroscience research and patient care
      Raises significant financial resources to advance neuroscience research and improve patient care, having raised over $135 million in more than 60 years, including $50.1 million in fiscal year 2024 and $16.3 million for targeted research projects. Funds are directed to research laboratories and specialized centers.
    • Fundraising to support neuroscience research and patient care
      Raises significant financial resources to advance neuroscience research and patient care, including $50.1 million in fiscal year 2024 and over $135 million cumulatively over more than 60 years. Net proceeds from events like the Barrow Open golf tournament are directed entirely to research initiatives such as the Barrow Golf Neuroscience Research Laboratory.
    • Operating donor-funded research initiatives through special events
      Hosts fundraising events such as the Barrow Open golf tournament, with 100% of net proceeds directed to the Barrow Golf Neuroscience Research Laboratory, supporting life-saving innovation through event-based philanthropy.
    • Operating targeted fundraising initiatives to support research laboratories
      Hosts and directs 100% of net proceeds from the Barrow Open golf tournament to fund the Barrow Golf Neuroscience Research Laboratory, a dedicated mechanism for channeling event revenue into research.
    • Supporting specialized research centers through event-based fundraising
      Raised $5.1 million for the Ivy Brain Tumor Center through the 2026 Ball fundraising effort, demonstrating targeted capacity-building for specific neurological research initiatives.
    • Supporting targeted research through event-based fundraising and dedicated boards
      Directs 100% of net proceeds from the Barrow Open golf tournament to fund the Barrow Golf Neuroscience Research Laboratory, raised $5.1 million for the Ivy Brain Tumor Center via the 2026 Ball, and established the Women's Board in 1964 to advance neurological research and care.
  • Alzheimer's & Cognitive Research Studies 5 activities
    • Conducting Neuroscience Research
      Conducts research to accelerate discoveries and transform neurological care, including refining cardiac standstill procedures, isolating genes for cerebral cavernous malformations, pioneering thoracoscopic spinal surgery, and generating evidence for early Alzheimer's diagnosis.
    • Conducting pioneering neuroscience research and clinical trials
      Conducts high-impact neuroscience research, including gene isolation for inherited cerebral cavernous malformations, refinement of surgical procedures, and clinical trials that generate evidence for early Alzheimer's diagnosis using PET scans. Research directly informs medical practice and insurance coverage policies.
    • Conducting pioneering neuroscience research and clinical trials
      Conducted groundbreaking research including refining the cardiac standstill procedure, isolating the gene for inherited cerebral cavernous malformations, pioneering thoracoscopic spinal surgery, and generating clinical trial evidence supporting PET scans for early Alzheimer's diagnosis and insurance coverage.
    • Conducting pioneering neuroscience research and clinical trials
      Conducts high-impact neuroscience research, including gene isolation for inherited cerebral cavernous malformations, refinement of surgical procedures, and clinical trials that generate evidence for early Alzheimer's diagnosis using PET scans. Research directly informs clinical practice and policy, such as insurance coverage.
    • Conducting pioneering neuroscience research and clinical trials
      Conducts high-impact research including gene isolation for inherited cerebral cavernous malformations, refinement of surgical procedures, and clinical trials that generate evidence for early Alzheimer's diagnosis using PET scans.
  • Advanced Neurosurgical and Spine Care 5 activities
    • Delivering advanced neurosurgical and neurocritical care
      Provides direct patient care using innovative technologies such as minimally invasive spine surgery, robotic spine surgery, and microscopic techniques, including complex interventions like sealing cerebrospinal fluid leaks and managing neurocritical cases over extended ICU stays.
    • Delivering advanced neurosurgical and neurological patient care
      Provides cutting-edge direct patient care through minimally invasive spine surgery, robotic spine surgery, microscopic techniques, and neurocritical care. Includes complex diagnoses and treatments such as CSF leak identification, spinal surgery for fistula repair, and administration of experimental therapies leading to recovery from coma.
    • Providing Advanced Neurological Patient Care
      Delivers advanced neurological care using innovative technologies and procedures such as minimally invasive spine surgery, microscopic techniques, and robotic spine surgery. This includes diagnosing and treating complex conditions like Alzheimer's, CSF leaks, and providing critical care, experimental treatments, and rehabilitation services.
    • Providing advanced neurological patient care and innovative surgical procedures
      Delivers comprehensive, cutting-edge neurological care including minimally invasive spine surgery, robotic spine surgery, microscopic techniques, and FDA-approved compassionate-use treatments. Services include complex diagnostics (e.g., amyloid PET scans), neurocritical care, and surgical interventions for conditions like CSF leaks and brain tumors.
    • Providing advanced neurosurgical and neurological patient care
      Delivers direct clinical services using innovative technologies and procedures such as minimally invasive spine surgery, microscopic techniques, robotic spine surgery, PET scanning for Alzheimer’s diagnosis, spinal surgery for CSF leaks, and administration of experimental treatments including compassionate-use drugs.
  • Member Recognition Awards 1 activity
    • Advancing neurological research through long-standing volunteer governance
      Established the Women's Board in 1964, a longstanding organizational body dedicated to advancing neurological research and care through sustained engagement and support.
  • Integrative Holistic Wellness Services 1 activity
    • Providing comprehensive rehabilitation and supportive care
      Offers multidisciplinary rehabilitation services including psychological support, physical therapy, mindfulness, and yoga as part of pain management and recovery for neurological patients.
financials · form 990 · fy2021
revenue
Total revenue$54.10M
Contributions & grants$44.86M83%
Program service revenue$00%
Investment income$9.81M18%
Other revenue$-571K
expenses
Total expenses$24.26M
Program expenses86%
Admin / overhead13%
Fundraising2%
Salaries & benefits$0
Grants paid out$15.71M
Largest expense lineProfessional Fees
balance sheet
Total assets$227.58M
Cash$32.90M
Investments$141.90M
Liabilities$3.17M
Net assets$224.41M
Liquid reserves86.5 mo
3 years on record · 2019–2021 · YoY revenue -24.7%
leadership · form 990 part vii · fy2021

who runs it

paid leadership · 1
NameTitleHours/wkCompensation
KATHERINE COBB CEO 40 $381K
board members · 24
  • ADAM LEVIN — DIRECTOR
  • ALEXIS GLASCOCK — DIRECTOR
  • AMANDA GARMANY — DIRECTOR
  • ANDY MCCAIN — DIRECTOR
  • BRADLEY GROSSMAN — DIRECTOR
  • CATHERINE IVY — DIRECTOR
  • CHERYL NAJAFI — BOARD SECRETARY
  • DAN DILLION — DIRECTOR
  • DAVID RAUCH — DIRECTOR
  • DAVID VAN DENBURGH — DIRECTOR
  • DIANE MIGHT — DIRECTOR
  • DONNA JOHNSON — DIRECTOR
  • ELLEN KATZ — DIRECTOR
  • HEIDI J TEETS — DIRECTOR
  • IRA FULTON — DIRECTOR
  • JEAN FEUER — DIRECTOR
  • JERRY WORSHAM — DIRECTOR
  • JIM SWANSON — TREASURER
  • JONATHAN LEVINE — DIRECTOR
  • JORDAN ROSE — DIRECTOR
  • KAREN MCCONNELL — DIRECTOR
  • LAURIE CARSON — DIRECTOR
  • LISA HANDLEY — DIRECTOR
  • MAL JOZOFF — DIRECTOR
relationships · 17

who they work with

  • Barrow Neurological Institute Government — Host institution for the Barrow Golf Neuroscience Research Laboratory funded by the event.
  • Barrow Neurological Institute Partner — Collaborates with the Barrow Neurological Foundation to provide patient care and conduct neuroscience research, including clinical trials.
  • Barrow Neurological Institute Partner — Primary beneficiary of the foundation's funding, receiving support for research and patient care.
  • Barrow Neurological Institute Partner — Provides clinical care and treatment through the Lewis Headache Center, where patients receive diagnosis and therapy.
  • Barrow Neurological Institute Partner — Provides resources to support the Institute's mission of neurological research, treatment, and education.
  • Bob and Renee Parsons Foundation Partner — Supporting organization for the Barrow Open golf tournament.
  • CommonSpirit Health Network — Member of CommonSpirit Health Philanthropy network and recipient of its Philanthropist of the Year award.
  • CommonSpirit Health Network — Member of the CommonSpirit system of foundations and named CommonSpirit Health Foundation of the Year in 2020.
  • Dignity Health St. Joseph’s Hospital and Medical Center Partner — Hosts Barrow Neurological Institute in Phoenix, Arizona.
  • FDA Government — Secured compassionate-use drug approval from the FDA for a critically ill patient.
  • Ivy Brain Tumor Center Partner — Recipient of $5.1 million in funding raised by the Women’s Board for the 2026 Ball Special Project.
  • Jennifer Gray, PhD Partner — Clinical psychologist providing psychological support for pain management at the Lewis Headache Center.
  • Juliana Kroese Partner — Physical therapist involved in rehabilitation and headache management through the Lewis Headache Center’s wellness programs.
  • Kerry Knievel, DO Partner — Headache treatment specialist who diagnosed and managed a patient’s cerebrospinal fluid leak and related conditions.
  • Lewis Headache Center Partner — Operates programs and services for headache treatment, including the Wellness Program and multidisciplinary care.
  • Marwan Sabbagh, MD, FAAN Partner — Neurologist at Barrow Neurological Institute who leads clinical trials in Alzheimer's disease and patient care.
  • Parsons Xtreme Golf Partner — Presenting sponsor of the Barrow Open golf tournament.